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anaphylaxis or gluten reaction??


lauren11

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lauren11 Newbie

So confused by this scary episode yesterday. So I’ve been suspecting a gluten intolerance for a couple months now due to this new constant arthritis type pain and swelling my right wrist. There's now so many other symptoms I’ve been having but I also have Hypothyroid so I was assuming it has been from that. Any way yesterday I ordered a vegan falafel sandwich on a yummy fresh baguette and only ate half and noticed a tight feeling in my throat that now I recall Ive been feeling quite a bit lately. I ignored the feeling and went on with my day. Well a few hours later while I was relaxing in bed I ate the other half and with in mins I got that tight feeling in my throat again and suddenly felt drugged like I was not all there and my eyes felt heavy. Then I noticed my heart started to race and a tightness across my chest and I felt trapped in my body. I started to have a panic attacked and called out for help to my fiance as I was gasping for air. my heart was pounding and I felt like I was going to faint. with in a few min the panic attack was over but my throat was still tight and i could barley make sense of what was going on I could barley walk or talk but asked to go to the emergency room. Once there I had another panic attack while hooked up to the EKG in front of the Dr and all he basically said was I was having panic attacks and most likely the fried falafel in my sandwich gave me acid reflux and that cause my throat to feel tight. It doesn’t make sense to me at all. I felt like what ever I ate (gluten ) poisoned my body and sent it into shock. He said it wasn’t a Anaphylaxis reaction because I didn’t have hives or swelling which isn’t always a symptom … what the hell happened ?? Is this a normal reaction to someone with celiac ?


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ravenwoodglass Mentor

The best thing you can do is get to your regular doctor and have a celiac panel run. You might also ask to see an allergist. Be sure to keep eating gluten until all celiac related testing is done.

  • 1 year later...
Cinnamon Apprentice

I know this is a really old question, but I was struggling with the same thing and had no idea what was going on and doctors were no help at all. Now I think it's mast cell activation. Google it and see if it sounds like your symptoms. I just wanted to put that out there in case anyone else also had this type of reaction.

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    • ChrisSeth
      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
    • Scott Adams
      Yes, this sounds right. Let us know when you find out your results.
    • ChrisSeth
      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
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