Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Vs. Slower Reaction


CMCM

Recommended Posts

CMCM Rising Star

Does the speed of reaction indicate anything, i.e. reacting within an hour or two vs. reacting maybe as mucha s 6 or 7 hours later? Or even the next day?

For example, would a person with a lesser degree of celiac disease react more slowly perhaps? Just wondering...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, it seems everyone reacts differently, so I doubt there will be a general rule. However, I don't think it matters much since the intolerance means being gluten-free for life.

celiac disease (the actual damage) is the result of the intolerance, so it depends on how long the problem went unchecked. If the intolerance is discovered early in life, the damage would be that much less. The degree of damage also depends on how much gluten has been in the diet.

I don't care how I react now that I know I do. The solution is the same.

KaitiUSA Enthusiast

There are no "lesser" degrees of celiac. You have celiac or you don't. Everyone with celiac has to follow the gluten free diet 100%.

The only things that vary with celiac are symptoms and damage.

Some people even with really bad damage get no symptoms so you can't really tell from reactions.

The damage may vary depending how long it has gone undiagnosed.

But everyone gets damage from celiac just some people don't get reactions.

jenvan Collaborator

As Kaiti said...no real degrees to Celiac. However, based on how long someone has had the disease, their levels on intestinal damage can vary. People with celiac disease have a range of symptoms and noticeable "reaction times", so to speak. Some have quick, violent reactions. And others, such as myself, have slower, lingering reactions.

CMCM Rising Star

So you all feel that the degree of severity of the reaction doesn't necessarily have a correlation to the severity of the diease....and likewise, may not indicate how much damage is being done??? I guess I've been thinking about allergies, which I know are an entirely different animal, but with allergies one person can sneeze a bit, another might get a rash, and a third might have a more severe reaction. So I've been wondering if celiac could be similar.....some people get violently ill from just a smidgen of gluten somewhere, and others just get gas or some sort of mild abdominal discomfort. I guess the curious thing is why the reactions vary so much.

Rachel--24 Collaborator

The reactions really don't tell anything (except that you've been glutened). There are people with total destruction of their villi (seen in biopsy) and they have no symptoms whatsoever. There are others who have severe reactions and no damage seen in biopsy.

Lisa Mentor

I'm still trying to figure that out. Gluten free (as best I am able) since late August. I am still healing so it is hard to figure out the healing or glutened.

I also do not know now what my sensitivity is. Time will tell. I was glutened either yesterday or today and I can't figure the source. (As posted on today's post)

Time and patience and a food journal would work. I have not done that but it is wise to do.

Don't know whether I am much of a help but maybe for someone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

What confuses (and worries) me is those of us whose reactions last longer each time. When I first went gluten-free and got 'glutened' the first few times, I would have symtoms for 48 hours. I thought that sucked. Little did I know that the *next* time, it would be 3 days... Then 4 days, then 5. I seem skipped 6 and went straight to 7, and then this last time it was 8! Will it never end?! :(

traveljunkie Rookie

Hi, new to the forum. My 16 year old son and I are gluten sensitive. Haven't been diagnosed celiac, but have sent for Enterolab test. I usually have a burning feeling in my lower abdomen after I've accidentally ingested gluten. I will then have diarrhea for the day and have to take immodium to get back on track. My symptoms usually last a day but can be longer...depends on the amount ingested. My son on the other hand will have diarrhea with no pains and feel irritable. I'm so glad I have found this forum and have learned a lot on how to cope with this.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,506
    • Most Online (within 30 mins)
      7,748

    Tammie ball
    Newest Member
    Tammie ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Matt13
      Hi guys! Can we eat them an can they cause villious atrophy? I saw multiple articles about it an they have very different opinions… so what did your doctor told you? Thanks!
    • robingfellow
      I can't edit my posts, but I forgot to note as well: I also had low iron and vitamin d according to my blood tests, despite already taking supplements for each
    • Scott Adams
      Hi @Soleihey, it looks like you are making great progress.  This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study:    
    • robingfellow
      I've had symptoms of celiac disease since May 2022 (joint pain, severe migraines, digestive troubles, tachycardia, and hypothyroidism, fatigue) and couldn't figure out what was wrong, especially because I had no access to a doctor. In August of last year I tried a gluten free diet out of desperation and found all my symptoms clearing up! Especially the more of my diet I realized contained gluten and eliminated from my diet. I've even been able to maintain full-But just a couple weeks ago I had to have my gallbladder removed in am emergency surgery, and afterwards the surgeon suggested that a lot of my issues could have been caused by my gallbladder not working properly, but I haven't heard anything about that before. Any ideas? I don't want to try to reintroduce gluten without being certain it won't bring back my issues. It's already troubling enough to know I might have to reintroduce it to my diet just to be tested.
    • robingfellow
      I can also report from personally trying it that while not tasting quite as good as Spam, it is still very good especially compared to other Luncheon Loaf options that may not be gluten free 
×
×
  • Create New...