Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have any of you had to get an attorney to intervene with a situation?


Zachm

Recommended Posts

Zachm Contributor

First off, I hate that it has come to this. Long story short, I started a local community college back in 2014 (took traditional classes at first). About December Celiac hit me very hard. I went back and forth to doctors offices for about 8 months before they had any idea. Come July my doctor figured out it was Celiac (He also said I still had another cause too, but being a college student, I havent had time to do any other examinations) I'm used to it now being called a hermit and over dramatic and everything from family and friends and I am sure most of y'all get the same stuff, like my relatives call me a "germaphobe" because I wont eat anything that has come in contact with gluten, like say a deep fryer is used for breaded fries, using it for something Id use would be perfectly fine and eating cheese or pepperonis off of a gluten pizza wouldn't get me sick, its in my head. Anyways, I took a Mathematics class last spring and did sort of well (3.8 gpa otherwise) had a 78, which was my lowest grade, but the teacher made us do an in campus test for the final and it counted for 20%. I didn't feel well, but what could I do? Went and ended up bombing it for leaving right after because I got sick and my overall grade dropped to 64 or so. I ended up having to take her again last fall for statistics and went back and forth with the disabilities department, but they didn't care about my documentation. I went to every chain of command and they dont want to help. I literally can't go. When I say I feel like I constantly have the stomach flu, that's dead serious. I even got the patronizing "just use the bathroom if you get sick" from the disabilities department, but you all know its not just diarrhea and its not just a "well I used the bathroom, I am back to normal". Any input? I can't make another D. I am supposed to graduate this spring and D's do not count...   


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The good news is that, you have been gluten-free for at least 6 months.  You should be much better.  And a few more months and you should be doing quite well.

cyclinglady Grand Master

Zach,

I am glad to hear threat you are improving!  I do not think you are going to win this battle.  Read this:

Open Original Shared Link

This is just my opinion as a Mom and someone who has celiac disease, but I think you just need to tough it out.  Take an incomplete or retake the class to off set your grade.  I once had a nutty professor who thought busy work was worth more than the tests.  I got a D in the class.  My first bad grade ever!  I took the class over the next semester with the Department head and got an A.  There was no way I was going to win against a tenured professor.  Complaining was not going help.  

If colleges require you to purchase a meal plan, then you can fight.  But being ill?  What do they do for those with cancer or have an accident?  Life is tough.  This will not be you last obstacle.  You got sick, you are getting better and you might have to do the five or six year plan for college.

I am sorry that your family and friends are not supportive.  That is awful.   celiac disease is not in your head!  Hold your ground.  Be safe and try to educate them.  

Hugs! 

Zachm Contributor
5 minutes ago, cyclinglady said:

Zach,

I am glad to hear threat you are improving!  I do not think you are going to win this battle.  Read this:

Open Original Shared Link

This is just my opinion as a Mom and someone who has celiac disease, but I think you just need to tough it out.  Take an incomplete or retake the class to off set your grade.  I once had a nutty professor who thought busy work was worth more than the tests.  I got a D in the class.  My first bad grade ever!  I took the class over the next semester with the Department head and got an A.  There was no way I was going to win against a tenured professor.  Complaining was not going help.  

If colleges require you to purchase a meal plan, then you can fight.  But being ill?  What do they do for those with cancer or have an accident?  Life is tough.  This will not be you last obstacle.  You got sick, you are getting better and you might have to do the five or six year plan for college.

I am sorry that your family and friends are not supportive.  That is awful.   celiac disease is not in your head!  Hold your ground.  Be safe and try to educate them.  

Hugs! 

Dont get me wrong, sometimes I wonder if I have crohn's instead because I even bleed quite often, but its just so stressful. On one hand, I am ready to get a degree asap and be able to get a job I can tolerate and move out of my parents house (I'm 21) and the math class I have about the same grade as I had in the other (which are both high C's before the final, but it just SUCKS to get past a class and understand the material, but because of my disease interfering I have to retake it and pay more money..

kareng Grand Master
19 minutes ago, Zachm said:

Dont get me wrong, sometimes I wonder if I have crohn's instead because I even bleed quite often, but its just so stressful. On one hand, I am ready to get a degree asap and be able to get a job I can tolerate and move out of my parents house (I'm 21) and the math class I have about the same grade as I had in the other (which are both high C's before the final, but it just SUCKS to get past a class and understand the material, but because of my disease interfering I have to retake it and pay more money..

You can't expect a school to accomadatte a disease you think you might have!  It does sound like you might have another problem, but if you don't treat it, it's not the schools fault.  

Zachm Contributor
1 hour ago, kareng said:

You can't expect a school to accomadatte a disease you think you might have!  It does sound like you might have another problem, but if you don't treat it, it's not the schools fault.  

No, I have proof I have celiac disease.

kareng Grand Master
1 hour ago, Zachm said:

No, I have proof I have celiac disease.

Sorry.  I wasn't clear & have some typing issues, apparently.  lol  

You said you were having issues and thought you might have Colitits.  If you have something else, along with the Celiac, you should take care of that, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Zachm Contributor
13 hours ago, kareng said:

Sorry.  I wasn't clear & have some typing issues, apparently.  lol  

You said you were having issues and thought you might have Colitits.  If you have something else, along with the Celiac, you should take care of that, too.

Haha it's fine buddy. I definitely need to.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,565
    • Most Online (within 30 mins)
      7,748

    StephanieNewcomb-A
    Newest Member
    StephanieNewcomb-A
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      They've not made that call at this point. They say it looks more like Celiac's than common variable immune deficiency.  They say to get a positive diagnosis another endoscopy is needed after I've been on gluten-free diet awhile.  So, waiting for more input from Docs'.
    • Tazzy11
      Hi All! I recieved some coeliac serology test results but I am yet to see my g.p can anyone please confirm what these numbers mean?? Tissue transglutaminase IgA - 3 units (<20) Deamidated Gliadin Peptide IgG - 26H units (<20)   My IgG is high, does this mean it is positive?   
    • cristiana
      Karen, welcome to the forum. Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve.  You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating. The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.   Cristiana
    • badastronaut
      Thanks very much for the in depth reply!!! I'll discuss it with my doctor next week!
    • knitty kitty
      Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin is quite high (2,5 and 0,6). My ALT is also slightly elevated. I have been doing a gluten free diet quite strict although I did eat some gluten in the previous weeks.  "Could my blood result be this way because of gluten sensitivity and me being not strict enough? My echo showed no problems with my liver or pancreas. My bile ducts were fine too (although I don't have a gallbladder anymore).  "What to do??? Could this be gluten related?"   Your bilirubin is high.  The liver breaks down bilirubin.  The liver needs Thiamine to break down bilirubin.  Without sufficient Thiamine, bilirubin is not broken down and escapes into the bloodstream. High levels of bilirubin suppress the immune system.  High levels of bilirubin suppress the production of white blood cells, including anti-gluten antibodies.  The suppression of your immune system by high bilirubin could be the explanation for false negative Celiac antibody testing.  Thiamine is needed for antibody production.  Thiamine deficiency can cause false negatives on Celiac antibody tests.  If you are not making a lot of antibodies, you won't have much damage to the small intestine.   Your ALT is high.  The liver produces ALT.  When the liver does not have sufficient Thiamine, the liver produces more ALT that escapes into the bloodstream.  Elevated ALT is seen in thiamine deficiency. Your Lipase is high.  Lipase is produced in the liver and pancreas.  More Lipase is released by both in thiamine deficiency. Your gallbladder has been removed.  Gallbladder dysfunction is common in thiamine deficiency. Your Zinc is low.  Zinc absorption is enhanced when Thiamine is present.  Zinc is not absorbed well in thiamine deficiency. Your Folate is low.  Celiac Disease causes malabsorption of all the essential nutrients we need for health, the eight B vitamins, including Thiamine, the four fat soluble vitamin, Vitamin C and minerals like Zinc and Magnesium.  Thiamine stores can be depleted in as little as three weeks or even as quickly as three days.  Thiamine deficiency symptoms can wax and wane depending on how much thiamine is consumed that day.   If a high carbohydrate is eaten regularly, additional Thiamine is needed (500 mg per 1000 calories). Anxiety and depression are symptoms of thiamine insufficiency.  The brain just thinking  uses as much thiamine as muscles do when running a marathon.   I have had thiamine deficiency symptoms like you are experiencing.  My doctors did not recognize the symptoms of thiamine deficiency.  They just prescribed pharmaceuticals to cover up the symptoms which only made things worse.  I had a lot of nutritional deficiencies.  I ended up getting a DNA test to check for known genes for Celiac.  I have two Celiac genes.   Have you had a DNA test for Celiac genes?   I took Benfotiamine, a form of thiamine that promotes intestinal healing, and a B Complex to correct my deficiencies.   High doses of thiamine need to be taken to correct deficiency.  Talk to your doctor about administering thiamine intravenously.  Thiamine is safe and nontoxic even in high doses.  Thiamine is easily excreted in urine if not needed.  Improvement of symptoms should be seen within a few hours to a few days.  No harm in trying.  Process of elimination, etc.   Talk to your doctor and nutritionist.  Testing for nutritional deficiencies should be done before taking vitamin supplements, otherwise the vitamin supplements already taken will be measured.   I hope this helps you on your journey. References: https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6662249/#:~:text=CONCLUSION%3A,in men than in women. https://pubmed.ncbi.nlm.nih.gov/24923275/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6040496/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3772304/#:~:text=Based on the patient's history,were also no longer present. https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].  
×
×
  • Create New...