Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Explaining Celiac to my mom (again)


rpayne88

Recommended Posts

rpayne88 Newbie

So, yesterday I ate some cookies labeled "gluten free" that contained oats (I forgot that manufacturers can use oats in gluten-free products) and promptly started experiencing an immune response.  For some reason, when I eat gluten, I get constipated in addition to all the other "normal" symptoms.  Today, I have been preforming a colon cleanse to flush all the gluten out of my gut.  

 

While I was in the bathroom, my mom came home and started complaining that I ate "just a little gluten" and that I was taking too long.  What really POs me is the fact that she herself has Celiac.  She got lucky.  Her symptoms appear much milder than either my own or my former boss (who owns a gluten free restaurant.)  How can I drive it into her head that gluten, especially when you can not clear it from your system without a laxative, is both extremely painful and causes (potentially permanent) damage to my body.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



manasota Explorer

Ouch!  I really feel your pain.  It is very frustrating, sad, and lonely when your close relatives simply do not want to hear the truth.  I see that you joined in 2012 and are still having this issue.  I'm guessing your Mother will never really hear you.  (So very sorry.)

Only 1 of my close relatives has been tested for Celiac.  The rest of my relatives simply do not want to hear it. When I try to explain Celiac to them, I can see that they are shutting down their ears and minds.

Sometimes it is best if we can just "let it go".  Most likely, you've already tried your best to communicate your needs.  It's easier said than done; but maybe you just need to "let it go"?  Again, so sorry.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,117
    • Most Online (within 30 mins)
      7,748

    Mizscarlett
    Newest Member
    Mizscarlett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Soleihey
      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
    • TerryinCO
      Thank you for direction.  Eating out is a concern though we rarely do, but I'm prepared now.
    • trents
      This might be helpful to you at this point:   
    • cristiana
      Thank you for the update.  So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy.  Glad you know where you stand.  As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
    • trents
      But isn't it easier to just take a D3 supplement? Is the D light somehow a superior source? Links?
×
×
  • Create New...