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DH Reaction after Bobs Red Mill gluten-free Oats

Charli61

By Charli61
in Dermatitis Herpetiformis

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Charli61 Apprentice
Charli61
Posted

Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats?  I had only tried a little of the oats at Christmas time and thought I was okay with them.  So the other day I was craving cookies.  I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them!  So then I had a terrible night with DH type rash, mouth sores and generally feeling kinda lousy....  Finally took an antihistamine and drank a lot of water which helped greatly and the next day was better.  Today I am okay but curious, was it an isolated thing?  OR did I just think I was okay with gluten-free Oats, but in reality I am not.   Sheesh, I am so disappointed, I really wanted those darn cookies!

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SLLRunner Enthusiast
SLLRunner
Posted

Some people with celiac can't tolerate even gluten free oats. Is this the first time you've had such a reaction? 

What other ingredients were in the cookies? Could you have had an a reaction to something else in the cookies??

Is it possible there was an unintentional gluten cross-contamination?

susan french Rookie
susan french
Posted
16 hours ago, Charli61 said:

Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats?  I had only tried a little of the oats at Christmas time and thought I was okay with them.  So the other day I was craving cookies.  I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them!  So then I had a terrible night with DH type rash, mouth sores and generally feeling kinda lousy....  Finally took an antihistamine and drank a lot of water which helped greatly and the next day was better.  Today I am okay but curious, was it an isolated thing?  OR did I just think I was okay with gluten-free Oats, but in reality I am not.   Sheesh, I am so disappointed, I really wanted those darn cookies!

Many times a certain percentage of us celiacs with DH are also sensitive to oats.  Unfortnately, I am also sensitive to oats.  My DH also flares up when stressed.  I have avoided oats as well as wheat, barley and rye.  I can't even use Aveeno products.  I really miss oats.

squirmingitch Veteran
squirmingitch
Posted

Count another one with dh who can't do certified gluten-free oats. They got me big time. I had not had gluten-free oats since going gluten-free until Dec. of 2014 when I began making some bread that contained oat flour -- (BRM brand) but I don't blame BRM specifically - just gluten-free oats in general) & WHAM! I took a big hit. 

etbtbfs Rookie
etbtbfs
Posted

It is known that many people who are sensitive to the gliadin in gluten, are also sensitive to the avenins in oats.   There may be a test for avenin sensitivity, perhaps you should take that test to make sure.

  • 3 weeks later...
Sybyl Newbie
Sybyl
Posted
On March 30, 2016 at 11:08 PM, Charli61 said:

Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats?  I had only tried a little of the oats at Christmas time and thought I was okay with them.  So the other day I was craving cookies.  I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them!  So then I had a terrible night with DH type rash, mouth sores and generally feeling kinda lousy....  Finally took an antihistamine and drank a lot of water which helped greatly and the next day was better.  Today I am okay but curious, was it an isolated thing?  OR did I just think I was okay with gluten-free Oats, but in reality I am not.   Sheesh, I am so disappointed, I really wanted those darn cookies!

I do not tolerate oats of any kind. I was told via my gastro in Boston that there is a protein similar to the Celiac protein culprit which makes me sick.  No oats for me, gluten free or otherwise!

 

  • 4 weeks later...
Toritc Rookie
Toritc
Posted

I am glad to see this posted. I was eating the gluten-free oats at my mom's home while visiting her and I kept feeling odd. I got my thyroid retested and saw the numbers going up again.  I got a doc to give me Armor and  thought that would work- then I was itching  all over plus my heart started racing on a low level. Got off of that and just decided like many of you all - stay off the oats.  I have stayed off of corn too, as I have just about decided to give up all grains.  Been feeling much better.  

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Alys Rookie
Alys
Posted

Count me in as well.  I can't tolerate certified gluten free oats either.

  • 2 years later...
Summatimes Newbie
Summatimes
Posted

Same thing happened to me. I def have the symmetrical itchy rash on my arms, neck and legs. I asked my family doctor if it could be celiac or a gluten sensitivity and she was like no. But its recurring and I keep having these skin flare ups. How do I get this tested?

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