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increased lymphocytes in biopsy 8 years after gluten-free living

HOd

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HOd Newbie
HOd
Posted

Hi,

I recently had an upper endoscopy which revealed "mild increase lymphocytes but no villous blunting - marsh grade 1". This is a big improvement over what I experienced 8 years ago when Celiac was originally diagnosed, but I'm wondering if it's normal to continue to have these lymphocytes in the gut, or whether that's an indication that there's still gluten exposure. Does anybody have experience with this?

Thanks. H.

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rrmac Apprentice
rrmac
Posted

Following 

cyclinglady Grand Master
cyclinglady
Posted

Congratulations on at least improving!  Did they also run a celiac panel to  to determine if gluten has caused this?  I understand that there area any things that can cause intestinal damage ("What else can cause intestinal damage".  University of Chicago celiac website.)

 This is an interesting subject.  From my latest research, it appears that many Celiacs do not heal.  Either they continue to blatantly consume  gluten or they are getting glutened and do not know it.  

Here is some interesting reading.  It is about new drugs being developed and cites the inability to heal for many quoting Drs. Murrary and Fansano: 

(Okay...can not link via my iPad on celiac.com, so Google it -- "Fansano, Murray, celiac no intestinal healing")

I personally suspect our food sources.  I think manufacturers are making mistakes (e.g. General Mills/Cherrios) and we are getting gluten (traces) maybe even in gluten free foods.  I am not trying to stir things up, but humans who make mistakes are manufacturing foods or preparing them.   It can happen, rare, but possible.  

I was glutened in July (confirmed by follow-up blood tests by my GI) and still do not know what glutened me.  I have a few suspects (something my gluten-free hubby never consumes), but am not willing to test them out.   I am waiting for the new celiac drugs to come out.  I used to think that it was  best to avoid drugs and eat whole foods, but it would be nice to travel and take medication to prevent a glutening.  A girl can wish, huh?  In the meantime, I do my best to avoid gluten.  I am not ready to buy a farm and raise all my own food.  

I hope you continue to heal!  

 

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

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      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

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      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
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      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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