Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

can't figure out what is glutening me

mommyto2kids

By mommyto2kids
in Food Intolerance & Leaky Gut

Recommended Posts

mommyto2kids Collaborator
mommyto2kids
Posted

There is something that has been glutening me the last several weeks and I can't figure it out. I don't know what in the world it is. I am so frustrated. I ate a gluten-free hot dog yesterday and had some food for life cookies. Not sure if that was it. But every few days something is getting me to react. 

What can I safely eat for a few days to test what it is. I eat almond milk in my coffee.  I'm wondering if the coffee is too strong or just what it could be. My gut is in a knot and I keep having painful loose stool. 

I just want to be better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2lonedogs Newbie
2lonedogs
Posted

Wow, you probably have a long way to go... It's not just gluten many people have found out. Since it wrecks your autoimmune system, your body treats all kinds of foods as invaders and attacks them with those same gluten type symptoms and others. To give you some hints at what may be doing it, I avoid all dairy, grains, fruit, chemicals ( preservatives, baking soda, baking powder) soy, nuts. Basically I eat only veggies and fresh meats. Chemicals make my brain fog-up and nausea/ tired takes over for a few hours. Watch for bloating, gas and diarrhea after meals. I'm in my early 60s so joint paint is an issue because food intolerance creates taut muscles which puts pressure on your joints... Creates pulled muscles, muscle cramping and joint pain. 

If you weigh yourself every day, you can also detect issues by sudden weight gain overnight of 2-3 lbs ( in my case. )

Have been at this 2 years and I feel 30 yrs old again most days except when I try another food that doesn't work... Whether you like it or not, you are now your own personal human test subject. Good luck in your efforts... Check back here often!

jerseyangel Proficient
jerseyangel
Posted

Hi, I noticed that you use almond milk, and thought I'd pass along something that I learned while doing a dairy free trial a while back and subbed almond milk for dairy in my daily tea.

A lot of commercial almond milks contain carrigeenan, which can cause pretty severe intestinal irritation in some people.  It's *not* a gluten issue, but it's something to consider if you're trying to figure out what's bothering you.  At any rate, I hope you get to the source of your discomfort:)

cyclinglady Grand Master
cyclinglady
Posted
19 minutes ago, jerseyangel said:

Hi, I noticed that you use almond milk, and thought I'd pass along something that I learned while doing a dairy free trial a while back and subbed almond milk for dairy in my daily tea.

A lot of commercial almond milks contain carrigeenan, which can cause pretty severe intestinal irritation in some people.  It's *not* a gluten issue, but it's something to consider if you're trying to figure out what's bothering you.  At any rate, I hope you get to the source of your discomfort:)

Excellent suggestion!  I had issues with xanthan gum found in most commercial breads.   I also can not eat anything with a sausage casing.  It comes right back up after a few hours suffering nausea.  Not a gluten issue, just a "me" problem.  

mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

Does almond yogurt have carrageenan? Could it be am probiotic? It is gluten-free tho.

jerseyangel Proficient
jerseyangel
Posted

Carrageenan is used as a thickener, to enhance texture, it's not a probiotic.  If it's in a product, it will be listed as such on the ingredient list.

tbiz Newbie
tbiz
Posted

I was gluten free for months and still having the same nagging gluten symptoms. That is until i finally put it together that I felt worse after corn containing products. Turns out, corn has its own form of gluten. Most people with a gluten issue can tolerate corn gluten just fine, but some cannot. I feel much much better since going corn free, as much as it's stunk giving up some of my favorites (i was a soda junkie beforehand!)

I'm hoping that after some healing time I can slowly reintroduce corn into my diet in small amounts simply for the fact that it's in A LOT of stuff!! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

I keep thinking about it. Could it be my probiotic? Can I not tolerate all probiotics right now? Recently I tried two different ones that claim to be gluten-free. I was thinking it may be my Udi's bread. Then I was thinking it may be the food for life chocolate chips. But I started retaking probiotics recently as well, after a long break. I used to take them ok I think. But I have to consider ALL foods or meds. 

Is there a fool proof probiotic that you can think of? If so, please let me know. Can I get probiotic in foods other than dairy?

 

  • 3 weeks later...
cap6 Enthusiast
cap6
Posted

Food products like hot dogs, cookies and bread all have multiple ingredients which can play hell on a gut that is still struggling to heal.  Stick with fresh, whole, clean foods for at least 6 months and then slowly introduce one of your favorite goodies, like a hot dog, and see how you do.   If a food product has ingredients, then it is not a whole clean food.  Bake a piece of chicken with some spices, roast or steam some veggies, bake a sweet potato & pour a little coconut oil on it.  Yummy, good for you and ingredient free!  Help for your healing gut!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,916
    • Most Online (within 30 mins)
      7,748
    nonleadedmilk
    Newest Member
    nonleadedmilk
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Gluten Ataxia

      By knitty kitty · Posted

      Hi, @Dawn R., I get gluten ataxia.  It's very disconcerting.   Are you still experiencing gluten ataxia symptoms eating a gluten free diet?  
    • knitty kitty
      Raw Meat Craving

      By knitty kitty · Posted

      @Jordan Carlson, Sorry to hear you're having a bumpy journey right now.  I've been there.  I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet).  It gave my digestive system time to heal.  After I felt better, I could add things back into my diet without reactions.   In Celiac Disease, we make lots of histamine as part of the autoimmune response.  There's also histamine in certain types of food.  Lowering histamine levels will help you feel better.  Foods high in histamine are shellfish, crustaceans, fermented foods like pickles and sauerkraut, canned foods, processed meats and smoked meats like bacon and ham, and aged cheeses.  Grains and legumes can also be high in histamine, plus they contain hard to digest Lectins, so they go, too.  Cutting out corn made a big improvement.  Some Celiacs react to corn as though it were gluten.   Dairy can be problematic, so it goes.  Some Celiacs have lactose intolerance because their damaged villi cannot make Lactase, the enzyme that digests lactose, the carbohydrate in dairy, while some Celiacs react to Casein, the protein in dairy that resembles gluten.  Dairy is high in iodine, which makes dermatitis herpetiformis flare up badly.  Eggs are high in Iodine, too.  I even switched to pink Himalayan salt, instead of iodized salt.  Avoid processed gluten free facsimile foods like cookies and breads because they have lots of additives that can cause high histamine, like carrageenan and corn.   Yes, it's a lot.  Basically veggies and meat and some fruit.  But the AIP Paleo diet really does help heal the intestines.  My digestive tract felt like it was on vacation!   I'd throw meat and veggies in a crock pot and had a vacation from cooking, too.  Think easy to digest, simple meals.  You would feed a sickly kitten differently than an adult cat, so baby your tummy, too! Take your vitamins!  It's difficult to absorb nutrients from our food when everything is so inflamed.  Supplementing with essential vitamins helps our absorption while healing.  Niacin B3, the kind that flushes (nicotinic acid -not the same as nicotine in cigarettes, don't worry!) REALLY helps with the dermatitis herpetiformis flares.  Niacin and Thiamine make digestive enzymes so you can digest fats.  Add in healthy Omega Three fats, olive oil, flaxseed oil, avocado oil, coconut oil.  Vitamin D helps lower inflammation and regulates the immune system.  Thiamine helps mast cells not to release histamine at the slightest provocation.  Benfotiamine, a form of Thiamine B1, has been shown to promote intestinal healing.  Pyridoxine B6, Riboflavin B2, Vitamin C and Vitamin A help heal the digestive tract as well as the skin.  Our outside skin is continuous with our digestive tract.  When my outside skin is having breakouts and hives, I know my insides are unhappy, too.   Talk to your doctor and nutritionist about supplementing.  Blood tests are NOT accurate measurements of B vitamin deficiencies.  These tests measure what's in the bloodstream, not what is inside cells where vitamins are used.  Supplementing with essential vitamins and minerals made a big difference with me.  (My blog has more of my bumpy journey.) Let me know if you have more questions.  You can get through this!    
    • Jordan Carlson
      Raw Meat Craving

      By Jordan Carlson · Posted

      Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take every precaution possible to be as gluten free as I possibly can and have simplified my diet as much as I possibly can but still cant get past this point in my recovery. If this is the case, I believe it would be considered non-responsive Celiac Disease or Refractory Celiac Disease. The only time I have ate gluten purposely in the last year was for the 3 weeks leading up to my endoscopy for diagnosis. Aside from that, the last year has been a constant disappointing effort to be gluten free with the same result of getting stuck at this point. I have a appointment with my doctor next week to discuss some treatment options and what the next steps are in trying to get my body to push past this point.   I will keep you posted! 
    • knitty kitty
      10 years later, my celiac is progressing

      By knitty kitty · Posted

      @GardeningForHealth, How are things going for you?   I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
    • knitty kitty
      Raw Meat Craving

      By knitty kitty · Posted

      @Jordan Carlson, How are you doing now?  Your post slipped by, but I had to let you know you weren't alone.  I've had cravings for raw meat my whole life.  It's due to being low or deficient B vitamins, specifically Thiamine.  Meat is a great source of B vitamins.  Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows up.   Thiamine and Niacin make digestive enzymes that will help you digest fats.  Thiamine will help improve gastroparesis, anxiety, vertigo, and heart palpitations.  Niacin will help Dermatitis Herpetiformis.  I get dermatitis herpetiformis blisters on the palms of my hands, too. Really active people (especially if outdoors in hot weather) need additional Thiamine.  If a high carbohydrate diet is eaten, additional Thiamine is needed, too.  I take Benfotiamine, a form of Thiamine that helps heal the digestive tract.  I also supplement magnesium because Thiamine and magnesium work together.   Hope you can update us on how you're doing.  
×
×
  • Create New...