Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

only symptom is iron deficiency anemia

Capra

Recommended Posts

Capra Newbie
Capra
Posted

Hi everybody,

I have iron deficiency for at least 5 years and in the last year it got worse. Now I have serious anemia, very low ferritin count. 

I have tried a lot of treatments, now it is certain that I have a disease. It is not about malnutrition. 

My doctor wants me to get tested for celiac disease. But I have no other symptoms. No diarrhea, no vomiting, no bloating.

May I still have this disease?

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Yep, that was my only symptom when I went in for a routine colonoscopy.  GI saw my low ferritin history (2) and ordered an endoscopy in addition to the colonoscopy, along with a complete celiac blood panel.  Two months later,  fractured two vertabrae doing nothing!  There are over 300 symptoms of celiac disease.    Check out the University of Chicago's celiac website for the list of symptoms.  

Welcome to the forum!  

squirmingitch Veteran
squirmingitch
Posted

Absolutely! Be thankful you have a doc who is associating the possibility of celiac disease with the anemia. And btw, there is such a thing as silent celiac where the person has zero symptoms at all.

Get tested. And whatever you do do not stop eating gluten until all testing is completed.

Capra Newbie
Capra
Posted
  • Author

Thank you. 

Actually I'm like this for 5 years and this is the first time a doctor talked about celiac disease. I hope they'll find the reason of my anemia. If it is celiac be sure I'll come more often:) 

squirmingitch Veteran
squirmingitch
Posted

Please let us know what happens either way.

nvsmom Community Regular
nvsmom
Posted

I've read anemia is the most common symptom of celiac disease now.

Good luck with the testing.Enjoy a cinnamon bun for me.  ;) Let us know how it goes.  :)

  • 3 weeks later...
Capra Newbie
Capra
Posted
  • Author

Hi again,

I went to a doctor and he started examination. First he made some blood tests. He said that I may have celiac or a bone marrow problem. I've checked my blood tests in the last 4 years. B12 is always on the upper edge, between 450-600. Calcium, Chlor, Potassium, Phosphor, Magnesium, Sodium are all normal in these 4 years. Ferritin is low for about 5 years, ranges are between 3-7. Now 3. I don't know. If I have celiac why in these 6 years it didn't get worse? 

I'm impatient because this diagnosis procedure is long:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...

      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    2. TerryinCO
      - TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...

      Here's the test result I was refering to. I may not be understanding this correctly.
    3. trents
      - trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...

      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one...
    4. Jordan23
      - Jordan23 replied to soulcurrent's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      63

      Shortness Of Breath (the "sighs")?

      I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination. I would get pea milk made...
    5. TerryinCO
      - TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      18

      New Guy Here...

      I haven't been on the site for a while and I have some update info. Genetic tests show I have the Celiac markers and high risk for Celiacs's (10X it shows). Immoglobulin A and G are low - just below the 'green' range; immoglobulin M is in the 'green'. Zinc, Iron, magnesium, ferritin, and b12 are all in the 'green' range. I've been off the PPI...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,550
    • Most Online (within 30 mins)
      7,748
    TexasCeliacNewbie
    Newest Member
    TexasCeliacNewbie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New Guy Here...

      By trents · Posted

      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      Here's the test result I was refering to.  I may not be understanding this correctly.
    • trents
      New Guy Here...

      By trents · Posted

      Thanks for the update @TerryinCO! Would you elaborate what you mean when you say your genetic tests show that you are "10x higher" for developing celiac disease? 10x higher than what? There are two main genes, HLA-DQ2 and HLA-DQ8, that have been identified as providing the potential for developing celiac disease. Since 40% of the population carries one or both of these genes but only 1% of the population actually develops celiac disease, the genetic test cannot be used to diagnose celiac disease, simply to establish the potential for developing it. Gene testing is usually done to rule out celiac disease vs. NCGS (Non Celiac Gluten Sensitivity). In other words, if gluten consumption is definitely causing someone problems but they don't have the genetic potential for developing celiac disease then the diagnosis would be NCGS. We also know that having both DQ2 and DQ8 puts one at higher risk for developing celiac disease than having just one or the other. But I'm not sure I've ever seen it quantified as in "10x higher". Not sure what you mean by this.
    • Jordan23
      Shortness Of Breath (the "sighs")?

      By Jordan23 · Posted

      I would stop Xanax. It will eat away at your DAO enzymes needed to break down histamine . No energy drinks will do the same. I use to have all reactions in stomach now it's changed and started in my chest , which completely sucks and bummed. Maybe your reacting to high histamine foods. But it's hard to avoid cross contamination.  I would get pea milk made by ripples .it's a blue bottle . Ru getting cross reactions? Corn gets me. If it says gluten free it's probably not. Nibble at new foods and wait for reactions. Could be sudden or take 2 hours but some people think it hits 2 days later no way. Avoid coffee. Stick to free range chicken and steak or fish . Do lentils package by kroger works for me it doesn't even say gluten free but works for me just rinse well. Make big soups with sweet potatoes, cauliflower,  brocoli,  cucumbers, and add lentils or cook lentils separate taste better. If you can do potatoes add those inn huge plus. If you can do dairy yogurt try Noosa or a certified gluten free one. Don't smoke I had to quit creates heat and acid in your stomach which lowers your vitamins to break food down. Your reactions are in your chest . Do smoothies everymorning with apple.  🥒 cucumbers, arugula , oranges or add what you can tolerate with water. Try a peppermint tea certified gluten free that works for you. Watch out for spices like turmeric they add flour fillers to prevent caring. I got hit hard by that.  If you have a huge attack get the pin or eat oranges quick. If quinoa works for you get certified huge plus. I could go on and on . Just nibble first wait and see then continue eating it.  It's hard to find nuts that work for you. Maybe try nuts.com..... enter with caution
    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      I haven't been on the site for a while and I have some update info.   Genetic tests show I have the Celiac markers and high risk for Celiacs's  (10X it shows).  Immoglobulin A and G are low - just below the 'green' range; immoglobulin M is in the 'green'.  Zinc, Iron, magnesium, ferritin, and b12 are all in the 'green' range. I've been off the PPI for two weeks now and no real problems...minor heart burn and OTC antacids fix that.  So that's good to be off of that for good. I switched to a b complex sub lingual vitamin. I was surprised about the genetic results on Celiac markers. To my knowledge no one in my family had it or were diagnosed with it.  But they could have had and never been diagnosed.  And at 76 this has come up for me. Gluten free diet is going well and I do feel better on it - nothing major in changes - just better. I appreciate all the advice I've gotten on this site - lots of experience knowledge to draw on here. So thank you, all.
×
×
  • Create New...