Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair vitamins

Thesummer

Recommended Posts

Thesummer Newbie
Thesummer
Posted

Hello.. I am new to this forum so I am not quiet sure if I am doing it right. 

I've had Celiac since Summer 2012 I live in the middle east where people don't take what I have seriously. I've had an okay doctor until I realized that she did not tell me I have UC until I was told by another doctor anyways I never used to take medication because I didn't feel the need to recently I started taking Asacol a lower dose from what my doctor prescribed because I don't have a lot of hair and after taking Asacol it's making my hair fall much more than before my eyebrows are thinning and my eyelashes as well which is upsetting me so much I tried Pentasa same thing.

I know Biotin makes your hair grow and makes it thick BUT for some reason they don't sell it here anymore and I cannot order it online I don't know if its harmful or what is going on exactly. I used Hait Vit for sometime and it was great but now it's not working for me even though it says that it gluten free I'm guessing it's not. Priorin is also a good vitamin for the hair but it's not gluten free. I don't want to stop taking my medication because of my hair but I'm desperately looking for a solution I'm 24 years old and I barely blow-dry my hair I don't know if anyone tried PRP and if it's any good? and If there is another gluten free vitamin supplements that I take? hopefully that i can find here.

 

Thank you 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SLLRunner Enthusiast
SLLRunner
Posted

Hi Thesummer,

I don't have answers to your question, but I wanted to welcome you!  

Even here in America, celiac is difficult to diagnose and often not taken seriously. 

Is "UC" ulcerative colitis?  Have you spoken to your doctor about the medication making your hair fall out?

Thesummer Newbie
Thesummer
Posted
  • Author

Hello SLLRunner

Thank you that's very sweet I'm really thankful for this website.

Yes I did, I search about it and I found that Mesalazine can cause hair loss (Mayoclinic) and I told him but he doesn't think it's that of a big deal. I've seen a few dermatologists they gave me shampoos ,conditioners and hair serums but they make my hair feel terrible or suggested I try PRP which costs 530$ a session I need 4 to 6 thats if it actually works I read mixed reviews about it.. wouldn't want to spend money on nothing you know..

I also wanted to note that I've been checking all the hair products if they include any gluten ingredients and as far as I know they don't.

Yes, UC is Ulcerative Colitis and I have Celiac.

 

Thank you again 

tech-writer Newbie
tech-writer
Posted

I take Viviscal Proffessional, which was suggested by dermatologist here in the US. I buy it on Amazon. While it hasn't helped with the main hair loss, my eyebrows and eyelashes are growing back. Hopefully my hair will start growing back at some point as well.  Good luck with your search.  I understand how distressing this is. By the way, it is gluten free and one of the ingredients is Biotin.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,674
    • Most Online (within 30 mins)
      7,748
    Angela Chaisson
    Newest Member
    Angela Chaisson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      There are third party home test kits for celiac disease that do not involve needles. They use a cheek swab I believe. The cost is a little over $100 USD I believe for most of them.  A 7 week "gluten challenge" should be more than enough. The absolute minimum according to guidelines is 2 weeks but I would not cut it that close. I usually recommend four weeks but the more the better in so far as ensuring valid testing. "My daughter was told by her doctor to eliminate american grains due to the fortifying process." What's this about? Are you referring to the vitamins and minerals added to processed cereal grain products in the USA? Is this supposed to be harmful according to this doctor? What kind of doctor is this? MD? Naturopath? What is interesting is that when people go gluten free they often need to supplement with vitamins and minerals to compensate for the loss of vitamins and minerals they were getting in wheat products. Most gluten free facsimile flours are nutritionally bankrupt.  Yes, there is a significant statistical correlation between Hashimotos and celiac disease. Autoimmune disorders tend to cluster. Omeprazole and other PPI meds are concerning when used long term in that they raise gut PH (lower acidity) and inhibit the digestion and assimilation of nutrients. They are some of the most over prescribed and under monitored meds in all of pharmacology. I was on Omeprazole for years and weaned myself off it. It was a real fight because of rebound. I bridged with TUMS which is much better option when used for spot coverage. The interesting thing is, a lot of GERD is actually caused by hypoacidity rather than hyperacidity. If you have a lot of GERD you might want to look into MCAS (Mast Cell Activation Syndrome)/histamine intolerance which is another medical problem very common in the celiac community.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Thank you, Trents.  This is exactly why I ask questions.  The reference range was anything over 15 was out of range for all 3 antibody tests where I was out of range, Tissue Transglutaminase (IgG)<1.0 was the top of the normal range and 47-310 is the range for the IgA.   I started limiting my gluten (American Grains) exposure in 2020 when my daughter tested homozygous for the MTHFR gene so the numbers in 2024 are definitely reduced from what they probably were in 2020.  My daughter was told by her doctor to eliminate american grains due to the fortifying process.     I have been changing up my diet since 2018 when I could not stay out of the bathroom.  I attributed my stomach issues a generic medication that I had been taking for my lymphedema since they started at the same time. I had gone from being unable to use the bathroom to being unable to leave the house with spare clothes.  I mostly stick to a protein and a vegetable for my meals now-a-days.  Gluten exposure is usually through family events.  I just added pre and probiotics into my diet in 2024 because of gerd like issues that I was told was related to another gene issue.  I am trying to stop eating tums and Omeprazole like they are candy.  I have Hashimoto’s so I always thought my ANA Pattern/Titer scores were just pointing to the thyroid issues not any other conditions.     I will make sure that I restart/guarantee my gluten intake at the end of April before my June appointment.  7 weeks should be enough? Though 6 pieces of bread a day is a lot higher than I have ever consumed.    I will prompt the kids to start their journeys.  They all have stomach issues, but their doctors were attributing them to various other reasons since no one in our family has ever been diagnosed with celiac.   Anxiety was always what the doctors said their stomachs hurt so they eat tums alot too.   Thank you again for your anatomy help. The people who I have personally known that had a celiac diagnosis got so sick when they accidentally consumed gluten that I never considered that I might have it myself.  I would not have done the test myself if my daughter wasn’t so anxious about needles.  
    • Scott Adams
      Did I outgrow celiac

      By Scott Adams · Posted

      Celiac disease is a lifelong autoimmune condition. Unlike some food allergies, which children may outgrow, celiac disease does not go away. Even if you don’t experience immediate symptoms after consuming gluten, it doesn’t mean the disease is gone. The absence of symptoms does not equal safety. Gluten can still be causing damage to your small intestine, even if you don’t feel it right away. As @trents mentioned, this is called "silent celiac disease," where there is internal damage without obvious symptoms. The fact that you didn’t react to the wheat-containing cookie or the donut doesn’t mean you’ve outgrown celiac disease. It’s possible that your body didn’t react strongly at that moment, but repeated exposure to gluten could lead to long-term complications, such as nutrient deficiencies, osteoporosis, or other autoimmune conditions. The damage caused by gluten can be cumulative, even if symptoms aren’t immediate. Your doctor’s suggestion to “experiment” is concerning. Celiac disease should never be tested by intentionally consuming gluten unless it’s under strict medical supervision for diagnostic purposes (like a gluten challenge before testing). Even then, it’s risky and can cause significant harm. If you’re curious about whether your celiac disease is still active, the best course of action is to consult a gastroenterologist and undergo proper testing, such as blood tests (tTG-IgA) or an endoscopy with biopsy, rather than self-experimentation. Your mom’s skepticism is understandable and warranted. Celiac disease requires strict, lifelong adherence to a gluten-free diet, even if you feel fine after eating gluten. It’s not worth risking your long-term health for a donut or cookie, no matter how delicious they may be. I strongly encourage you to avoid gluten entirely and continue following a strict gluten-free diet. If you have further questions or concerns, please discuss them with a healthcare professional who specializes in celiac disease. 
    • Scott Adams
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By Scott Adams · Posted

      Oats can be problematic for some people with celiac disease due to cross-contamination or sensitivity to avenin. Corn and rice are typically safe but should be checked for cross-contamination if processed in facilities that also handle gluten-containing grains.
×
×
  • Create New...