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dAPSONE

razzle5150

By razzle5150
in Dermatitis Herpetiformis

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razzle5150 Enthusiast
razzle5150
Posted

iS THERE anybody on here that has taken dapsone and really got better with no side effects...please let me know as my dr wants to raise dosage and I am allergic to sulfa

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susan french Rookie
susan french
Posted

I tried Dapsone when first diagnosed with DH, but I broke out in a rash.  I also can't take sulfa and since this is like artificial sulfa, I couldn't use it.  When I was completely gluten free, the blisters went away, but the skin itching and small bumps continue, and have for 7 years.  I'm a diabetic so prednisone is no good.  I take hydroxyzine, doxepin, and a 5 mg of Xanax, all at bedtime to alleviate the itching.  Also use Clobetesol cream on troubling areas.  Clobetesol is expensive so sometimes I just use benedryl spray and cream.  I don't think the itching will ever completely go away.  But I am gluten free.

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