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Recovery diet, nutrition, leaky gut?


KatieKing

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KatieKing Newbie

I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again.

What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links

Or would the autoimmune diet be better? Are they one in the same?

I know I am also reacting to casein and possibly potatoes. 

  • 1 month later...

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GFinDC Veteran

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy if it causes symptoms.
Avoid sugars and starchy foods. They can cause bloating.
Avoid alcohol.
Watch out for cross contamination.

Kyz1981 Newbie

I am in a similar position, I went Gliten free straight after my endoscopy as my bloods were so high, but ate dairy and things, once the biopsy results showed celiac along with pretty much no villi left I went on the auto immune diet. I am still on the first stage but feeling much better than being gluten free alone. The hard thing for me is trying to work out what causes symptoms as my insides are pretty damaged so cut everything out according to the diet to allow some time to heal before reintroducing foods.  I will start to reintroduce stuff in 4 weeks and only one food a week.

i had a scan for my gallbladder today as I've been getting upper abdo pain but it was clear of stones but inflamed so it may be worth checking out that too. I think the autoimmune diet and the leaky gut one are very similar so I would choose either, I found the autoimmune one uses a lot of coconut so if you like that then it's for you. 

 

Good luck

Livingnaturally Newbie

Eating a diet in whole foods instead of processed gluten free foods it a good start. Removing any foods that cause irritation to the gut can help. The most important thing is removing any sources of gluten from your diet. An autoimmune diet can be really helpful first:

remove foods bad for gut health/ potential allergens : (beyond gluten which obviously you will have to avoid forever)

grains, dairy, beans, soy, corn, eggs

Eat:

vegetables (cooked and blended if you are having trouble digesting them) also eat veggies with lots of soluble fiber as they are easier to digest (list below)

  • Carrots
  • Winter squash
  • Summer squash (especially peeled)
  • Starchy tubers (yams, sweet potatoes, potatoes)
  • Turnips
  • Rutabagas
  • Parsnips
  • Beets
  • Plantains
  • Taro
  • Yuca

organic pasture raised meats (I know it's expensive but if you buy it in bulk and freeze and just eat small amounts it lasts a long time!) It's important to avoid hormones and antibiotics for gut health. 

Eat salmon at least once a week, it gives your body anti inflammatory fats and protein. Both great for your immune system!

Eat fruits and sprouted seeds and nuts.

After at least 30 days (or when you feel better) you can try and add in some of list to avoid above and see if they give you any symptoms. Add the food in a little bit one day and only one at a time (give it at least a few days between added the foods back in).

Drink bone broth and take an l glutamine supplement (if it's ok with your doctor) for gut health. Remember though that all of this will be useless if you aren't avoided gluten as best you can.

Hope this helps! Let me know if you have any questions :)

Elizabeth

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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