Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jumped In Feet First!

SLLRunner

Recommended Posts

SLLRunner Enthusiast
SLLRunner
Posted

As some may recall from my topic "Test Results" started a few months back, I have been through the ringer with getting anyone at Kaiser to listen to me about my digestive issues. I changed insurance, had a long consult with a new GI who specializes in celiac and gluten sensitivity who listened as well as educated me, asked me to try the low FODMAP diet, and then made an appointment with a dietitian  (see her in 2 weeks), and said he has to look at my pathology reports from the endoscope. I will see him in 4 months unless things don't go well.

I have been doing this diet, which is gluten free, and I have never felt better in my life. Three weeks in and I'm not aching as much, my stomach is not hurting (except I made some gluten free cookies from a package and didn't realize they had inulin, which I am not supposed to have right now. Bad stomach ache! Lesson learned), and I am starting to get my energy back. 

I will not eat gluten again, so my focus with the dietitian will be eating gluten free forever. I will never know if I have celiac, but I do know that gluten is the main problem. I will know for sure when I start adding back in foods that are higher FODMAP, such as the asparagus I love so much and can't eat right now.

Family members we are staying with are understanding and accommodating because their daughter is gluten free.

Just wanted to share my success!  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RMJ Mentor
RMJ
Posted

It is always nice to hear of a success, and someone feeling better!  Yeah!

squirmingitch Veteran
squirmingitch
Posted

Good for you!!! I know this has been such a long painful journey for you SSLRunner but you've reached the end now & I hope you have no more doubts and can live with not having an official dx. After all, your body did give you an official dx, it just isn't signed by a doctor right?

I am thrilled to hear you're feeling so much better!

Yaaaaaaaaaaaaaaaaaaaaaayy!

cyclinglady Grand Master
cyclinglady
Posted

I am so glad for you!  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,734
    • Most Online (within 30 mins)
      7,748
    Sandra McCann
    Newest Member
    Sandra McCann
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      What should I do with these test results?

      By trents · Posted

      I would agree. The tests do not indicate you have celiac disease. So, if you are convinced that when you eliminate gluten from your diet your symptoms improve, I would conclude you have NCGS.
    • Jack Common
      What should I do with these test results?

      By Jack Common · Posted

      My old results are: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months and after I started a gluten challenge. Before the challenge I did some tests as RMJ had suggested to do. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   As trents suggested I ate 6 slices of wheat bread before the tests during the challenge. My results: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   As I can understand I don't have celiac disease.
    • trents
      Global Food Gluten Free Certification

      By trents · Posted

      So it sounds like Global Foods has adopted the FDA standard for "gluten free" advertising.
    • cvernon
      Global Food Gluten Free Certification

      By cvernon · Posted

      Agreed, I am disappointed in the recent GFCO findings as well and definitely don't hold them in as high of a regard as I used to. I did find on the Global Foods website after posting that their required ppm limit is 20ppm, which isn't as low as I had hoped. I'll email and report back. Thx.
    • trents
      Global Food Gluten Free Certification

      By trents · Posted

      Never heard of them. They give an email address so if I were you I would contact them and ask those questions. It would be wonderful if they had tighter requirements than GFCO in the sense of more frequent batch testing and even random testing. Recent news articles on this forum from back in this summer have revealed that GFCO is letting us down.
×
×
  • Create New...