Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiacs who struggle with dairy...a2 milk?

DandelionH

By DandelionH
in Food Intolerance & Leaky Gut

Recommended Posts

DandelionH Apprentice
DandelionH
Posted

I'm sure this has been covered here but I'm not debating the theory... more just looking for your personal experiences :) ! 

I started eating dairy again recently and am thrilled that yoghurt and probably cheese have no ill effect.
I even got up the guts (ha) to start drinking coffee at the local coffee shop...WITH MILK. As in... not even fermented. JUST MILK.
At first I had Lacteese to cover my bases/break associations... and after a few days I didn't take it and... STILL NOTHING.
Success! Repeated every day for about 6 days. Lactose and I are buds.

But. Yesterday I got coffee from somewhere else and had the same old dairy symptoms (I think).... and it could be due to the heat wave that hatched here or hormones (that time of the month) so I'm not jumping to conclusions but I did just find out upon returning to local cafe that they use Jersey milk...

Seems unlikely to be the cause though because I don't think cheese was bad and that's still got protein in it... unlike icecream which also had a1 milk and was ok...

Are you a celiac who struggles with dairy but tolerates a2? Or?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

Dandelion.......I think you may have solved one of my life's greatest mysteries for the past year!  ;)  I read your post and had to admit...what the hell is a1/a2 milk?  I am in the States and thought you might be from Europe or the UK so I did a google to see what this milk was all about.  This is what I came up with.......

Open Original Shared Link

There were many references to a1/a2 milk on the internet but I had never heard of it.  But here is my story so see what you think!

I went on a trip to England in October of 2014, one of many I have made over the past 20 years.  I was diagnosed with Celiac in 2005 and have never really gained much dairy back.  I can eat harder cheeses and some yoghurt, in limited amounts but forget milk, pudding, or ice cream. I would get sick.  Soooooooo......I was in a restaurant in London on the day I landed and was so tired from jet lag but needed to eat. The restaurant is called Cote', a chain, and they have a very good gluten-free menu. French food....yum!  I ordered this fish pie because you can't get French fish pie in the States unless you make it yourself.  Of course, it is in a milk based sauce but I was tired and it was calling my name.

Yes, it was delicious and I figured I would just deal with the discomfort so I could have this great meal. Well, the next day I felt fine.  Odd, I thought, as I could not do that at home.  So, I became more daring. I ate more dairy than I do here at home. I bought delicious milk from your local stores and it was not 1% milk fat that they have in the States but 4% full fat milk that was so creamy and good, I loved it. I never actually drank a glass of milk but used it freely in my tea. I ate meals with cream sauces at French restaurants, put milk in my tea, and had those great Cadbury's dairy milk chocolates I wish I could get here. I felt great the whole vacation and my gut felt even better than the good it feels when I am here in the States.

As you can imagine, I was going crazy trying to figure out what the hell was going on that I can have dairy with no issues across the Pond and not be able to tolerate much at all here at home.  I then returned to reality and the first thing I did was trial some dairy and it was an immediate no go!  For the past year, I have still been trying to figure it out and now you post this thread that has got me seriously wondering if there is anything to this?  Maybe the reason I do well with cheese is that I buy a lot of imported cheeses from France, Britain, Spain and Italy????????  The company in the article says they are going to try and market the a2 milk in the States again so I am going to find out if I can buy this somewhere here and give it a go. I will say that I agree with the article.....the milk I had in England was so much creamier than the milk here. Of course, Americans are afraid of milk and drink this watered down stuff. That is what I like about Europeans....they are not afraid of their food.  After eating there many times, I have come to the conclusion that your food and milk is better than here in the States. It just is!  :)  Thanks for bringing this subject up!

squirmingitch Veteran
squirmingitch
Posted

This is amazingly interesting. Yes, thanks for bringing this subject up Dandelion!

DandelionH Apprentice
DandelionH
Posted
  • Author

Glad to inspire some experimentation!
I'm personally hoping that, as big dairy corporations say (and can be the case with some health-conscious fads of course), it's an unsubstantiated myth because eating any dairy is easier than eating specific dairy but then... it's working for a lot of people I know who are 'lactose intolerant' and feeling good is good, regardless of how.

I'm going to try the regular milk again when stomach totally settled (after today. Not as bad as yesterday but still not quite right) and compare it. But still baffled as to why the cheese seemed to be ok...

squirmingitch Veteran
squirmingitch
Posted

I thankfully don't have any problem with dairy but I do have friends who have big problems with it. As soon as I read the article in the link Gemini provided, I sent the link to my friends. One already answered back. I knew her husband, whom I used to work for, couldn't drink milk or eat ice cream but I didn't know he can, however, have cheese, sour cream, cream cheese, which I think is odd. Nobody has explained that either.

So there are mysteries we still don't know the answers to. I can understand him being able to eat sour cream and some cheeses but I don't understand the cream cheese.

cyclinglady Grand Master
cyclinglady
Posted

A2 milk is being sold in California.  I actually saw it tonight at Stater Bros.  

DandelionH Apprentice
DandelionH
Posted
  • Author

Yep, it's everywhere! But also just in the form of milk sold as Guersey or Jersey (aka most of Europe's milk and a bit of it here in Aust.) or sheep and goat products.

Had a glass of it at 2. It's 5 now. Still rockin'. But as above, maybe the last one was coincidence so tomorrow I test 'normal' (but tasty) organic milk and determine what sort of milk is the first I buy for my fridge in 10 years! Squee! Excite! ehehe.
 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted
10 hours ago, cyclinglady said:

A2 milk is being sold in California.  I actually saw it tonight at Stater Bros.  

I found a store in NH that stocks this milk.  My father lives in NH and I am visiting this Christmas so I am going to try and buy some and test it out.  It's right on the way to his house.  I am not so much interested in becoming a milk drinker again but it would be nice to enjoy a good cream sauce or pudding now and again. I also could use all the calcium I can get!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      Gluten Issues and Vitamin D

      And more:
    2. Wheatwacked
      - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive. The endoscopy and biopsy is looking for damage to your small intestine. I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy...
    3. Scott Adams
      0

      Gluten-Free Diet Burnout: Why It Happens and How to Get Your Motivation Back (+Video)

    4. Midwesteaglesfan
      - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      At 41 years old I have been fighting fatigue and joint pain for a couple months. My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right. Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist. He was extremely thorough and sat with me and m...
    5. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,268
    • Most Online (within 30 mins)
      7,748
    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Borky
      Gluten food test strips

      By Borky · Posted

      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
      Gluten Issues and Vitamin D

      By Wheatwacked · Posted

      And more:
    • Wheatwacked
      Going for upper endoscopy today

      By Wheatwacked · Posted

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.