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Horrible smelling BM & Farts, gluten intolerant?

Bethanylynn

By Bethanylynn
in Coping with Celiac Disease

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Bethanylynn Rookie
Bethanylynn
Posted

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

  • 3 years later...
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Scott Adams Grand Master
Scott Adams
Posted

Hopefully you've now recovered, and have been able to stay on a gluten-free diet. Let us know!

  • 1 month later...
victor-dan Newbie
victor-dan
Posted

I don't think Gluten affects the smell in the intestines that much. I think the combinations of food you eat are more likely affect the smell. Are you eating fruits on an empty stomach. Are you combining meat with bread? Also, I think you should consider having some blood/stool/glucose tests to see if you have a virus/bacteria in your intestines. Bacteria LIKE Helicobacter and Giardia can create unpleasant symptoms. I had such viruses once and I had the worst symptoms ever (including pain and smell). I wish no one this thing.

  • 1 year later...
12345678901234567890 Newbie
12345678901234567890
Posted
On 11/9/2015 at 5:54 PM, Bethanylynn said:

Been gluten free for a little over a year, but gluten slipted into my foods that I thought was gluten free. Well a couples months ago I noticed my BM & farts have been smelling like sulfur/ rotten eggs, do you think not knowing about being gluten intolerant for so long made my poops smell so bad? It's really embarrassing to be honest it's horrible smelling 

I'm unfortunately celiac now after having C.diff which ulcerated my intestines. It's been 2 years, and I've only accidentally been exposed to gluten now 4 times. It's horrible. But i usually can tell it's from a gluten exposure because of the awful sulfur gas. The smell is so intense and will usually linger for days!!! There is NOTHING else like it.  

  • 3 years later...
Shaam Newbie
Shaam
Posted

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

trents Grand Master
trents
Posted
46 minutes ago, Shaam said:

I know it’s been a long time since you posted I just wanted you to know and other people who might come across this to find my response. I have the same symptoms. I’ve been tested for celiac twice and told I don’t have it. My functional doctor told me that I don’t have the gene for celiac. Her GI doctor thinks I have non celiac gluten sensitivity. But I experience the exact same thing you do and have for at least 20 years. If I abstain from gluten and then eat it again I have the exact same sulfur smelling awful gas that’s completely abnormal from like regular gas. I also did GI mapping and have Candida, h pylori, and am missing some beneficial bacteria from my gut but I don’t have c diff. Anyway. I just wanted to share. 

You say your functional doctor says you don't have the gene (actually there's more than one gene that has been connected with celiac disease) but did that doc actually order a genetic test for that?

And you say you were tested twice for celiac disease and told you didn't have it. Sounds like you have been on and off gluten for some years. My question for you is, when you were tested had you been eating regular amounts of gluten for weeks or months? Many people don't realize the tests for celiac disease are invalidated if you are off of gluten.

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    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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      By MaryMJ · Posted

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    • trents
      What should I do with these test results?

      By trents · Posted

      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

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    • Jack Common
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      By Jack Common · Posted

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