Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red face (again)


tammi22

Recommended Posts

tammi22 Rookie

I posted something previous to do with this, but I always get anaphylactic symptoms whenever i consume gluten (i am returning to the doctors on monday). 

However i seem to be getting it after every time i eat now. I have only been eating 1 meal a day because i'm worried about getting it during the day and being so affected in my lectures at university, however the 1 meal contains no gluten/wheat/oats, ANYTHING - no dairy either. I'm so worried about it like i've got it right now. My face went extremely blotchy last night and then cleared up when i was going to sleep - however i have felt redness and warmth on my face today. 

I also get a headache and good old (not really) Brain Fog along with this. And my eyes feel ... droopy? And a racing Heart always happens [though the extent varies, not too bad yet].

I'm getting really scared to eat at the moment. I'm wondering if it's the sugars? I've had cereal (everything free milk of course) and i dunno if that could have triggered it? I mean they're not exactly extremely high in sugar so I can't really seem to link it? This stuff is really difficult now and I'm scared the doctor won't be able to do anything- and in the meantime before finding anything about it, I'm really gonna struggle :( 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
58 minutes ago, tammi22 said:

I posted something previous to do with this, but I always get anaphylactic symptoms whenever i consume gluten (i am returning to the doctors on monday). 

However i seem to be getting it after every time i eat now. I have only been eating 1 meal a day because i'm worried about getting it during the day and being so affected in my lectures at university, however the 1 meal contains no gluten/wheat/oats, ANYTHING - no dairy either. I'm so worried about it like i've got it right now. My face went extremely blotchy last night and then cleared up when i was going to sleep - however i have felt redness and warmth on my face today. 

I also get a headache and good old (not really) Brain Fog along with this. And my eyes feel ... droopy? And a racing Heart always happens [though the extent varies, not too bad yet].

I'm getting really scared to eat at the moment. I'm wondering if it's the sugars? I've had cereal (everything free milk of course) and i dunno if that could have triggered it? I mean they're not exactly extremely high in sugar so I can't really seem to link it? This stuff is really difficult now and I'm scared the doctor won't be able to do anything- and in the meantime before finding anything about it, I'm really gonna struggle :( 

It sounds like classic Histamine Intolerance.  You may want to take a look at this article, written by a doctor who has Celiac and was a contributor to this forum for a bit.

Open Original Shared Link

I am sorry you are suffering with this.  I have severe allergies, along with Celiac, and my little trick is hives.  I feel your pain!

tammi22 Rookie
1 hour ago, Gemini said:

It sounds like classic Histamine Intolerance.  You may want to take a look at this article, written by a doctor who has Celiac and was a contributor to this forum for a bit.

Open Original Shared Link

I am sorry you are suffering with this.  I have severe allergies, along with Celiac, and my little trick is hives.  I feel your pain!

omg just reading this list makes everything seem so clear. thank you so much i am going to discuss it with my doctor on monday :)

GFinDC Veteran

Here's a  list of 14 food allergens that might be helpful.  Eisonophilic esophagitis is another issue that might fit.  It cause reactions in the throat to many foods.

Gemini Experienced
21 hours ago, tammi22 said:

omg just reading this list makes everything seem so clear. thank you so much i am going to discuss it with my doctor on monday :)

Good luck!  Please let us know how it goes.

Posterboy Mentor

tammi22,

I agree with Gemini. The link she provided is the best information I have read on the subject.

You also might look up the Niacin protocol.

It involves taking Niacin 100mg titrating it up on 100mg steps till you get up to 500mg and depleting your histamine reserves by way of the Niacin flushing that people  get  in taking Niacin in higher dosages.

If taken (niacin) with food the flushing you get is usually mitigated in 100mg amounts but will over 3 or 4 days usually deplete your histamine reserves so that the hives you are experiencing usually settles down when the histamine is flushed out with high dose niacin.

I had a friend who had a histamine allergy who when taking Niacinamide 500mg (the non flushing form of Niacin) to treat her histamine allergy got better in 3 or 4 months.

It will take 3 or 4 months of taking it (Niacinamide) 3/day to get over a B-Vitamin deficiency.  You will notice you begin burping after each meal when the Niacinamide or Niacin (once the flushing/hives are gone) when you begin burping and your stool sinks to the bottom of the bowl.

A burp that comes in the first twenty minutes will be what you notice when it (burping) begins again if you don't now burp but when you are over you deficiency you will be burping (without carbonated drinks) 2 hours after a meal and even water will cause you to burp after taking Niacinamide for 6 months 3/day.

I think you will notice by then your histamine allergy is much better.  Or at least my friends was.

Niacin regulates how histamines functions in the body.

Here is a good link that explains what modern day doctor's have forgotten about Niacin.

Open Original Shared Link

It natures natural antihistamine because it helps regulate adrenalin in the body.

I think of it as being able to reset your stress clock.  When we have anaphylactic reaction our "stress clock" (my words) goes haywire and we can't shut it off.

Niacin let's us diffuse that ticking time bomb by depleting our histamine reserves.

******This is not medical advice and should not be considered such but taking Niacin should flush your histamine  reserves in 3 or 4 days helping the anaphylactic reaction if it indeed a histamine reaction you are having.

Here is another link that explains how to take Niacin to deplete your histamine reserves.

Open Original Shared Link

I hope this is helpful.

posterboy,

 

 

emma6 Enthusiast
11 hours ago, Posterboy said:

tammi22,

I agree with Gemini. The link she provided is the best information I have read on the subject.

You also might look up the Niacin protocol.

It involves taking Niacin 100mg titrating it up on 100mg steps till you get up to 500mg and depleting your histamine reserves by way of the Niacin flushing that people  get  in taking Niacin in higher dosages.

If taken (niacin) with food the flushing you get is usually mitigated in 100mg amounts but will over 3 or 4 days usually deplete your histamine reserves so that the hives you are experiencing usually settles down when the histamine is flushed out with high dose niacin.

I had a friend who had a histamine allergy who when taking Niacinamide 500mg (the non flushing form of Niacin) to treat her histamine allergy got better in 3 or 4 months.

It will take 3 or 4 months of taking it (Niacinamide) 3/day to get over a B-Vitamin deficiency.  You will notice you begin burping after each meal when the Niacinamide or Niacin (once the flushing/hives are gone) when you begin burping and your stool sinks to the bottom of the bowl.

A burp that comes in the first twenty minutes will be what you notice when it (burping) begins again if you don't now burp but when you are over you deficiency you will be burping (without carbonated drinks) 2 hours after a meal and even water will cause you to burp after taking Niacinamide for 6 months 3/day.

I think you will notice by then your histamine allergy is much better.  Or at least my friends was.

Niacin regulates how histamines functions in the body.

Here is a good link that explains what modern day doctor's have forgotten about Niacin.

Open Original Shared Link

It natures natural antihistamine because it helps regulate adrenalin in the body.

I think of it as being able to reset your stress clock.  When we have anaphylactic reaction our "stress clock" (my words) goes haywire and we can't shut it off.

Niacin let's us diffuse that ticking time bomb by depleting our histamine reserves.

******This is not medical advice and should not be considered such but taking Niacin should flush your histamine  reserves in 3 or 4 days helping the anaphylactic reaction if it indeed a histamine reaction you are having.

Here is another link that explains how to take Niacin to deplete your histamine reserves.

Open Original Shared Link

I hope this is helpful.

posterboy,

 

 

if anyone actually suspects they are deficient in vitamin b3 please get tested by a doctor before taking high doses of vitamins that can cause side effects


posterboy,
i don't know how you find all these suspicious "doctor" websites, i guess anyone can create a website, call themselves a doctor and give unreliable medical advice. it might be helpful for you to research pseudoscience in medicine so you can tell which website are making up miracle cures and scamming people.


Doctor Andrew Saul from that doctoryourself.com website has a phD human Ethology that hardly qualifies him to be giving medical or nutritional advice.

Dr. Reuben T. DeHaan is a naturopath not a medical doctor. just skimming through Open Original Shared Link not only is it full of crazy claims like "every illness is curable" some of the advice sounds dangerous.  he's against vaccinations, belives in inducing fevers, fasting while sick, coffee enemas, advising against mammograms. he promotes allergy testing by checking your pulse, ph testing, thinks milk is toxic, microwaves dangers. clearly every word of his blog is false

i doubt theres any real connection between Niacin and histamines functions if these are the kinds of doctors making those claims

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

The 14 food allergens poster pdf link finally!

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,069
    • Most Online (within 30 mins)
      7,748

    Sashley
    Newest Member
    Sashley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
    • Scott Adams
      I also want to mention that using prednisone would likely also make the endoscopy results invalid. This steroid will cause gut healing and could mask the damage caused by celiac disease. 
    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
×
×
  • Create New...