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Confused About Test Results


wanting to feel good again

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wanting to feel good again Newbie

I have been suffering from fatigue of unknown origin for many years now. I have been to several different specialists and had numerous tests done with no answer. I had digestive issues prior to and following the removal of my gallbladder (it was non functioning). The digestive issues have recently gotten extremely worse - mainly extreme nausea and diarrhea. I was eating Imodium and Zofran like candy so I finally talked to my family practitioner. She treated me for reflux and said I would need to do CT scans and stool studies if things didn't clear up. I don't know what got me thinking about gluten intolerance but I did research and saw that fatigue was a symptom along with others I have been dealing with. So I asked her if that could be possible and she wasn't sure but thought it wouldn't' hurt anything to run the tests. So I had the blood work done.
She said I do not have celiac disease, only non-celiac gluten intolerance.
However, the test results are bothering me. My tTG IgA results were 8 - which was weak positive based on how they are analyzed: Negative is 0-3; Weak Positive is 4-10 and Positive is >10.
They also did tTG IgG, Endomysial Antibody IgA (EMA), Immunoglobulin A QN Serum, Deamidated Gliadin Abs, IgA and IgG; All these tests were NEGATIVE based on the results.
She told me that my labs would have looked different, including blood count (which was normal), if I in fact had celiac disease.
I am just really confused based on different things I have read, and I was just wondering if there is anyone out there who might have an opinion.

Thanks!


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    1. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

    2. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

    3. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

    4. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar

    5. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar


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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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