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Gastric bypass has resulted in total gluten intolerance

dreaspace

By dreaspace
in Coping with Celiac Disease

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dreaspace Newbie
dreaspace
Posted

I'm simply reaching out to others.  8 years ago I had a gastric bypass, the old fashioned kind, where  they literally stapled my stomach, cut it off of where it was supposed to attach to my intestine, and picked a new spot.  8 yrs later, they have discovered after lots of us have lost teeth/hair from no calcium absorption,are chronicly anemic, ( tried: b12 shots, nasal and sublingual ) and have fluctuating blood sugars... that I am also gluten intolerant.

I saw multiple specialist, all who focused on the pouch area they now call my stomach.  No one thought about the point of connection to my intestine, or what it might effect. 

If I can not tolerate sweets related to no intrinsic factor and get 'dumping syndrome'.... why did no one recognize that possibly gluten would also bother me? ? 

I have been gluten free for about 4 years now.  I started as a self-diagnosing journey of "gluten -hangover"..... as a nurse, to have my patients say I looked terrible, hurt. ( Especially as I work in substance abuse, ands was NOT  hung over from alcohol).To have non-stop belching battles after a few bites of food ~intolerable! 

I feel 100 times better. ... and am just as adventurous about cooking/living gluten-free as I was in the other world.  

I'm curious to see if others have found this to be a result of surgery as well. ( luckily they have all but stopped performing my type of bypass...as it created multiple medical issues)

In regards to bloodwork, it has been abnormal since surgery. ..across the board.

Thank you for listening. .. 

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lmondor Newbie
lmondor
Posted

I had roux and y gastric bypass 14 plus years ago. Was having trouble with iron absorption around year 8. All Drs I saw said it was just gastric bypass causing issue. A few years later started having issues with high liver enzymes. After years of Drs trying to figure it out a smart dr at mayo figure out I have celiac disease. I tested very high on ttg test and then confirmed with biopsy.  I figured maybe gastric bypass was why I developed the disease but have since found out my son has it to. My son is 21 and has never had surgery.

dreaspace Newbie
dreaspace
Posted
  • Author

I'm going for further testing, maybe it's the chicken/egg syndrome. .. maybe I was prone to celiac. .but my weight issues overshadowed it. .. interesting.  Thanks 

  • 3 years later...
dinort Newbie
dinort
Posted
On 12/16/2015 at 10:48 AM, dreaspace said:

I'm simply reaching out to others.  8 years ago I had a gastric bypass, the old fashioned kind, where  they literally stapled my stomach, cut it off of where it was supposed to attach to my intestine, and picked a new spot.  8 yrs later, they have discovered after lots of us have lost teeth/hair from no calcium absorption,are chronicly anemic, ( tried: b12 shots, nasal and sublingual ) and have fluctuating blood sugars... that I am also gluten intolerant.

I saw multiple specialist, all who focused on the pouch area they now call my stomach.  No one thought about the point of connection to my intestine, or what it might effect. 

If I can not tolerate sweets related to no intrinsic factor and get 'dumping syndrome'.... why did no one recognize that possibly gluten would also bother me? ? 

I have been gluten free for about 4 years now.  I started as a self-diagnosing journey of "gluten -hangover"..... as a nurse, to have my patients say I looked terrible, hurt. ( Especially as I work in substance abuse, ands was NOT  hung over from alcohol).To have non-stop belching battles after a few bites of food ~intolerable! 

I feel 100 times better. ... and am just as adventurous about cooking/living gluten-free as I was in the other world.  

I'm curious to see if others have found this to be a result of surgery as well. ( luckily they have all but stopped performing my type of bypass...as it created multiple medical issues)

In regards to bloodwork, it has been abnormal since surgery. ..across the board.

Thank you for listening. .. 

I have had debilitating back pain for almost 4 years.  I too had GB in 2003.  I never had any gluten problems but doctor suggested I try it.  I was just searching around to see if anyone else that had GB were posting about gluten problems.  Thanks and I hope you are still doing well.

  • 3 months later...
dllamerson Newbie
dllamerson
Posted
On 12/16/2015 at 8:48 AM, dreaspace said:

I'm simply reaching out to others.  8 years ago I had a gastric bypass, the old fashioned kind, where  they literally stapled my stomach, cut it off of where it was supposed to attach to my intestine, and picked a new spot.  8 yrs later, they have discovered after lots of us have lost teeth/hair from no calcium absorption,are chronicly anemic, ( tried: b12 shots, nasal and sublingual ) and have fluctuating blood sugars... that I am also gluten intolerant.

I saw multiple specialist, all who focused on the pouch area they now call my stomach.  No one thought about the point of connection to my intestine, or what it might effect. 

If I can not tolerate sweets related to no intrinsic factor and get 'dumping syndrome'.... why did no one recognize that possibly gluten would also bother me? ? 

I have been gluten free for about 4 years now.  I started as a self-diagnosing journey of "gluten -hangover"..... as a nurse, to have my patients say I looked terrible, hurt. ( Especially as I work in substance abuse, ands was NOT  hung over from alcohol).To have non-stop belching battles after a few bites of food ~intolerable! 

I feel 100 times better. ... and am just as adventurous about cooking/living gluten-free as I was in the other world.  

I'm curious to see if others have found this to be a result of surgery as well. ( luckily they have all but stopped performing my type of bypass...as it created multiple medical issues)

In regards to bloodwork, it has been abnormal since surgery. ..across the board.

Thank you for listening. .. 

Dear Dreaspace, I had gastric bypass in 2008 and did well trying to get in protein and also lost about 150 lbs. Since Jan. of 2019 I have had trouble bouts of stomach pains, diarrhea, mild fever, tiredness and a few other things I cant think of at the moment. Now I am with Celiac Disease after days without being able to eat or drink, along with trips to ED for dehydration. I am very curious and interested in what you eat to keep your protein up as I remember them stressing 80 milligrams of protein daily. which was really hard for me until I started having protein drinks. Now with newly diagnosis of this disease I am at a loss. Any help would be truly appreciated. I am scared to eat just about anything and my bloodwork witch was unmonitored for years, (due to a slip through the cracks, they called it) are all abnormal.     

cyclinglady Grand Master
cyclinglady
Posted
13 hours ago, dllamerson said:

Dear Dreaspace, I had gastric bypass in 2008 and did well trying to get in protein and also lost about 150 lbs. Since Jan. of 2019 I have had trouble bouts of stomach pains, diarrhea, mild fever, tiredness and a few other things I cant think of at the moment. Now I am with Celiac Disease after days without being able to eat or drink, along with trips to ED for dehydration. I am very curious and interested in what you eat to keep your protein up as I remember them stressing 80 milligrams of protein daily. which was really hard for me until I started having protein drinks. Now with newly diagnosis of this disease I am at a loss. Any help would be truly appreciated. I am scared to eat just about anything and my bloodwork witch was unmonitored for years, (due to a slip through the cracks, they called it) are all abnormal.     

I am so sorry that you are struggling.  Have you tried a meal replacement like Ensure?  After a gluten exposure, I consume homemade soups, broths, and stews that are cooked for so long, that digesting them is kinder to the gut because anything hurts to digest.   Avoid raw foods, even food, unless it is cooked.  

I have read that gastric bypass can trigger celiac disease.  I am so sorry this has happened to you.  I can say that with time, you should heal.

Hugs!  

 

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