Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

where is your pain?

ironictruth

By ironictruth
in Coping with Celiac Disease

Recommended Posts

ironictruth Proficient
ironictruth
Posted

Mine feels like my pancreas wants to explode (normal ultrasound and enzymes) Mid upper GI. Hurts to touch. Pepto and pepcid is not touching it. 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Right now...my toe that I smashed with a dropped can hurts sometimes.  

cyclinglady Grand Master
cyclinglady
Posted

Mine is on my pointer finger from needle sticks from hand sewing.  On the last 10 marching band uniforms alterations!    ???

Seriously, you should consider an ER visit if your pain is that bad.  ? ????

ironictruth Proficient
ironictruth
Posted
  • Author

Good ones guys! Pepto, pepcid, tylenol, hot shower, it is finally calming. 

I was considering ER but have paid too many visits already. I had an infected bile duct once and can say this pain was not as bad, but pretty darn close. 

cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, ironictruth said:

Good ones guys! Pepto, pepcid, tylenol, hot shower, it is finally calming. 

I was considering ER but have paid too many visits already. I had an infected bile duct once and can say this pain was not as bad, but pretty darn close. 

An infected bile duct is serious!  ?.   If your pain continues, you should see a doctor.  Maybe your bile duct is acting up again and presently a bit differently.  I can not recall, but do you have a gallbladder?  Mine was removed due to infection and it was at 0% functionality.  That was not fun!  

Feel better soon!  

ironictruth Proficient
ironictruth
Posted
  • Author

My gallbladder was removed as well. They did an endoscopic ultrasound recently and said everything was normal, the bile duct is enlarged but that it was probably from when it had the stone (19 years ago).  They also said no gastritis but I am starting to wonder...not sure if an EUS would see that. My endo treated me with antibiotics in case it was bacteria. 

So frustrating. I feel nauseous this morning.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. KDeL
      - KDeL replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      diagnostic testing variance

      so much to it. the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac? I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac.
    2. Scott Adams
      - Scott Adams replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      diagnostic testing variance

      With NCGS there isn't villi damage, so it would not be detected via an endoscopy/biopsy. There also may not be high levels of tTG-IgA or tTG-IgG (sometimes they can be elevated, but in the normal range), but these blood tests may be slightly elevated or even high in people with NCGS: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide), but, you can still have...
    3. KDeL
      - KDeL replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      diagnostic testing variance

      That all makes sense thank you. I was within normal ranges - a little on the lower end. So, the NCGS would still show positive biopsy?
    4. Scott Adams
      - Scott Adams replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      diagnostic testing variance

      Do you happen to have the reference ranges for those blood tests, as they vary from lab to lab? Just the results don't mean much without those ranges. A gluten challenge would be the only way to get a formal diagnosis of celiac disease, and if the idea of eating lots of gluten for weeks sounds horrible to you, then you likely have either celiac disease...
    5. Recently diagnosed
      - Recently diagnosed replied to jadhikary's topic in Traveling with Celiac Disease
      11

      Gluten-Free House Swaps

      Winter typically ranges from about freezing to minus 13 fahrenheit. We have occasional thaws. We live 2 blocks from the longest skating rink in the world. There are downhill ski hills within 30 minutes drive and we can walk to set cross country ski trails. When dressed appropriately we can walk to Parliament buildings, national museums and art galleries,...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,290
    • Most Online (within 30 mins)
      7,748
    KDME
    Newest Member
    KDME
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      so much to it.  the genetic testing will help if i don’t have it right? If theres no gene found then I definitely don’t have celiac?  I guess genetic testing, plus ruling out h.pylori, plus gluten challenge will be a good way to confirm yes or no for celiac. 
    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

      With NCGS there isn't villi damage, so it would not be detected via an endoscopy/biopsy. There also may not be high levels of tTG-IgA or tTG-IgG (sometimes they can be elevated, but in the normal range), but these blood tests may be slightly elevated or even high in people with NCGS: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide), but, you can still have it even if all of these tests are normal.
    • KDeL
      diagnostic testing variance

      By KDeL · Posted

      That all makes sense thank you.    I was within normal ranges - a little on the lower end.  So, the NCGS would still show positive biopsy? 
    • Scott Adams
      diagnostic testing variance

      By Scott Adams · Posted

      Do you happen to have the reference ranges for those blood tests, as they vary from lab to lab? Just the results don't mean much without those ranges. A gluten challenge would be the only way to get a formal diagnosis of celiac disease, and if the idea of eating lots of gluten for weeks sounds horrible to you, then you likely have either celiac disease and/or non-celiac gluten sensitivity, so you will need to decide how badly you want a formal diagnosis. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:        
    • Recently diagnosed
      Gluten-Free House Swaps

      By Recently diagnosed · Posted

      Winter typically ranges from about freezing to minus 13 fahrenheit. We have occasional thaws. We live 2 blocks from the longest skating rink in the world. There are downhill ski hills within 30 minutes drive and we can walk to set cross country ski trails. When dressed appropriately we can walk to Parliament buildings, national museums and art galleries, many restaurants and services.
×
×
  • Create New...