Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety and celiac


Christina A

Recommended Posts

Christina A Newbie

Hey everyone. Maybe you can help me! It's a bit embarrassing to admit but... Since being diagnosed with celiac disease (February 2016) I've had a lot of anxiety. Seems to be only getting worse. I'm so afraid of being 'glutened'. My live-in boyfriend has been so supportive and even goes gluten-free with me. So our home is strictly gluten free. Does anyone else have anxiety about it and what do you do to help it? For example, the in laws are in town for 2 weeks, and there is gluten everywhere...(I mean everywhere). I have to watch them like a hawk to make sure they don't put the knife back into the peanut butter jar. Or get crumbs in the microwave. My boyfriend has told them about it, and they clean up after themselves (not to my standards, but they do try). I know I can't expect them to not eat it around me. I've noticed how bad I'm getting when I'm around people who eat gluten. Someone even shook my hand after eating a sub from subway and I quickly went to the bathroom to wash my hands. Am I over thinking this? Anyone else in my position? It's driving me crazy lol ? if I could live in a bubble I probably would! Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Yep, exactly like me. I did a post on the mental trauma of this earlier. There are plenty of post related to this with others talking about it. I do a mixed regime supplements to help with the anxiety, and has really taken the edge off. As for the fear, yeah my reactions are so bad that is instilled in me as a trauma and I have very similar dramatic reactions, I am even overly careful about washing grocery's, and not letting stuff touch the conveyor belt at checkouts, shoes off at the door, and wash my hands like crazy. I swear I fear what I would do if someone tried throwing flour at me.

Mortiis Rookie

This sounds a lot like OCD, if not full on then at least bordering on it. It's great that your boyfriend is supportive and that he's willing to eat gluten-free. Maybe he should eat what he would normally eat because he's allowing your fear to grow, the more you avoid it the more the fear will grow and things will only get worse.

Obviously this is just my opinion but I'm basing it on my own OCD and hearing from other sufferers when it comes to germs and things like that and how bad it can get.

RMJ Mentor
47 minutes ago, Christina A said:

I know I can't expect them to not eat it around me. 

I would be very unhappy if I had a strictly gluten free household and someone brought gluten into it.  My household is not completely gluten free (my husband prepares foods with gluten in a separate area)  but I'd still be unhappy if guests expected to eat gluten in my house.  It's your health, not just a preference.

cyclinglady Grand Master

You are not over-thinking this!  I am the same way.  I wash my hands a lot!  I make everyone wash their hands when we return home.  Humm...we do not get sick often either.......I care about getting glutened far more than picking up germs.  Anxiety is so common with those who have celiac disease.  It can be a direct result of the disease itself or acquired after diagnosis.  What other disease is managed completely by the patient?  

One way we have dealt with anxiety is that we made our house is 100% gluten free.  No gluten is allowed.  My family, friends, clubs, Girl Scouts, etc  know it.  If a guest brings a pie, I just thank them and set it aside (give to my neighbors, FIL later).  I provide no gluten food items to any of my guests (even house guests).  Our  traditional holiday dishes are gluten free.  If anyone wants gluten, they can eat it before they come to our house.  No one complains, because I am the best cook in the family.  No one can tell that the dish is gluten free.  I know this because they ask for seconds!  For those that wish to contribute, I ask for flowers, paper good, drinks, or fresh fruit (not cut up) or cash (just from family if they offer since we host almost always).  

Why take this hard line approach?   We need (hubby and me) a place where we can fully relax and let down our guard.  It is our health at stake.  My last glutening took three months for symptoms to subside and another three to regain lost weight (all verified by my GI via antibodies testing).  (Your glutening mileage may vary).  The risk is too great!  We are self-emlplopyed and our product is my hubby!  Glutened and he is worthless (though his recovery is faster than mine.)

My kid does eat gluten.  She consumes it at school and I make sure she eats it daily for 12 weeks prior to any celiac testing (even if symptom free) and she eats it on the porch (good thing we live in sunny California.) Her friends take pity on her and often bring a Peanutbutter and jelly sandwich to school or invite her to dinner.  Funny thing is she still prefers everything I make (except fish, but I make it anyway because Dad and I rule!!!)  

The bottom line is you are adult with a serious disease.  You need to insure that your health will not be compromised.  If people think it is too difficult to not live without gluten while in your house, then they are not worth being in your lives.  Seriously.  And if you think that you are just marrying/cohabitating with just your boyfriend -- you are wrong.  You get the whole enchilda!  Set the ground rules now (always be nice).  It might not be gluten, but how you rear your children or keep your house!  

 

 

egs1707 Enthusiast
1 hour ago, cyclinglady said:

The bottom line is you are adult with a serious disease.  You need to insure that your health will not be compromised.  If people think it is too difficult to not live without gluten while in your house, then they are not worth being in your lives.  Seriously.  And if you think that you are just marrying/cohabitating with just your boyfriend -- you are wrong.  You get the whole enchilda!  Set the ground rules now (always be nice).  It might not be gluten, but how you rear your children or keep your house!  

If I took that approach I'd have to disown my family and live alone (couldn't think of anything worse) as they won't go gluten-free - best it gets is split appliances and a separate cupboard.

My anxiety has gone through the roof now since the blood test result, mainly because of all the negative lifestyle changes it brings and then the side effects (feel 10x worse since giving up gluten compared to when I was eating it). As for the cross contamination I sit there wondering if a spoon used to stir tea can end up hurting me, not sure if that's possible but if it is then I can't see this ever calming down.

 

 

IFit-Celiac Rookie

I absolutely can empathize with the anxiety...your not alone! I've even thought maybe I should seek guidance on how to minimize the anxiety from Celiac...I am so unbelievably terrified of being glutened that it effects so many things. I understand the family bringing gluten into your home as mine does the same as well as many of the guests we have staying with us (we host a lot of people). I believe we do our best in our given circumstance...but definitely must be an advocate for yourself as health always should come first before anything or anyone. Again, find comfort that your not alone in this :) 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 years later...
Celiawithceliac Rookie
On 10/8/2016 at 2:25 PM, RMJ said:

I would be very unhappy if I had a strictly gluten free household and someone brought gluten into it.  My household is not completely gluten free (my husband prepares foods with gluten in a separate area)  but I'd still be unhappy if guests expected to eat gluten in my house.  It's your health, not just a preference.

I’m currently dealing  with this and struggling. 

edhuyvet Newbie

Yes yes yes. I do not have any OCD towards anything else, but if I see a potential contamination with food I am about to get, that is all I am focused on until I can deny the food in a respectful way lol. It is hard sometimes. The most difficult for me is denying the food. I am a people pleaser by nature, and really hate to see a friend share a spoon when stirring gluten-free and regular pasta. I hate telling them as the act happens (I can't predict peoples moves), and even worse, having to really put my foot down sometimes on the legitimacy of cross contamination. I love my friends and family, and I empathize with their prospective of not having to deal with these issues of living as a celiac. Still, there are some days in where I have been running around all day, haven't eaten much, and I end up at a friends where they either do have gluten-free food but contaminate it while cooking OR have no gluten-free food (with no fault of their own they just forgot).

Over time, I have learned a lot. I almost always will have food with me, especially while traveling. I have patience with friends when the forget (I mean it is my life and disease not theirs). If I am eating out at a restaurant with friends and they servers not only doesn't have another gluten-free menu, they don't know what gluten is in the first place, I will refrain from risking it even with a salad (you can still have a nice time with friends and not eat anything, people do it all the time). I make sure that my cupboards are stocked, as I come home starving sometimes. 

Thank goodness we have this disease today. There are SOO many gluten-free options at grocery stores and even in some eateries. Even though gluten-free is stupidly more expensive, the prices are even coming down a bit since I was in college (3 years ago). It is insanely hard and frustrating sometimes, and we get tested for sure! But, I have grown to see it as a positive in life; where I am eating healthier, have more iron (energy lol), and the occasional opportunity to grow/exercise my patience and empathy with others. And that helps. I wish you more good than difficult days ahead! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,761
    • Most Online (within 30 mins)
      7,748

    Dr jac
    Newest Member
    Dr jac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Let me "ditto" Cristiana's welcome to the forum, @DayaInTheSun! Many in this online family can identify with your struggle. With all of your food sensitivity/intolerance issues you probably should research MCAS (Mast Cell Activation Syndrome) and consider a low histamine diet.
    • trents
      Most recent guidelines recommend at least 10g of gluten daily for at least 2 weeks daily leading up to the day of the test. 10g of gluten is roughly the amount found in 4-6 slices of wheat bread. Personally, to be sure you will produce valid test results I would extend the "gluten trial" period from two weeks to four weeks.
    • Celiacmanbill
      the magic ones are often not grown on a gluten free grain but as for others I've only ever seen Maitake and one other type grown on a gluten grain
    • cristiana
      Hi @DayaInTheSun Welcome to the forum! I've been a Mod on this forum for some years now and your feelings are shared by many of us.    I am not sure how long you have been diagnosed, but in my own case I do find that time has helped.  It was pretty exhausting at first trying to explain to friends but they now have a pretty good grasp of coeliac disease and what it entails, either because they've hung around me long enough or have got to know other coeliacs who have educated them.  Also, two of my close friends are coeliacs and another has become allergic to yeast and with that has developed a shed load of other intolerances, so we either cook for each other or tend to socialise over coffee or just a visit to the pub, or meet for a picnic. I now have found a few trusted restaurants and pubs where I can relax and enjoy a meal.  But I would never risk this without a bit of research first, looking at online reviews and preferably asking friends for their personal recommendations. If I am not sure, I don't take any chances and eat before I go out, just saying to the staff, "I'm not eating, but I'll order a drink" without any explanation.  I actually find that much easier than saying, "I'm a coeliac" because they then try to persuade you to try their gluten free menu which can be a bit hit and miss.  I hope others will chime in but I just wanted to reply to say you are certainly not alone in this.  I do hope that over Christmas you will find a few treats you can eat at home. Cristiana    
    • DayaInTheSun
      Anyone else feel this way? Not only do I have celiac disease but a few food intolerances too. I can’t do dairy, soy, nuts (nuts is an actual allergy lip swelling need an EpiPen) , or eggs. I get stomach pain when I eat seeds, dairy gives me crippling pain, I only recently put together the hives when I eat  soy.  Family wants to go out and eat tells me the restaurant is gluten free but the gluten free bread has eggs or soy or they use the same prepping area as food with gluten in it. I’ve been slowly eliminating food trying to figure what my triggers were. It’s been 6 months since I’ve last had hives and joint pain after cutting out all the foods I listed above. But I can’t help but feel like a burden to everyone. They always heavily sigh when I refuse to eat from restaurants.  They encourage me to eat out but I’m only now starting to physically feel better. I want to give in so I won’t be such a burden. And ruin other people’s fun.  Going out on dates is a nightmare trying to explain to them what I can and cannot have they pretend to understand but I feel like it’s a turn off. 
×
×
  • Create New...