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Recovery diet, nutrition, leaky gut?


KatieKing

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KatieKing Newbie

I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again.

What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links

Or would the autoimmune diet be better? Are they one in the same?

I know I am also reacting to casein and possibly potatoes. 

  • 1 month later...

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GFinDC Veteran

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy if it causes symptoms.
Avoid sugars and starchy foods. They can cause bloating.
Avoid alcohol.
Watch out for cross contamination.

Kyz1981 Newbie

I am in a similar position, I went Gliten free straight after my endoscopy as my bloods were so high, but ate dairy and things, once the biopsy results showed celiac along with pretty much no villi left I went on the auto immune diet. I am still on the first stage but feeling much better than being gluten free alone. The hard thing for me is trying to work out what causes symptoms as my insides are pretty damaged so cut everything out according to the diet to allow some time to heal before reintroducing foods.  I will start to reintroduce stuff in 4 weeks and only one food a week.

i had a scan for my gallbladder today as I've been getting upper abdo pain but it was clear of stones but inflamed so it may be worth checking out that too. I think the autoimmune diet and the leaky gut one are very similar so I would choose either, I found the autoimmune one uses a lot of coconut so if you like that then it's for you. 

 

Good luck

Livingnaturally Newbie

Eating a diet in whole foods instead of processed gluten free foods it a good start. Removing any foods that cause irritation to the gut can help. The most important thing is removing any sources of gluten from your diet. An autoimmune diet can be really helpful first:

remove foods bad for gut health/ potential allergens : (beyond gluten which obviously you will have to avoid forever)

grains, dairy, beans, soy, corn, eggs

Eat:

vegetables (cooked and blended if you are having trouble digesting them) also eat veggies with lots of soluble fiber as they are easier to digest (list below)

  • Carrots
  • Winter squash
  • Summer squash (especially peeled)
  • Starchy tubers (yams, sweet potatoes, potatoes)
  • Turnips
  • Rutabagas
  • Parsnips
  • Beets
  • Plantains
  • Taro
  • Yuca

organic pasture raised meats (I know it's expensive but if you buy it in bulk and freeze and just eat small amounts it lasts a long time!) It's important to avoid hormones and antibiotics for gut health. 

Eat salmon at least once a week, it gives your body anti inflammatory fats and protein. Both great for your immune system!

Eat fruits and sprouted seeds and nuts.

After at least 30 days (or when you feel better) you can try and add in some of list to avoid above and see if they give you any symptoms. Add the food in a little bit one day and only one at a time (give it at least a few days between added the foods back in).

Drink bone broth and take an l glutamine supplement (if it's ok with your doctor) for gut health. Remember though that all of this will be useless if you aren't avoided gluten as best you can.

Hope this helps! Let me know if you have any questions :)

Elizabeth

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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