Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs who struggle with dairy...a2 milk?

DandelionH

By DandelionH
in Food Intolerance & Leaky Gut

Recommended Posts

DandelionH Apprentice
DandelionH
Posted

I'm sure this has been covered here but I'm not debating the theory... more just looking for your personal experiences :) ! 

I started eating dairy again recently and am thrilled that yoghurt and probably cheese have no ill effect.
I even got up the guts (ha) to start drinking coffee at the local coffee shop...WITH MILK. As in... not even fermented. JUST MILK.
At first I had Lacteese to cover my bases/break associations... and after a few days I didn't take it and... STILL NOTHING.
Success! Repeated every day for about 6 days. Lactose and I are buds.

But. Yesterday I got coffee from somewhere else and had the same old dairy symptoms (I think).... and it could be due to the heat wave that hatched here or hormones (that time of the month) so I'm not jumping to conclusions but I did just find out upon returning to local cafe that they use Jersey milk...

Seems unlikely to be the cause though because I don't think cheese was bad and that's still got protein in it... unlike icecream which also had a1 milk and was ok...

Are you a celiac who struggles with dairy but tolerates a2? Or?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

Dandelion.......I think you may have solved one of my life's greatest mysteries for the past year!  ;)  I read your post and had to admit...what the hell is a1/a2 milk?  I am in the States and thought you might be from Europe or the UK so I did a google to see what this milk was all about.  This is what I came up with.......

Open Original Shared Link

There were many references to a1/a2 milk on the internet but I had never heard of it.  But here is my story so see what you think!

I went on a trip to England in October of 2014, one of many I have made over the past 20 years.  I was diagnosed with Celiac in 2005 and have never really gained much dairy back.  I can eat harder cheeses and some yoghurt, in limited amounts but forget milk, pudding, or ice cream. I would get sick.  Soooooooo......I was in a restaurant in London on the day I landed and was so tired from jet lag but needed to eat. The restaurant is called Cote', a chain, and they have a very good gluten-free menu. French food....yum!  I ordered this fish pie because you can't get French fish pie in the States unless you make it yourself.  Of course, it is in a milk based sauce but I was tired and it was calling my name.

Yes, it was delicious and I figured I would just deal with the discomfort so I could have this great meal. Well, the next day I felt fine.  Odd, I thought, as I could not do that at home.  So, I became more daring. I ate more dairy than I do here at home. I bought delicious milk from your local stores and it was not 1% milk fat that they have in the States but 4% full fat milk that was so creamy and good, I loved it. I never actually drank a glass of milk but used it freely in my tea. I ate meals with cream sauces at French restaurants, put milk in my tea, and had those great Cadbury's dairy milk chocolates I wish I could get here. I felt great the whole vacation and my gut felt even better than the good it feels when I am here in the States.

As you can imagine, I was going crazy trying to figure out what the hell was going on that I can have dairy with no issues across the Pond and not be able to tolerate much at all here at home.  I then returned to reality and the first thing I did was trial some dairy and it was an immediate no go!  For the past year, I have still been trying to figure it out and now you post this thread that has got me seriously wondering if there is anything to this?  Maybe the reason I do well with cheese is that I buy a lot of imported cheeses from France, Britain, Spain and Italy????????  The company in the article says they are going to try and market the a2 milk in the States again so I am going to find out if I can buy this somewhere here and give it a go. I will say that I agree with the article.....the milk I had in England was so much creamier than the milk here. Of course, Americans are afraid of milk and drink this watered down stuff. That is what I like about Europeans....they are not afraid of their food.  After eating there many times, I have come to the conclusion that your food and milk is better than here in the States. It just is!  :)  Thanks for bringing this subject up!

squirmingitch Veteran
squirmingitch
Posted

This is amazingly interesting. Yes, thanks for bringing this subject up Dandelion!

DandelionH Apprentice
DandelionH
Posted
  • Author

Glad to inspire some experimentation!
I'm personally hoping that, as big dairy corporations say (and can be the case with some health-conscious fads of course), it's an unsubstantiated myth because eating any dairy is easier than eating specific dairy but then... it's working for a lot of people I know who are 'lactose intolerant' and feeling good is good, regardless of how.

I'm going to try the regular milk again when stomach totally settled (after today. Not as bad as yesterday but still not quite right) and compare it. But still baffled as to why the cheese seemed to be ok...

squirmingitch Veteran
squirmingitch
Posted

I thankfully don't have any problem with dairy but I do have friends who have big problems with it. As soon as I read the article in the link Gemini provided, I sent the link to my friends. One already answered back. I knew her husband, whom I used to work for, couldn't drink milk or eat ice cream but I didn't know he can, however, have cheese, sour cream, cream cheese, which I think is odd. Nobody has explained that either.

So there are mysteries we still don't know the answers to. I can understand him being able to eat sour cream and some cheeses but I don't understand the cream cheese.

cyclinglady Grand Master
cyclinglady
Posted

A2 milk is being sold in California.  I actually saw it tonight at Stater Bros.  

DandelionH Apprentice
DandelionH
Posted
  • Author

Yep, it's everywhere! But also just in the form of milk sold as Guersey or Jersey (aka most of Europe's milk and a bit of it here in Aust.) or sheep and goat products.

Had a glass of it at 2. It's 5 now. Still rockin'. But as above, maybe the last one was coincidence so tomorrow I test 'normal' (but tasty) organic milk and determine what sort of milk is the first I buy for my fridge in 10 years! Squee! Excite! ehehe.
 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted
10 hours ago, cyclinglady said:

A2 milk is being sold in California.  I actually saw it tonight at Stater Bros.  

I found a store in NH that stocks this milk.  My father lives in NH and I am visiting this Christmas so I am going to try and buy some and test it out.  It's right on the way to his house.  I am not so much interested in becoming a milk drinker again but it would be nice to enjoy a good cream sauce or pudding now and again. I also could use all the calcium I can get!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,097
    • Most Online (within 30 mins)
      7,748
    Ann Den
    Newest Member
    Ann Den
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms.  Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency.   Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL   What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Help. I’m spiraling. Years of extensive symptoms:  What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sensitivity Anxiety and depression Low libido Sun skin allergy Frequent fatigue ended up seeing PCP because I looked 8 mo preg. Started gluten-free diet then celiac serology negative. SW GI Dr dx me w celiac as I had been in bed for 3 days after eating gluten after cutting. GI said not to do biopsy because it was clear what was going on and added to chart. My spiral is not seeing anywhere this is done and want to see if anyone else has dealt w this. If not celiac idk what else I will do. Family history or celiac as well as a death related to this. 
    • miguel54b
      Canker sores

      By miguel54b · Posted

      I get canker sores one hour after eating Oats, and pimples in my butt. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.