Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

can you not have dairy, gluten, or fructose?


kkgirl

Recommended Posts

kkgirl Contributor

i cant have either of these and im just wondering if others experience the same thing. is it possible to not be able to have all of this? i am going a bit crazy because it does not seem right to me. iv been gluten free for 6 yrs dairy for 2 months and fructose for 3 weeks and it has helped alot. i havent been sick. after going gluten free my symptoms a vomiting and diarrhea cleared up compleatly until  5 months ago.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katie.j.m Rookie

Ohh yes. When you go gluten free you are not actually treating the celiac disease. Look up candida and leaky gut. When we have damaged guts we have to remove other factors like sugar which feeds bad bacteria. When celiac is left untreated it can develop further problems. I can't eat gluten, all grains, dairy, sugar, yeast etc. And I'm improving alot. Only got diagnosed and fell seriously ill this Christmas.

 

Katie 

kareng Grand Master
56 minutes ago, Katie.j.m said:

Ohh yes. When you go gluten free you are not actually treating the celiac disease. Look up candida and leaky gut. When we have damaged guts we have to remove other factors like sugar which feeds bad bacteria. When celiac is left untreated it can develop further problems. I can't eat gluten, all grains, dairy, sugar, yeast etc. And I'm improving alot. Only got diagnosed and fell seriously ill this Christmas.

 

Katie 

The only way to treat Celiac disease is by going gluten free.

anyway, back to the OP -  it is possible to also have a lactose intolerance and or a FODMAPS issue with Celiac.  It's also possible some gluten is creeping in somewhere.  Have you had your antibodies re- tested?

Katie.j.m Rookie
1 hour ago, kareng said:

The only way to treat Celiac disease is by going gluten free.

anyway, back to the OP -  it is possible to also have a lactose intolerance and or a FODMAPS issue with Celiac.  It's also possible some gluten is creeping in somewhere.  Have you had your antibodies re- tested?

You obviously didn't properly read what i said.

Of course you must remove gluten to treat celiac. But to heal up your intestines/gut you must remove other things etc. I get ill from sugar after a certain amount of time because your body cannot cope and it feeds the bad bacteria in your gut. Because your gut is damaged it cannot cope. I have to have probiotics,digestive enzymes etc to restore my health. Honestly look up how to heal the damage that celiac has done. Removing gluten on its own isn't going to help heal your intestines it just removes the cause/irritant . Think about it and look it up. 

kareng Grand Master
3 hours ago, Katie.j.m said:

You obviously didn't properly read what i said.

Of course you must remove gluten to treat celiac. But to heal up your intestines/gut you must remove other things etc. I get ill from sugar after a certain amount of time because your body cannot cope and it feeds the bad bacteria in your gut. Because your gut is damaged it cannot cope. I have to have probiotics,digestive enzymes etc to restore my health. Honestly look up how to heal the damage that celiac has done. Removing gluten on its own isn't going to help heal your intestines it just removes the cause/irritant . Think about it and look it up. 

The OP has been gluten-free for 6 years and doing well.  Now this new developement.  Not quite the same  thing. She is either getting some sneaky gluten somewhere or something else has popped up.

 

As for myself and many Celiacs I know, we didn't need to  give up multiple foods to heal the Celiac damage.  Often, people need to give up dairy temporarily, because the part of the intestine that is damaged is the part that helps you digest lactose in milk.

 

Some people may have other issues or benefit from a simpler, easier to digest diet for a while.  Some people seem to benefit from probiotics to get things back to a normal good bacteria level.

cyclinglady Grand Master

I suspected that I got glutened last July (2015) just prior to a vacation to my parent's house.  My symptoms though were very different from when I had been diagnosed two years earlier (which was basically only anemia).  With this new "glutening" I was vomiting, abdominal pain, rashes, hives, itching, etc.  Six weeks later, I visited my GI.  He suspected SIBO, but I asked for a celiac panel.  Sure enough, my antibodies were sky high and I still have NO idea as to what even glutened me!  I suspect two items (ones that my hubby does not ever consume) but I'll never really know (I am not even going to test them…..)

Best bet is to get another celiac antibodies panel.   At least you can rule out gluten as a cause of your recent issues.  

Good Luck!  

 

cyclinglady Grand Master
5 hours ago, Katie.j.m said:

You obviously didn't properly read what i said.

Of course you must remove gluten to treat celiac. But to heal up your intestines/gut you must remove other things etc. I get ill from sugar after a certain amount of time because your body cannot cope and it feeds the bad bacteria in your gut. Because your gut is damaged it cannot cope. I have to have probiotics,digestive enzymes etc to restore my health. Honestly look up how to heal the damage that celiac has done. Removing gluten on its own isn't going to help heal your intestines it just removes the cause/irritant . Think about it and look it up. 

Katie,

I would recommend a celiac antibodies follow-test to see how you are progressing.  I have many allergies and food intolerances too.  Most have resolved since going gluten free three years ago.  Some intolerances (e.g. garlic) have never resolved (am bummed about that!)  

Celiac Disease is not consistent in terms of symptoms and healing times.  It's no wonder that so many people are not diagnosed!  I think most folks here on this forum take over a year to heal.  That's something that most doctors do not tell you.  

I wish you well!  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,659
    • Most Online (within 30 mins)
      7,748

    Dr. Gunn
    Newest Member
    Dr. Gunn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.