Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

WORSE after going gluten free?


1398-Days

Recommended Posts

1398-Days Contributor

I have a gluten intolerance, and I went gluten free in September last year. At first everything was great, and then a month or two later I really started to realize how sensitive I was. Even the SMALLEST amount of gluten will make make me sick and it takes a week to fully bounce back. I live with my parents who both eat gluten so it's been very difficult to avoid getting sick, and also teaching them to be careful about cross contamination. By November I was getting sick like twice a month at least. The worst one yet (i think the first time i got sick from more than just cross contamination) was almost a month and a half ago and I'm still recovering. BUT, it's not the physical symptoms like feeling sick, etc., that has been bothering me the most for the past few months. It's anxiety. The funny thing is, my social anxiety has gotten a lot better since I stopped eating gluten but then I've developed this whole other anxiety. I'm just so scared that I'm going to get sick. I've been a LOT more careful with food and have only been eating what I make myself, and haven't gotten sick since last time. But the past month has been hell with my anxiety. I've been having panic attacks (which is a first for me) and am almost scared to go in public because I'm scared that I'll start to feel sick. I sometimes skip meals because I'm so worried.. even if it's just fruit or something! And I can't eat before I go in public.. I have to be hungry, otherwise I'll feel anxious. That last one has been going on for a few months, but only in the past month have I actually had a panic attack because of it. I went to the store just the other night, and ended up having a panic attack! I'm just SO frustrated and tired of this. How do I deal with this?! Part of me also wonders if it could be another food intolerance.. Since going gluten free I've discovered that red 40 makes me VERY anxious, and stevia makes me sick as well. Why not another thing, right? I guess I'm ranting a bit.. I've had a difficult few months.. especially the last month! I thought being gluten free would make me feel better, not make me scared to leave my house.. Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

You are a minor and I do not think you can do this alone.  You need to get your parent's involved.   If they are not willing to help you, you need to find a trusted adult (school counselor, clergyman,  doctor, social services -- someone who can get you medical help.

I think your parents probably do not believe that you have a celiac disease or a gluten sensitivity. You may have to consider a gluten challenge (maybe do it in the summer) and get a referral to a GI for celiac testing.  T

Please get some help.  We can offer sympathy and advice, but really you need more.

 

 

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JohannesW85 replied to JohannesW85's topic in Related Issues & Disorders
      4

      Do I have celiac/Gluten sensitivity?

    2. - captaincrab55 replied to Connie Smitj's topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    3. - trents replied to Connie Smitj's topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    4. - Connie Smitj posted a topic in Coping with Celiac Disease
      2

      Hunger, nervous stomach or Hpylori?

    5. - trents replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Help Understanding Test Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,369
    • Most Online (within 30 mins)
      7,748

    FionaM
    Newest Member
    FionaM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JohannesW85
      Did you take a look at my pics that I uploaded?    These rashes is not itchy, but I have seen that people have this too that have celiac and it’s not itchy for them either. I have also heard that sulfur burps are a common things with celiac too.  Yes it can be something else too but it’s to much symptoms that I have that match with either gluten sensitivity or celiac.   Hopefully it’s just gluten intolerance and not celiac.  As I said before I have the gen type for celiac and diabetes typ 1 and the those diseases going hand in hand.    Thanks again Trent for your time to reply, and I wonder if any body else have kind of the same symptoms that I have?   
    • captaincrab55
      Welcome Connie Smitj,  Did you have a follow up test to see if the treatment for H Pylori was successful?  It's possible to catch it again, especially from a partner.  When I contracted it a second time my wife was tested and was positive for two of the bacteria in H Pylori.  
    • trents
      Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
    • Connie Smitj
      I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I  had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?
    • trents
      Scott, am I missing something? For the TTG-IGA normal is anything 3 or less and his score less than 2. I think that one is in normal range. @Brown42186, if the GI doc is not interested in doing an endoscopy with biopsy of the small bowel lining based on the elevated TTG-IGG I would request a repeat on the bloodwork now that you have resumed gluten consumption again.
×
×
  • Create New...