Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scoliosis


swittenauer

How many of you diagnosed with celiac also have scoliosis?  

31 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

swittenauer Enthusiast

My husband has scoliosis too we just found out & I was just curious if more people on here have it also. Some research shows there is a link so I'm wondering how common it really is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Judging from one thread that was going around earlier, it's pretty common among Celiacs.

Thanks for putting this on, it's going to be interesting.

skbird Contributor

I interpreted "having Celiac" as also including autoimmune gluten intolerance. I am non-Celiac gluten intolerant. But for this survey it seems that is close enough.

I just found out I have mild scoliosis earlier this year.

Stephanie

swittenauer Enthusiast

Well, it looks as though my theory could be wrong about the connection. It's hard to tell with such a small sample group. If anyone knows of a connection between the two I would be curious to access any such information.

Rachel--24 Collaborator

Pardon my ignorance but what is Scoliosis? :ph34r:

Is it another autoimmune disease or a skin condition? :unsure:

Guest Viola

It's a skelton issure, the spine is curved and in severe cases can cause damage to internal organs. That is fairly rare though, most of us have mild Scoliosis. In my case it just causes nagging back aches at times, and you want to make sure your physio Therapist or anyone that works on the spine knows about it. I had one try and put it back in place, which caused major hip problems until we got it back to where it was.

  • 3 years later...
BasqueMom Newbie

I am a 66 year old celiac and have scoliosis. I am seeing by the posts that others with celiac also have scoliosis. I have always believed that my scoliosis could be attributed to my celiac disease, and I must not be the only one who believes it. Interesting! No Dr. has ever confirmed the connection but I believe it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I have no idea if there is any connection. I am self-diagnosed gluten intolerant 16 mos ago, and at about the same time I discovered that late in life I have developed scoliosis. Interesting. Can't imagine the connection except perhaps for my low Vitamin D.

tarnalberry Community Regular

I don't have scoliosis, but see it a lot when I teach yoga. A good number of cases (I don't know the exact percentage) are functional - that is, they come from habitual posture. You can use PT/chiropractic/yoga therapy to help actually correct it.

Lexi Enthusiast

It was interesting to read this post. I have scoliosis, but never knew if it was related to my Celiac Disease. I have pain in my back everyday because of it. I did physical therapy for several months, and it helped a lot. I am supposed to keep up with it at home, but am not very good about it.

teemaree Apprentice

This is so strange that many have it....I have had it all my life...

I also have a thing called spina bifida oculta, where one of the bottom vertibra didn't form properly

it doesn't effect me in anyway...but it never ceases to amaze me how so many ailments celiacs share..

trents Grand Master

I have scoliosis and kyphosis. Kyphosis runs in my mother's family and I have an uncle on my father's side who was dx with celiac about two years ago.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,878
    • Most Online (within 30 mins)
      7,748

    DJWI
    Newest Member
    DJWI
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
×
×
  • Create New...