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Horrible smelling BM & Farts, gluten intolerant?


Bethanylynn

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Bethanylynn Rookie

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

  • 3 years later...

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Scott Adams Grand Master

Hopefully you've now recovered, and have been able to stay on a gluten-free diet. Let us know!

  • 1 month later...
victor-dan Newbie

I don't think Gluten affects the smell in the intestines that much. I think the combinations of food you eat are more likely affect the smell. Are you eating fruits on an empty stomach. Are you combining meat with bread? Also, I think you should consider having some blood/stool/glucose tests to see if you have a virus/bacteria in your intestines. Bacteria LIKE Helicobacter and Giardia can create unpleasant symptoms. I had such viruses once and I had the worst symptoms ever (including pain and smell). I wish no one this thing.

  • 1 year later...
12345678901234567890 Newbie
On 11/9/2015 at 5:54 PM, Bethanylynn said:

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

I'm unfortunately celiac now after having C.diff which ulcerated my intestines. It's been 2 years, and I've only accidentally been exposed to gluten now 4 times. It's horrible. But i usually can tell it's from a gluten exposure because of the awful sulfur gas. The smell is so intense and will usually linger for days!!! There is NOTHING else like it.  

  • 3 years later...
Shaam Newbie

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

trents Grand Master
46 minutes ago, Shaam said:

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

You say your functional doctor says you don't have the gene (actually there's more than one gene that has been connected with celiac disease) but did that doc actually order a genetic test for that?

And you say you were tested twice for celiac disease and told you didn't have it. Sounds like you have been on and off gluten for some years. My question for you is, when you were tested had you been eating regular amounts of gluten for weeks or months? Many people don't realize the tests for celiac disease are invalidated if you are off of gluten.

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    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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