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Sharlotta schlaegel

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Sharlotta schlaegel Newbie

Hope I'm posting in the correct area. Hi I'm new and learning to navigate around this forum. I've felt alone on my mission of surviving omitting gluten. And now I've hit the jack pot! A forum such as this. I know ( and extremely excited) I'm on a power journey with so much experience to access.


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Ennis-TX Grand Master

Welcome to the forums, this is a great group for support. I have multiple issues (check profile) related to Celiac disease myself. It have been a great experience here over the years. And I often find myself helping others or coming out about my issues here. Feels like a nice understanding family most the time. I also post often on recipes, suggestions on supplements, and help finding foods for people and cooking instructions. Feel free to talk about your issues and ask questions, many of us are have years of experiences dealing with the disease.

GFinDC Veteran

Welcome to the forum Sharlotta! :)

If you are trying to learn gluten-free eating, you came to the right place.  We do have a thread for beginners called Newbie 101 in the "Coping With" forum section that might help.

Also, we have plenty of helpful members who can steer you forward.  Feel free to fire away with questions! :)

P.S.  If you click the green circled plus sign right of your thread title, you can follow this thread and gets emails when someone replies to it.   Very helpful! :)

Jmg Mentor

Welcome Sharlotta :)

As others have said this is a great site with lot's of good info and helpful members. I hope you find as much help and support here as I have and that you get all the answers you need. 

Sharlotta schlaegel Newbie
10 hours ago, Ennis_TX said:

Welcome to the forums, this is a great group for support. I have multiple issues (check profile) related to Celiac disease myself. It have been a great experience here over the years. And I often find myself helping others or coming out about my issues here. Feels like a nice understanding family most the time. I also post often on recipes, suggestions on supplements, and help finding foods for people and cooking instructions. Feel free to talk about your issues and ask questions, many of us are have years of experiences dealing with the disease.

Thank you for your informative and warm welcome.  My biggest grip is miss labeled products.  I'm positive that is a huge issue with many many people. I've come to realize that it is an issue I will need to move around since I can't change it. So I tend to rotate meals I know are safe. And know that I must be satisfied with that. 

Anxious to read the posts here. 

 

Ennis-TX Grand Master

I personally stick to soups, stir Fries, egg white omelettes with added fats, and my own homemade, ice creams, cheese sauces, and dips. And sometimes treat myself to my own baked goods, and tiny bits of foods I prep for others. I also snack alot on stuff I trust from brands I trust of seeds, nuts, etc. Sometimes you branch out a bit and it bites back like a rabid animal though.

  • 6 months later...
Guest

Hello and welcome fellow forumer. We hope you would enjoy your stay as well.


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Guest

Oh sorry for the late response.

Guest

But any how guys thanks for the messages.

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    • Kathleen JJ
      And yes, of course it's better to know and we will adjust.  It's just, he's 7 and in our house we can control what he gets. But he plays soccer 3 times a week and in the changing room the boys share candies. I can and will tell him not to accept them any more, but "mistakes" will be made.   I'm really burdened by the potential social impact for him. He so loves to go to a restaurant as a family - I'll guess that's finished. Going to birthday parties at another kids house? I am reading about Coeliacs and apparently the fact that something as much as TOUCHED something with wheat is enough, even if he doesn't feel the symptoms - how can we control that bar from keeping him locked up?    And the worst worry of all: how do you tell a little boy to do all of this to not have symptoms that he does not have. If he'd been having horrible diarrhea or feeling really tired, we could tell him 'see, you feel so much better now, that kind of food was just not good for your body', but now, what will our argument be? For clarity: of course we will put him on the diet, I am not saying I don't believe in the necessity of that, it is just that it will be quite a stretch to 'sell' it to him 😞
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    • Kathleen JJ
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    • cristiana
      Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear.  I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter pylori on this forum.  I am not sure how that would reflect in the blood results so I will leave this to be answered by my more experienced colleagues @trents or @Scott Adams. Obviously, you won't really know for sure where things stand until you have your meeting with the consultant.  I am sorry that you have to wait, but it will be worth knowing one way or another.  Apart from his recent gastric issues, it is fantastic to know that your son is otherwise a picture of health.  But it is worth bearing in mind that undiagnosed coeliac disease can cause health issues in the longer term, so far better to know now if he does turn out to have coeliac disease and adapt your son's diet accordingly, before other health issues have a chance to appear. Cristiana  
    • Kathleen JJ
      Hi all, I'm very new at this and 'this' has been quite a rollercoaster ride.   Last august my 7 year old son suddenly had these colic like pain attacks that would come a few times per day/night during 10 days. Because they were that bad and because our older daughter had her appendix taken out at 7, we ended up at ER twice to have him checked out. On both accounts blood was taken, on one account an ultrasound was made, showing swollen lymph nodes around the stomach, and the working theory was it was a violent reaction to a viral infection (even though he was not nauseous nor had diarrhea or anything like that). After 10 days it stopped as suddenly as it came on.   On October 1d my daughter started vomiting in the middle of the night, had a fever, and my son also threw up once (no fever). We kept them home from school, daughter kept on vomiting, fever stayed, son was perfectly healthy during the day, although he only ate yoghurt to be safe. The plan was to let him go to school the day after. In the night prior to his school return however, he woke up at 1, screaming with pain, begging to go to ER, which we did - the pain from august had returned.   Again bloodwork, but nothing found. It ended up only being that one pain attack, but because they were that bad, we went to the pediatrician the week after to have him checked up more thoroughly. He is a very energetic, sporty boy and he showed off his six pack with great pride to the doctor. She said he looked as an example of health, but did a more extended search because as the last blood test his liver values had been ever so slightly raised and she wanted to see how they'd do after a month.    So on November 8 we had his blood drawn again. His liver values had returned to normal, which did confirm the working theory that his pains were viral-infection triggered.   However, to everyone's (including the doctor) surprise, he also had these values: Transglutaminase IgA + >128 U/mL Gliadine IgG + 123.0 U/mL    I take it these are quite high. So last Tuesday he got his gastroscopy done, we'll have the result around the 25d we hope.  Whilst going for taking samples of the bowel, the gastro enterologist did notice some nodes in his stomach that present like a reaction to a Helicobacter pylori type infection, which would very much explain the type of pains he had.   We are still very much in shock by the Ceoliakie diagnosis (I know, it still needs to be confirmed by the biopsy, but with those numbers we kind of expect it) as he has no symptoms at all. The doctor said 'once he goes on a gluten free diet you'll see him blossom into an energetic, more happy boy' and we're like: but he is bouncing around singing and joking all day, I really can't imagine him being MORE energetic and happy - meaning, he's welcome to be that of course, but this is not a tired, withdrawn kid.   And even if the biopsy gets back negative (unlikely), what could these numbers have meant then? Could the Helicobacter pylori have an influence on this?   I have so many questions but are only eligible for a consult on December 6d so my data driven mind is going crazy having so little information or knowing so little about what everything means...   Kind regards, Kathleen  
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