Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son gluten by "friends"


Midwitch

Recommended Posts

Midwitch Newbie

And believe me, I could just about murder the little devils. I know 12 year old boys can be dumb, but this really takes the cake (gluten free of course). They have been teasing him and calling him a "freak" for his change in diet, but he felt it was just light hearted banter and he could cope with it. Then he became very sick very quickly and is still recovering. He was obviously glutened so I went through everything. I am meticulously careful - with 3 coeliac kids our house is now 100% gluten-free and the non coeliac child ONLY eats gluten outside of the home, i.e. at school where he cannot contaminate the others. 

 

So after searching my kitchen, I turned to the school. Apparently the little sh*ts rubbed a sandwich over his sushi when he wasnt looking because they believed he was being over the top. 

 

These kids are not particularly nice and I doubt they will "get" it or care.  Its all about image and fitting in, so someone being different will be a victim.  While they expressed remorse, I simply don't believe they won't do it again. My son is terrified they will. He opts not to eat or bring food, but that is not sustainable. I want him to hand his lunchbox to the teacher on arrival and have the teacher keep it safe, but he is absolutely mortified at this proposition. I offered to come each day and bring his food at lunchtime. He was horrified. And then he had a huge meltdown - raging that its not fair, he refuses to have coeliacs and he would rather die. 

 

If you hear of a mother arrested for threatening school kids, its probably me. I hold those little sh%ts responsible. 

 

Sorry, rant over. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor
1 hour ago, Midwitch said:

So after searching my kitchen, I turned to the school. Apparently the little sh*ts rubbed a sandwich over his sushi when he wasnt looking because they believed he was being over the top. 

 

These kids are not particularly nice and I doubt they will "get" it or care.  Its all about image and fitting in, so someone being different will be a victim.  While they expressed remorse, I simply don't believe they won't do it again. 

That's a difficult one. :( I know the 12 yr old me would've also cringed at the thought of mum showing up with lunch.  As you say, at that age you don't want to stand out and you personally run the risk if you make too big a fuss that it becomes a bigger issue. 

I don't know if this of help but, having been one, I'd suggest the average group of 12 year old boys aren't particularly nice, but that's not to say they're particularly bad either. They can be both, often at the same time.  

I think you need to work with your son, help him to find a solution he's comfortable with. Not to say you can't steer him in the right direction. For instance. are there really no halfway decent kids amongst them? With bullying etc it's often a case of splitting the group, from the utter b*stards to the fundamentally ok but easily led.

There may be some kids that your son can persuade of the seriousness, even if it's just them telling him the next time someone has done this - because better that the sushi gets thrown away and your son makes do with an emergency snack bar (which you could leave with the teacher?). If they see that your son would rather bin his lunch than eat it after that the more fair minded amongst them may get a twinge of conscience. 

Could you invite say one or 2 of them along with you on an excursion or sleepover, so they understand by observation that this isn't just a fad. You can work some amateur psychology on them, telling them that  you know they would never do that and how much you appreciate their understanding or maturity. 

You could write a letter to their parents and ask the school to send it? Parents may have more empathy and if they understand that it's not a fad but a medical requirement (mention lymphoma risk) they may get through to their sons in a way the school cannot. 

No easy answers but hope at least one of those is of help. I wish you both the best of luck :)

 

ravenwoodglass Mentor

So sorry this happened to your son.  Kids at that age can be cruel and it is hard to be different. While not ideal you could try sending him in with prepackaged food that can be held in his hand as he eats.  A granola bar, string cheese, fruit cups, chips, drink boxes etc that sort of thing. If all items are packaged then he would know if the item had been tampered with and he might feel more safe.  

 

celiac sharon Apprentice

The prepackaged idea made me think of one other thing. I have one of those foodsaver seal a meal machines. If that's an option for you, you could even seal homemade lunches and keep his food safe without making him feel too different

 

GiGi29 Newbie

I wonder if there is a small box with a combination lock on it that you could use as a lunch box?  Or find a non-zipping lunch box that you could put your own combination lock on the handles.

It's terrible that your son has to be bullied like this.  Absolutely disgusting of those kids to do that.  What if you talked with their parents (with or without your son's knowledge - depends on how he would feel about it) about what Celiac Disease is and what it does to your son if he eats gluten?  Then, the parents could talk with their kids about it to make sure they understand what it is and that it is a real thing that can hurt your son.  I bet they'd be much more willing to hear it from their own parents than your son or you (it's how kids are, no?).

I hope your son recovers quickly from the gluten and that he still feels comfortable eating at school.  Your right - he's a growing boy who needs a decent lunch at school, and it's terrible that those nasty bullies made him feel the he feels.  On another note, does he have other friends that are more understanding?  Maybe he just needs to drop those "friends" and stick with the ones that actually care about him.

frieze Community Regular

has it been made clear to these little reprobates how serious what they did was?  do they understand that, very much older and they could be arrested?  even, perhaps at their present age?  assault is not something to be brushed off.

  • 2 weeks later...
Midwitch Newbie

Well the update is that I spoke to the school principal who spoke to the entire school.  Son's teacher was made aware and is very supportive. Each morning he takes his lunch without fuss to the teacher who keeps it safely locked in his desk.  But my son tells me the kids have been much better since the lecture by the principal who made it quite clear that it would not be tolerated, would be punished severely and treated like a deliberate poisoning of another child, and discussed the serious consequences to his health.  

So all is well for now. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Very good. I am so happy to hear this and that it was not tolerated by the school. I'm glad the principal put it the way he did saying it would be treated like a deliberate poisoning because that is what it was. 

Thank you for the update.

frieze Community Regular

good!  i am sick and tired of the old canard, "boys will be boys", which I was afraid we were going to hear in this case.

   We are raising adults, not children.

  • 3 weeks later...
Cara in Boston Enthusiast

Things like this happen more often than you would think.  I have this included in my son's 504 plan at school:

"Staff will be aware of food “bullying” and notify administration and parents if it occurs or is reported.  Reported incidents will be handled in accordance with the BPS Anti-bullying policies."

I would have zero patience for any kind of intentional action that would make my child sick.  He would miss school, baseball, etc. for at least a week or so.  Do not tolerate it.  Just because there isn't an immediate response, it is no less serious.  Imagine if those jerks did something like that to a kid who had an anaphylactic reaction to an allergen?   

Gemini Experienced

I have always said that one of the worst things society has done is outlaw spankings and those trips to the woodshed. Bullying was never as much of a problem when I was a kid because you were allowed to take care of the problem yourself, or with the help of friends....which we did. Funny thing about bullies....they are chicken when you get them alone. They tend to travel in packs and do their ugly deeds with others.  Then you have those problem parents who think their kids never do anything wrong so its a further breakdown of the whole system.

I am glad there was a resolution that worked but you see, it involved threats by the principal which was appropriate in this instance.  Those kids need to know what they did was very wrong. They could have killed a kid with anaphylaxis......

Midwitch Newbie

I like your plan Cara, I may have to include it in my sons. 

 

Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,565
    • Most Online (within 30 mins)
      7,748

    StephanieNewcomb-A
    Newest Member
    StephanieNewcomb-A
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      They've not made that call at this point. They say it looks more like Celiac's than common variable immune deficiency.  They say to get a positive diagnosis another endoscopy is needed after I've been on gluten-free diet awhile.  So, waiting for more input from Docs'.
    • Tazzy11
      Hi All! I recieved some coeliac serology test results but I am yet to see my g.p can anyone please confirm what these numbers mean?? Tissue transglutaminase IgA - 3 units (<20) Deamidated Gliadin Peptide IgG - 26H units (<20)   My IgG is high, does this mean it is positive?   
    • cristiana
      Karen, welcome to the forum. Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve.  You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating. The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.   Cristiana
    • badastronaut
      Thanks very much for the in depth reply!!! I'll discuss it with my doctor next week!
    • knitty kitty
      Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin is quite high (2,5 and 0,6). My ALT is also slightly elevated. I have been doing a gluten free diet quite strict although I did eat some gluten in the previous weeks.  "Could my blood result be this way because of gluten sensitivity and me being not strict enough? My echo showed no problems with my liver or pancreas. My bile ducts were fine too (although I don't have a gallbladder anymore).  "What to do??? Could this be gluten related?"   Your bilirubin is high.  The liver breaks down bilirubin.  The liver needs Thiamine to break down bilirubin.  Without sufficient Thiamine, bilirubin is not broken down and escapes into the bloodstream. High levels of bilirubin suppress the immune system.  High levels of bilirubin suppress the production of white blood cells, including anti-gluten antibodies.  The suppression of your immune system by high bilirubin could be the explanation for false negative Celiac antibody testing.  Thiamine is needed for antibody production.  Thiamine deficiency can cause false negatives on Celiac antibody tests.  If you are not making a lot of antibodies, you won't have much damage to the small intestine.   Your ALT is high.  The liver produces ALT.  When the liver does not have sufficient Thiamine, the liver produces more ALT that escapes into the bloodstream.  Elevated ALT is seen in thiamine deficiency. Your Lipase is high.  Lipase is produced in the liver and pancreas.  More Lipase is released by both in thiamine deficiency. Your gallbladder has been removed.  Gallbladder dysfunction is common in thiamine deficiency. Your Zinc is low.  Zinc absorption is enhanced when Thiamine is present.  Zinc is not absorbed well in thiamine deficiency. Your Folate is low.  Celiac Disease causes malabsorption of all the essential nutrients we need for health, the eight B vitamins, including Thiamine, the four fat soluble vitamin, Vitamin C and minerals like Zinc and Magnesium.  Thiamine stores can be depleted in as little as three weeks or even as quickly as three days.  Thiamine deficiency symptoms can wax and wane depending on how much thiamine is consumed that day.   If a high carbohydrate is eaten regularly, additional Thiamine is needed (500 mg per 1000 calories). Anxiety and depression are symptoms of thiamine insufficiency.  The brain just thinking  uses as much thiamine as muscles do when running a marathon.   I have had thiamine deficiency symptoms like you are experiencing.  My doctors did not recognize the symptoms of thiamine deficiency.  They just prescribed pharmaceuticals to cover up the symptoms which only made things worse.  I had a lot of nutritional deficiencies.  I ended up getting a DNA test to check for known genes for Celiac.  I have two Celiac genes.   Have you had a DNA test for Celiac genes?   I took Benfotiamine, a form of thiamine that promotes intestinal healing, and a B Complex to correct my deficiencies.   High doses of thiamine need to be taken to correct deficiency.  Talk to your doctor about administering thiamine intravenously.  Thiamine is safe and nontoxic even in high doses.  Thiamine is easily excreted in urine if not needed.  Improvement of symptoms should be seen within a few hours to a few days.  No harm in trying.  Process of elimination, etc.   Talk to your doctor and nutritionist.  Testing for nutritional deficiencies should be done before taking vitamin supplements, otherwise the vitamin supplements already taken will be measured.   I hope this helps you on your journey. References: https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6662249/#:~:text=CONCLUSION%3A,in men than in women. https://pubmed.ncbi.nlm.nih.gov/24923275/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6040496/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3772304/#:~:text=Based on the patient's history,were also no longer present. https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].  
×
×
  • Create New...