Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Siblings With Cd


lonewolf

Recommended Posts

lonewolf Collaborator

Hello,

I just discovered this website a couple of weeks ago and am constantly amazed at what I have learned here. I found out that I am "allergic" to wheat/gluten (as well as eggs, dairy and soy) almost 10 years ago. I never gave a thought to the possibility that I had celiac disease, until now. I can't believe that so many other people have multiple food sensitivities, thyroid issues, weight problems, dental enamel issues as children, skin problems, etc. Wow! (And interesting to find out that being Irish could be a contributing factor - I'm Irish, Scottish and English).

I have 4 older siblings, all of whom have various degrees of health problems - most have "stomach troubles" of some sort or the other. I'm thinking that they probably all have either celiac disease or gluten sensitivity too. Would it be possible for 5 siblings to all have it? Do any of you have siblings with celiac disease? My brothers and sisters are all in their 40's and early 50's (MUCH older than I am!) and already think I'm half crazy for being on my strict diet, but I feel like I have to at least mention to them that they could have this too. Does anyone know of a good article I could print out that discusses how common it is among siblings?

Thanks,

Liz


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

I do not know any articles but this disease is genetic. My brother and I both have Celiac Disease and I have met many families where all or most of their children have it, too.

darlindeb25 Collaborator

I am 50 and my sister is 47--we both have celiacs disease and have been gluten free now for over 4 yrs. Our father has been gluten free now for just over a year and he is 71. My daughter is coming to visit with me in a few weeks, she is 23 and says she is going to eat gluten free with me to see if it helps her at all. My dad has had stomach trouble for as long as I can remember. My sister was diagnosed with vitamin deficienciesas a young child, but celiacs or gluten sensitivities were not known about then. I have had stomach probs for years too. I suffered severe stomach probs for the last 30 years anyways. I was told all those same answers as others, IBS, irratable colin, soastic colin, nervous stomach, and too much stress. I developed panic attacks, agoraphobia, anticipatory anxiety--I was first put on xanax and then later paxil at 5 mg which grew into 40mg and i still couldnt cope. When I went gluten free, I weaned myself off of paxil and the panic is nearly gone now. Its very rare for me to panic anymore. I now have Raynauds Syndrome and Neuropathy because of the years of not knowing. I take 5 different vitamins daily now, including 1000mcg of B12 which may turn into shots soon.

Do your best to get other family members to ber tested or at least go gluten free. Celaics will shorten their lives especially if they allow it to invite other diseases into their bodies. It's a disease you can live with, it's not fatal if you stick with the lifestyle. Good luck! Deb

Guest CD_Surviver

My mom , my brother and i have but i think others have it in the family like my cousin. they may not of had since birthn something traumatic can cause it to flare up but it also very likely my other brother who has no signs of celiac disease as of right now could have signs later in life but he is only 26.

skoki-mom Explorer

First degree siblings are the most likely of your relatives to be affected. I think the odds are somthing like 13% your siblings will have it. I was Dx in routine family screening since my sister has it. I have no symptoms, so I was quite surprised to find out I am also affected. Sounds like your family should look into screening, but from what I have heard here, a lot of family members would rather live in denial than get tested. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Sicilygirl replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      Enegy level extremely low

    2. - trents replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    3. - SamClaire replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    4. - trents replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    5. - SamClaire posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,521
    • Most Online (within 30 mins)
      7,748

    Polycarp
    Newest Member
    Polycarp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sicilygirl
      Hello Scott, I did lose weight at the beginning of diagnosis and I know that it will take time to put on the weight I did lose. I think I have no appetite because this has been a roller coaster of emotions and a Big change on my body and its out of whack mentally and pysically. I think I am just depressed to be honest.  
    • trents
      It's easy to forget that it's not only the concentration of gluten in a given food item that's significant but also the total amount of gluten we consume over a period of time. This thing and that thing may meet the gluten-free requirement of not exceeding 20 ppm but if we eat enough of those things in a reasonably short amount of time it can have a cumulative effect because our bodies aren't given enough time to clear the gluten we have already consumed. Just curious. Did you know the fries were wheat breaded when you ate them?
    • SamClaire
      Hi! I try to steer clear of dairy and I cut out oats at the same time I did gluten products. It may be that something I had recently that was labeled as gluten-free contained oats. I am just so confused as to why I didn’t react when I know I ate wheat flour (breaded fries) but then reacted to something else 9 days later. Maybe you’re right and that it was the accumulation of things. 
    • trents
      Welcome to the forum, @SamClaire! I am reasonably sure that after 9 days any danger of a single gluten exposure reaction would have been long gone. If in fact the reaction you are speaking of is due to gluten, it is more likely a cumulative effect of small amounts of gluten having crept into your diet over time. Perhaps some food product you have been using that was once gluten free is no more. Companies can and do change their formulations over time so it may be wise to take inventory of what is in your cupboard and what your are purchasing and check closely the ingredient labels and the allergen statements. It is also possible that the reaction you mention is caused by something else that resembles a gluten reaction. Are you still consuming oats and dairy?
    • SamClaire
      Hi, I’m brand new to this website but I was diagnosed 14 years ago. I am just now getting over a particularly bad flare up that lasted a full 7 days. I’ve been trying to figure out what caused it and all I can think of is I know I accidentally ate gluten (specifically wheat flour) 9 days before my symptoms started. Could it have taken 9 days for my symptoms to start? I can’t think of any other culprit it could’ve been. Thank you!
×
×
  • Create New...