Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid lab result question

Stacy0w

By Stacy0w
in Related Issues & Disorders

Recommended Posts

Stacy0w Enthusiast
Stacy0w
Posted

My mom has hashimotos and my grandma had thyroid issues as did her mom. I have tons of symptoms so I asked to be tested. They just ran three tests. All were normal, but now I'm wondering what normal is.  As I said I have tons of issues.  Hbir loss mostly at temples, lack of umph, so tired, waking up middle of sleeping and can't go back to sleep, feeling cold, dry skin, don't want to do much of anything really. I'm wondering if I could still have thyroid problems but "normal" labs. TSH 2.06, free T3 2.6, free T4 1.6. Any thoughts?  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

What are the lab ranges?  But, honestly, your doctor would need to run a thyroid antibodies test to see if you have autoimmine Thyroiditis (Hashimoto's if hypo or Graves if hyper).   Are you sure gluten has not gotten into your diet?   Maybe ask for another celiac panel.  What about perimenopause?  Have those hormones been tested?  

Stacy0w Enthusiast
Stacy0w
Posted
  • Author

not sure about lab range only that all results fell in their normal range. Could I have hashimotos and have "normal" labs with the exception of the antibodies test they didn't run?  I haven't had my hormones checked. I'm fairly certain about gluten. I don't eat out and have a gluten free home including cleaners, lotions, etc. 

Irene Joanne Explorer
Irene Joanne
Posted
33 minutes ago, Stacy0w said:

not sure about lab range only that all results fell in their normal range. Could I have hashimotos and have "normal" labs with the exception of the antibodies test they didn't run?  I haven't had my hormones checked. I'm fairly certain about gluten. I don't eat out and have a gluten free home including cleaners, lotions, etc. 

I have within range thyroid blood work- yet my thyroid antibodies were really high.... And I definitely have lots of symptoms. I'm scheduled to see a thyroid specialist next week to talk about the high TPO levels. Exciting thing they're starting to go down since going gluten free. 

cyclinglady Grand Master
cyclinglady
Posted

Twenty years ago, my thyroid lab ranges were normal, but I had a slightly enlarged thyroid with nodules which caused my doctor to order an antibodies test (plus, my Mom had Graves).    My TPO antibodies were over 2,000 and anything over 35 was considered high!  My doctor put me on a tiny dose of Armour.   Over the years,  my dosage increased as my thyroid continued to fail.  Just before my celiac disease diagnosis, it was wildly swinging  (hyper to hypo).  Three years of being gluten free?  Thyroid stable (sadly, destroyed) but no enlargement or nodules left.   I have not asked for TPO testing in a long time.  

  • 2 weeks later...
Stacy0w Enthusiast
Stacy0w
Posted
  • Author

Thanks ladies for your input. Maybe I truly don't have a thyroid problem, but knowing what tests to ask for to make sure is important. I've learned through all this celiac stuff that I need to do my homework before I go to the dr. Since my mom has hashimotos and I've mentioned that you'd think a dr would double check that, but to this point that hasn't happened. Now I know what to ask for though!

 

 

Stacy0w Enthusiast
Stacy0w
Posted
  • Author
On February 28, 2016 at 8:03 PM, Irene Joanne said:

I have within range thyroid blood work- yet my thyroid antibodies were really high.... And I definitely have lots of symptoms. I'm scheduled to see a thyroid specialist next week to talk about the high TPO levels. Exciting thing they're starting to go down since going gluten free. 

How'd your appt go?  My moms hashis has gotten a lot better since going gluten free. She is taking a smaller dose than she has in the 30 yrs she's taken meds!

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Irene Joanne Explorer
Irene Joanne
Posted
1 hour ago, Stacy0w said:

How'd your appt go?  My moms hashis has gotten a lot better since going gluten free. She is taking a smaller dose than she has in the 30 yrs she's taken meds!

 

My appointment went okay. I guess I wanted answers because I've still been ill a lot- yet all he really said is get your thyroid levels checked every six months for now because I am at high risk of needing treatment at some point. My antibodies have gone down some in the last few months being gluten free- so hopefully that keeps getting better. I was on a low dose of thyroid meds since last summer, but two weeks after going gluten free I started having chest pains. After five weeks of the chest pains I finally figured out on my own that the thyroid meds were causing it. Chest pains stopped within a few days of not taking synthroid. I guess my stomach was finally absorbing the medication and it was more than I needed. Sucks that a doctor couldn't figure it out but I had to on my own. 

cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, Irene Joanne said:

My appointment went okay. I guess I wanted answers because I've still been ill a lot- yet all he really said is get your thyroid levels checked every six months for now because I am at high risk of needing treatment at some point. My antibodies have gone down some in the last few months being gluten free- so hopefully that keeps getting better. I was on a low dose of thyroid meds since last summer, but two weeks after going gluten free I started having chest pains. After five weeks of the chest pains I finally figured out on my own that the thyroid meds were causing it. Chest pains stopped within a few days of not taking synthroid. I guess my stomach was finally absorbing the medication and it was more than I needed. Sucks that a doctor couldn't figure it out but I had to on my own. 

Six months?  Usually, with a thyroid medication change or a change in lab results, your doctor should re-check in six weeks (google what endo association guidelines say).  I had thyroid testing (excluding TPO antibodies) done every six weeks when I was first diagnosed until everything stablized (the same applied after my celiac disease diagnosis).    If you are still having symptoms, you should go in sooner than six months!   Even if you are not supplementing with thyroid hormone replacement, you can swing hyper.   

Read this article about whether you should skip your thyroid meds in the morning in order to get an accurate lab result.  Mary Shomon is a trustworthy resource.

Open Original Shared Link

 

Irene Joanne Explorer
Irene Joanne
Posted
1 hour ago, cyclinglady said:

Six months?  Usually, with a thyroid medication change or a change in lab results, your doctor should re-check in six weeks (google what endo association guidelines say).  I had thyroid testing (excluding TPO antibodies) done every six weeks when I was first diagnosed until everything stablized (the same applied after my celiac disease diagnosis).    If you are still having symptoms, you should go in sooner than six months!   Even if you are not supplementing with thyroid hormone replacement, you can swing hyper.   

Read this article about whether you should skip your thyroid meds in the morning in order to get an accurate lab result.  Mary Shomon is a trustworthy resource.

Open Original Shared Link

 

I agree- but it's hard to find a thyroid doctor that agrees? The doctor doesn't believe I would swing from hypo to hyper because I had a hyperactive thyroid when 17 and the meds I took for that made me hypo active. Doctors theory is that there isn't enough thyroid left to become hyperactive. My symptoms disagree.... 

Thanks for the link- I have read stuff by her before. Doctor also wasn't worried about the TPO level because he claims lot of people have high TPO without any problems at all. Plus he said the TPO levels go up and down a lot- if I got tested twice in one day- my levels could be quite different. . 

  • 4 months later...
1desperateladysaved Proficient
1desperateladysaved
Posted

I have been reading books about thyroid and have discovered that many people have "normal" lab results that have thyroid trouble.  I highly recommend Suzy Cohen's  book Thyroid Healthy.     A full thyroid panel includes:  TSH, T3, T4, Reverse T3, Reverse T4.  The TPO antibody test, and one other antibody test that I don't know the name of.  I had slipped through the diagnosis cracks until I made a diet mistake.  I am glad they finally caught it.  Please read Suzy Cohen's book or look up her articles.  Suzy Cohen is a pharmacist who experienced thyroid battle herself.  She was told that she was depressed and prescribed anti-depressants.  She believed that her doctor was wrong and kept looking for someone that could help her.  Her before and after pictures were amazing with pictures taken 10 years apart, in which she looked older in the earliest taken picture.  Isabelle Wentz is another pharmacist who went through this and wrote a book. I don't remember the name of her book, but I enjoy her facebook posts.   One last book is called, Why Do I still Have Thyroid Symptoms?  When My Lab tests Are Normal?.  This book is by Datis Karrazian DHSc, DC, MS.  I found Suzy Cohen's book to be in my language, she seemed like my best friend.  She had been in a similar spot and got better!  I felt that Datis Karrazian  gave a more detailed account of the thyroid, problems and remedies.  Both were helpful and I am being treated with herbs as a first attempt to solve my thyroid issues.

  • 3 weeks later...
1desperateladysaved Proficient
1desperateladysaved
Posted
On 2/27/2016 at 4:33 PM, cyclinglady said:

What are the lab ranges?  But, honestly, your doctor would need to run a thyroid antibodies test to see if you have autoimmine Thyroiditis (Hashimoto's if hypo or Graves if hyper).   Are you sure gluten has not gotten into your diet?   Maybe ask for another celiac panel.  What about perimenopause?  Have those hormones been tested?  

Thanks we did run the antibody test.  Upon retesting the thyroid had made improvement it came out okay.  I did make a mistake and had soy, which evidently triggers my celiac.  I took it about 200 days!

cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, 1desperateladysaved said:

Thanks we did run the antibody test.  Upon retesting the thyroid had made improvement it came out okay.  I did make a mistake and had soy, which evidently triggers my celiac.  I took it about 200 days!

Are you saying that the soy you consumed was contaminated with gluten?  Or that you have developed a soy intolerance?  When was the last time you had a celiac antibodies panel?  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,831
    • Most Online (within 30 mins)
      7,748
    BIg Nodge
    Newest Member
    BIg Nodge
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Nandos improper preparion celiac childrens food

      By Scott Adams · Posted

      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      Mucus discharge

      By Scott Adams · Posted

      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Confused with test results

      By Scott Adams · Posted

      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      Confused with test results

      By Captain173 · Posted

      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...