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Deleting a post??


gluten-free girl 67

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gluten-free girl 67 Apprentice

I have some paranoia setting in. Is there anyway to delete a post? I posted about my Christmas story, and I have a few reasons why I want to delete that I won't get into. Is there any way to delete it? Or do I just need to deal with the fact I put a big private story on the internet??
 


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kareng Grand Master
34 minutes ago, gluten-free girl 67 said:

I have some paranoia setting in. Is there anyway to delete a post? I posted about my Christmas story, and I have a few reasons why I want to delete that I won't get into. Is there any way to delete it? Or do I just need to deal with the fact I put a big private story on the internet??
 

I am  not seeing anything that identifies you.  This could be a lot of people's story.   Only Admin can delete posts and threads,  but he rarely does.  People took time to read it and answer you.  It is a good cautionary tale for others.

gluten-free girl 67 Apprentice

Ok. I will let it go. I am very sensitive and seeing so few responded with over 700 views bothers me. But there were other reasons as well. 

cyclinglady Grand Master
17 minutes ago, gluten-free girl 67 said:

Ok. I will let it go. I am very sensitive and seeing so few responded with over 700 views bothers me. But there were other reasons as well. 

Lots of people view and never respond for many reasons (like they are not knowledgeable enough or what another member said would be identical information).  Remember, you posted while being sick.  It was just a rant.  Plus, you are anonymous here.  It is one reason why this forum is strong.  It is one reason why I do not belong to a Facebook group (even a private group).    I do not really want EVERYONE to know I have Celiac Disease.  What if I was applying for a job?  

Soon, you will feel better!  Do something positive today!  

Scott Adams Grand Master

We can change you screen name or remove an email address, phone number, etc., but as a general rule we don't delete content, especially when it can be helpful to others.

gluten-free girl 67 Apprentice

Ok. Thanks everyone. I am just too sensitive about celiac. My sister understands how to be sure food is gluten free but she didnt want to take the time to do it and double check. Thats what upsets me. Good thing I am careful and responsible for what I eat. I have learned not to trust anyone else but myself. 

cyclinglady Grand Master
2 hours ago, gluten-free girl 67 said:

Ok. Thanks everyone. I am just too sensitive about celiac. My sister understands how to be sure food is gluten free but she didnt want to take the time to do it and double check. Thats what upsets me. Good thing I am careful and responsible for what I eat. I have learned not to trust anyone else but myself. 

Good for you.  Honestly, my parents are great but I do not trust them to cook safely for me and my husband.  Ask them about low carb foods (Dad has diabetes), and they are walking encyclopedias.  I stay with them for weeks at a time.  I keep a bin of my gluten-free cooking tools at their house.  I read all labels and supervise all preparation.  But to show up and eat?  Never.  I would get glutened for sure.  It is just not on their radar.

There are a few gluten-free ladies in my orchestra.  They offer me gluten-free goodies.  But I never take them.  They reside in shared households and I do not know if their cookware is clean and gluten-free.  One lady is offended and the other gets that I have celiac disease and my reaction is brutal and long to heal.  

I trust only one other person and that is a girlfriend who has celiac disease.  She gets it!  Heck, I do not even trust my hubby who has been gluten-free for 15 years.  That is because since my diagnosis, I have been handling all the food.  If it is in the house, it is gluten free.  If eating out, he knows to go to only a few select restaurants.  For the most part, I pack him a lunch.  He takes more risks, but he just gets sick for a week.  Me it's about three months (as documented by my GI).  He has become less vigilant because he knows I am the gluten police.  

What I can say, is that your family seems to be supporting your diet.  For many, their families do not care or even make an attempt (I am not talking about cooking).  My Mom buys me lactose free milk (though I do not need it anymore), gluten-free chips and other pre-packaged foods for me prior to our arrival.  The rest of the family knows that hubby and I get the first pass on the buffet line (that I oversaw the food preparation).  The kids know not to double dip and everyone buys squeeze bottle for condiments.  An open bag of chips?  We do not eat them.  Who knows if the kids washed up.  Beside Gluten, they could contain germs!

So, be glad that your sister cares. Just the mental support is priceless! ? 


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      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
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