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Deleting a post??

gluten-free girl 67

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gluten-free girl 67 Apprentice
gluten-free girl 67
Posted

I have some paranoia setting in. Is there anyway to delete a post? I posted about my Christmas story, and I have a few reasons why I want to delete that I won't get into. Is there any way to delete it? Or do I just need to deal with the fact I put a big private story on the internet??
 

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kareng Grand Master
kareng
Posted
34 minutes ago, gluten-free girl 67 said:

I have some paranoia setting in. Is there anyway to delete a post? I posted about my Christmas story, and I have a few reasons why I want to delete that I won't get into. Is there any way to delete it? Or do I just need to deal with the fact I put a big private story on the internet??
 

I am  not seeing anything that identifies you.  This could be a lot of people's story.   Only Admin can delete posts and threads,  but he rarely does.  People took time to read it and answer you.  It is a good cautionary tale for others.

gluten-free girl 67 Apprentice
gluten-free girl 67
Posted
  • Author

Ok. I will let it go. I am very sensitive and seeing so few responded with over 700 views bothers me. But there were other reasons as well. 

cyclinglady Grand Master
cyclinglady
Posted
17 minutes ago, gluten-free girl 67 said:

Ok. I will let it go. I am very sensitive and seeing so few responded with over 700 views bothers me. But there were other reasons as well. 

Lots of people view and never respond for many reasons (like they are not knowledgeable enough or what another member said would be identical information).  Remember, you posted while being sick.  It was just a rant.  Plus, you are anonymous here.  It is one reason why this forum is strong.  It is one reason why I do not belong to a Facebook group (even a private group).    I do not really want EVERYONE to know I have Celiac Disease.  What if I was applying for a job?  

Soon, you will feel better!  Do something positive today!  

Scott Adams Grand Master
Scott Adams
Posted

We can change you screen name or remove an email address, phone number, etc., but as a general rule we don't delete content, especially when it can be helpful to others.

gluten-free girl 67 Apprentice
gluten-free girl 67
Posted
  • Author

Ok. Thanks everyone. I am just too sensitive about celiac. My sister understands how to be sure food is gluten free but she didnt want to take the time to do it and double check. Thats what upsets me. Good thing I am careful and responsible for what I eat. I have learned not to trust anyone else but myself. 

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, gluten-free girl 67 said:

Ok. Thanks everyone. I am just too sensitive about celiac. My sister understands how to be sure food is gluten free but she didnt want to take the time to do it and double check. Thats what upsets me. Good thing I am careful and responsible for what I eat. I have learned not to trust anyone else but myself. 

Good for you.  Honestly, my parents are great but I do not trust them to cook safely for me and my husband.  Ask them about low carb foods (Dad has diabetes), and they are walking encyclopedias.  I stay with them for weeks at a time.  I keep a bin of my gluten-free cooking tools at their house.  I read all labels and supervise all preparation.  But to show up and eat?  Never.  I would get glutened for sure.  It is just not on their radar.

There are a few gluten-free ladies in my orchestra.  They offer me gluten-free goodies.  But I never take them.  They reside in shared households and I do not know if their cookware is clean and gluten-free.  One lady is offended and the other gets that I have celiac disease and my reaction is brutal and long to heal.  

I trust only one other person and that is a girlfriend who has celiac disease.  She gets it!  Heck, I do not even trust my hubby who has been gluten-free for 15 years.  That is because since my diagnosis, I have been handling all the food.  If it is in the house, it is gluten free.  If eating out, he knows to go to only a few select restaurants.  For the most part, I pack him a lunch.  He takes more risks, but he just gets sick for a week.  Me it's about three months (as documented by my GI).  He has become less vigilant because he knows I am the gluten police.  

What I can say, is that your family seems to be supporting your diet.  For many, their families do not care or even make an attempt (I am not talking about cooking).  My Mom buys me lactose free milk (though I do not need it anymore), gluten-free chips and other pre-packaged foods for me prior to our arrival.  The rest of the family knows that hubby and I get the first pass on the buffet line (that I oversaw the food preparation).  The kids know not to double dip and everyone buys squeeze bottle for condiments.  An open bag of chips?  We do not eat them.  Who knows if the kids washed up.  Beside Gluten, they could contain germs!

So, be glad that your sister cares. Just the mental support is priceless! ? 

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    • Scott Adams
      How many grams is there in one slice of wheat bread?

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    • Scott Adams
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      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
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    • trents
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      By trents · Posted

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    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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