Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Timeline of infertility vs. diagnosis

MarieK

By MarieK
in Related Issues & Disorders

Recommended Posts

MarieK Rookie
MarieK
Posted

Hello everyone.  I was just diagnosed 3 weeks ago, and I've been diving headfirst into all that this means for me from here forward.  One question I have not been able to find the answer to (and really it's just for curiosity sake) is how long you can remain undiagnosed without symptoms before symptoms appear and answers are sought ending in a diagnosis.  

My story:  I started trying to get pregnant about 11 years ago, and all the doctors I saw had no idea why I wasn't conceiving.  I had very irregular periods, and the only thing they could tell me in the end was that I wasn't ovulating regularly, but they saw no reason why (and it wasn't my husband).  In the end, IUI worked and I conceived.  I carried to term and had a healthy baby.  When I tried to have a second child, I still was unable to conceive, and IUI worked again and I carried a second baby to term.  I never had any miscarriages.  Fast forward to last spring when I started getting symptoms that led me to my doctor and then the GI clinic, resulting in a diagnosis three weeks ago of Celiac's Disease.  Is it possible that the infertility was Celiac's related, and that the symptoms only came 10 years later?  Or is it just another mystery without explanation?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

It's entirely possible it was celiac causing the infertility -- it's a known symptom. Having said that, it could be something else but I'm leaning toward celiac. There is no timeline like you're asking about. We are all individuals & in that respect timelines can't be pinned down. People can go for years & years & years with no symptoms. There is actually something called silent celiac where the person has zero symptoms and yet on endoscopy they may have no villi left either. The body can cope in amazing ways until one day it's like the straw that broke the camel's back & boom! symptoms.

I'm really glad you got dx'd so quickly when you did begin getting symptoms (other than infertility). 

You know that you need to have your kids (& all first degree relatives) tested about every 2 years in the absence of symptoms & immediately if symptoms present? Celiac can present at any age in life.

Welcome to the club you never wanted to be a member of. Be sure to read the Newbie 101 in our coping section.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,142
    • Most Online (within 30 mins)
      7,748
    Emilypw9
    Newest Member
    Emilypw9
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MHavoc
      On the cusp of facing a new life of managing a life with Celiac Disease

      By MHavoc · Posted

      Thank you all for the reply posts.  Yes, the constipation has abated.  I am not sure whether its due to having changed to a gluten-free diet or not, but I do think that there is a reasonable correlation.  I know that I will get over this eventually, but I am finding it hard not to lament missing all of my favorite foods that contain gluten.  Certainly, my health comes first... I guess I never realized how many things contain some element of wheat.  My sister has been living with celiac disease for most of her life, so I have someone who will share her favorite recipes. The next step for me will be my appointment with a Gastroenterologist for the Celiac Team... I hope everyone has a safe and wonderful Thanksgiving!
    • sh00148
      Poo changes after 2 weeks

      By sh00148 · Posted

      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      Help with results please. As I have a appt after the New Year.

      By trents · Posted

      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Allergy Meds

      By trents · Posted

      Check Costco's store brand.
×
×
  • Create New...