Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick on vacation...so frustrated!

icelandgirl

Recommended Posts

icelandgirl Proficient
icelandgirl
Posted

Yes, this will be a complaining thread.  I apologize in advance.

I'm on vacation and I've been glutened.  I have no idea by what, but I'm so frustrated that I just want to cry.  My husband works super hard for us.  I'm a stay at home mom of 3.  Every paycheck for the past year we've been putting some money aside to take everyone to the beach.  Starting on day 3 I have felt bad.  I've had the massive D, body aches, headache and utter exhaustion.  I've laid on my bed in tears over the cramping in my gut.  Today we had arranged to take a boat out and we couldn't cancel so my husband took the boys.  I had to stay right by the bathroom.

Ugh!!  Thanks for listening.  The rest of the trip I'm eating bananas, blueberries, chicken, potatoes and well cooked veggies.  Nothing else. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I'm so sorry! Great big huge hugs! {{{{{{{{{{{{{{{{{{{{{{ Icelandgirl }}}}}}}}}}}}}}}}}}}}}}}}}}

manasota Explorer
manasota
Posted

Jeez, i am sooooooooo sorry!  That really stinks!  So very disappointing!  You have every right to complain, cry, stomp your feet--whatever helps you to vent.   Great big hugs to you, Icelandgirl!!  Lots of hugs.

cyclinglady Grand Master
cyclinglady
Posted

Oh no!  I am so sorry that you are sick!  My last glutening was in  July.  A whole year has gone by and I confess, I have NEVER eaten out again!  I just order coffee.  The benefits of eating out (convenience) just don't outweigh the risks (being sick) for me. 

I hope you feel better soon!  

Hugs!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thank you all so much!  I don't eat out ever because I got sick last summer.  I do the same as you, cyclinglady, I order coffee.  I ate out once, at a gluten free bakery...but I was starting to have issues already...so something from the day before.  I've cooked everything myself...now I'm thinking I've gotten cc'd somehow in the kitchen of this condo.  My husband wants us to get an RV and do all traveling that way to keep me safe.  Sigh...one good thing...this glutening has shown me just how far I've come.  I used to feel like this every day...

cyclinglady Grand Master
cyclinglady
Posted

Well, I confess we do have an RV.  I grew up with one, but my hubby did not.  He never even camped.  

It is gluten free.  It allows us to travel and sight see without worry.  If we can find a safe restaurant, then we'll go for it.  If not, we'll skip it and I'll prepare a meal.  

We just spent the last three nights camped in our RV in the driveway while we got new sewage and fresh water lines.  We wanted to avoid all the dust when they were breaking walls and then when patching.  No glutening for us!  We did lots of prep work to keep the dust at bay.  It makes for a great guest room too.  

We are heading out of the country again this year.  Am worried about staying safe.  But we have done it in the past.  We just have to eat from a grocery store if we can't find a suitable restaurant.  So, often, it's just a cold meal.   My glutening last year occurred days before I left to visit my parents.  I suspect two products but I'll never know for sure.   Am packing a lot of Lara Bars this time for sure!  

We camp at the beach and love it.  We bring bikes, surf, and meet up with other families.  We travel and explore our state and we've gone across country a few times.  We have plans to travel more when our daughter is in college.  

Maybe, it is not a glutening.  Maybe it's a bug.  That's what I thought last summer, as I had lots of intestinal issues, abdominal pain, vomiting, etc.  I just had anemia when I was diagnosed, so I thought that I was mistaken.  Got home and tested a month after I became ill and my antibodies were sky high.  Yep, it was a glutening.  

The good news is that I have been well now for a year.  So, you'll feel better soon!  And no, it did not take a year to get well!  

icelandgirl Proficient
icelandgirl
Posted
  • Author

Thanks cyclinglady...the RV sounds great and safe!  I'm fairly sure that this is gluten...but I'm just hoping that it isn't weeks to get better like last time.  I'm eating super simple...baked a piece of chicken and roasted potato and zucchini for dinner.  I'll keep doing that and drinking water.  It's the worst being on vacation and wishing you could go home!

Good luck on your international trip...so cool that you don't let this stuff stop you from traveling!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,206
    • Most Online (within 30 mins)
      7,748
    DreDre
    Newest Member
    DreDre
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
    • trents
      Celiac Maybe a Possibility?

      By trents · Posted

      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
×
×
  • Create New...