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DH Reaction after Bobs Red Mill gluten-free Oats

Charli61

By Charli61
in Dermatitis Herpetiformis

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Charli61 Apprentice
Charli61
Posted

Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats?  I had only tried a little of the oats at Christmas time and thought I was okay with them.  So the other day I was craving cookies.  I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them!  So then I had a terrible night with DH type rash, mouth sores and generally feeling kinda lousy....  Finally took an antihistamine and drank a lot of water which helped greatly and the next day was better.  Today I am okay but curious, was it an isolated thing?  OR did I just think I was okay with gluten-free Oats, but in reality I am not.   Sheesh, I am so disappointed, I really wanted those darn cookies!

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SLLRunner Enthusiast
SLLRunner
Posted

Some people with celiac can't tolerate even gluten free oats. Is this the first time you've had such a reaction? 

What other ingredients were in the cookies? Could you have had an a reaction to something else in the cookies??

Is it possible there was an unintentional gluten cross-contamination?

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susan french Rookie
susan french
Posted
16 hours ago, Charli61 said:

Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats?  I had only tried a little of the oats at Christmas time and thought I was okay with them.  So the other day I was craving cookies.  I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them!  So then I had a terrible night with DH type rash, mouth sores and generally feeling kinda lousy....  Finally took an antihistamine and drank a lot of water which helped greatly and the next day was better.  Today I am okay but curious, was it an isolated thing?  OR did I just think I was okay with gluten-free Oats, but in reality I am not.   Sheesh, I am so disappointed, I really wanted those darn cookies!

Many times a certain percentage of us celiacs with DH are also sensitive to oats.  Unfortnately, I am also sensitive to oats.  My DH also flares up when stressed.  I have avoided oats as well as wheat, barley and rye.  I can't even use Aveeno products.  I really miss oats.

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squirmingitch Veteran
squirmingitch
Posted

Count another one with dh who can't do certified gluten-free oats. They got me big time. I had not had gluten-free oats since going gluten-free until Dec. of 2014 when I began making some bread that contained oat flour -- (BRM brand) but I don't blame BRM specifically - just gluten-free oats in general) & WHAM! I took a big hit. 

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etbtbfs Rookie
etbtbfs
Posted

It is known that many people who are sensitive to the gliadin in gluten, are also sensitive to the avenins in oats.   There may be a test for avenin sensitivity, perhaps you should take that test to make sure.

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  • 3 weeks later...
Sybyl Newbie
Sybyl
Posted
On March 30, 2016 at 11:08 PM, Charli61 said:

Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats?  I had only tried a little of the oats at Christmas time and thought I was okay with them.  So the other day I was craving cookies.  I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them!  So then I had a terrible night with DH type rash, mouth sores and generally feeling kinda lousy....  Finally took an antihistamine and drank a lot of water which helped greatly and the next day was better.  Today I am okay but curious, was it an isolated thing?  OR did I just think I was okay with gluten-free Oats, but in reality I am not.   Sheesh, I am so disappointed, I really wanted those darn cookies!

I do not tolerate oats of any kind. I was told via my gastro in Boston that there is a protein similar to the Celiac protein culprit which makes me sick.  No oats for me, gluten free or otherwise!

 

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  • 4 weeks later...
Toritc Rookie
Toritc
Posted

I am glad to see this posted. I was eating the gluten-free oats at my mom's home while visiting her and I kept feeling odd. I got my thyroid retested and saw the numbers going up again.  I got a doc to give me Armor and  thought that would work- then I was itching  all over plus my heart started racing on a low level. Got off of that and just decided like many of you all - stay off the oats.  I have stayed off of corn too, as I have just about decided to give up all grains.  Been feeling much better.  

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Alys Rookie
Alys
Posted

Count me in as well.  I can't tolerate certified gluten free oats either.

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  • 2 years later...
Summatimes Newbie
Summatimes
Posted

Same thing happened to me. I def have the symmetrical itchy rash on my arms, neck and legs. I asked my family doctor if it could be celiac or a gluten sensitivity and she was like no. But its recurring and I keep having these skin flare ups. How do I get this tested?

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