Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH on hands with red blood blisters (picture)

Jetskier02

By Jetskier02
in Dermatitis Herpetiformis

Recommended Posts

Jetskier02 Rookie
Jetskier02
Posted

Hey Folks,

 

I recently got into gluten somewhere...really wish I could figure out how because this happens to me so much. I think it may be a result of drinking Omission beer...I very often get DH outbreaks because I am too sloppy with eating. Though I always eat something gluten-free, cross contamination in a fry machine at restaurants is real...and drinking gluten free beer that is filtered to remove gluten may be a problem for me. Anyways, this last week, I had the most intensive DH outbreak on my hands. Has anybody else ever had this happen? Prior to the "blood blisters" forming, my hands were tingling for ~12 hours and when I woke up the next day, they looked like this and no longer tingled. Any input would be great because I've had no luck with doctors. 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jetskier02 Rookie
Jetskier02
Posted
  • Author

Oh and I should mention I have celiac disease...

squirmingitch Veteran
squirmingitch
Posted

You forgot to attach the picture.

You really have to get serious & extremely careful not to get cross contaminated. DH is sensitive to the tiniest amount of gluten and I wouldn't touch an Omission beer for all the tea in China. That's just crazy when you have dh.

Jetskier02 Rookie
Jetskier02
Posted
  • Author

Here's a picture squirmingitch. Thanks for the advice. 

DH_hand.webp

squirmingitch Veteran
squirmingitch
Posted

Jetskier were those actual blood filled raised blisters? I ask because I ran across something recently (and darned if I can recall what it's called) that presents as red spots under the skin as if teeny blood vessels had ruptured & left little red dots all over the place. It actually is associated with dh. I don't think I made a bookmark for it as I was in a real rush at the time. 

Jetskier02 Rookie
Jetskier02
Posted
  • Author

Dried blood, yes. At least, that is what I presume it to be. That's really interesting. So, you're saying that it's associated with DH, but it actually something separate?

 

Cheers,

Mark

 

squirmingitch Veteran
squirmingitch
Posted

That's correct Mark. It was the darndest thing to run across it & it was on reliable medical sites, not just some yayhoo writing an article. It was so weird because in all the research I've done about dh, this was the first time I had run across anything describing that & associating it with dh. I wish I had bookmarked it but I was researching some stuff to take to the doc at an appointment plus Hurricane Matthew was barreling at us so I had my hands really full at the time prepping for both events. In all my time on this site, I've only read 1 or 2 people who mentioned having anything like that.

Now this is something that's just curious & one day when I have time (ha-ha), I'm going to try to research -- my PCP took my hands & turned them palms up & showed them to the nurse. He was pointing out the coloration. The underside of my hands have always, as long as I can remember, been a rosy color. He said that is indicative of celiac. I have never, ever, never come across anything even remotely alluding to that in anything I've read but he seemed to be very adamant that it is so. I looked at my husbands hands and his are the same - he also has celiac. I know that mine are always that color no matter the temperature or time of year. Hot, cold, moderate, they are always that color. So I dunno. One day I'll try to find references to it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
DH-Mom Newbie
DH-Mom
Posted

My son's hands broke out in dried blood filled blisters just like that before he was diagnosed.  Besides an all over body wash.  Hands are better now but rash persists on arms, legs and face...No GI symptoms.  He was diagnosed with admin biopsy and blood tests.

squirmingitch Veteran
squirmingitch
Posted

Jetskier I was researching for something entirely different & just happened to run across what I was talking about earlier. It's called petechiae. Here are some links:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

  • 2 weeks later...
Jetskier02 Rookie
Jetskier02
Posted
  • Author

Hey squirmingitch -- that totally does look like it! Thanks for reaching back in about this. I'm happy to report I have become so staunch and thinks are on the up and up. 

Best,

Mark

squirmingitch Veteran
squirmingitch
Posted

You're very welcome! It certainly is great to hear things are getting better for you Mark. Keep up the good work! :)

squirmingitch Veteran
squirmingitch
Posted
On October 30, 2016 at 8:35 PM, DH-Mom said:

My son's hands broke out in dried blood filled blisters just like that before he was diagnosed.  Besides an all over body wash.  Hands are better now but rash persists on arms, legs and face...No GI symptoms.  He was diagnosed with admin biopsy and blood tests.

How is your son doing now DH-Mom? How long has he been gluten free?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,768
    • Most Online (within 30 mins)
      7,748
    JAEL53
    Newest Member
    JAEL53
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bebee
      Testing for celiac

      By Bebee · Posted

      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Testing for celiac

      By knitty kitty · Posted

      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
      Testing for celiac

      By Bebee · Posted

      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding

      By bluebird2032 · Posted

      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
×
×
  • Create New...