Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Migaraine

tummietroubles

Recommended Posts

tummietroubles Newbie
tummietroubles
Posted

I was diganosed with Celiac Disease about a year and a half ago. I have learned over the last year to be extremely careful with any and all foods. But recently my daughter bought me a gift set from Bath & Body Works "Cucumber & Melon" lotions ect. Beautiful and smelled even better. To make a long story short I began getting headaches that were getting worse each day. Then nausea, vomiting and severe head pain this went on all of October and through most of November. I had cat scan, MRI and xrays. I do have white matter on my brain which I believe is from the disease. I was so very careful and never even thought about the lotion I was using until one moring I noticed it says right on the label contains "wheat germ oil" I couldn't believe it. My headaches are gone. So please be aware. I could have saved myself so much pain and sickness. There are just soooo many things out there that we all need to be aware of.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chaddwell Apprentice
chaddwell
Posted

I am new to this and didn't think much about other stuff besides the food aspect so thank you for this information. I found it helpful and I'm sure others will too!

darlindeb25 Collaborator
darlindeb25
Posted

Not all Bath & Body Works products contain wheat germ oil. I use their White Tea and Ginger, it has avacado oil and almond oil--it doesnt bother me at all. I also use their Sweet Pea. I had severe reactions to their Moonlight Path. Never use a product without reading the ingredients. Deb

Rachel--24 Collaborator
Rachel--24
Posted

I had a similar experience with Aubrey Organics lotion. It had wheat germ oil and I gradually got sicker and sicker over the 2 weeks I used it. It was miserable and I lost lots of weight. :(

  • 1 month later...
Silver-naki Rookie
Silver-naki
Posted

Thanks for the "tips" on these Products here folks! I had wondered often about some of these things myself, so this was quite insightful! Thanks much!!! :)

teebs in WV Apprentice
teebs in WV
Posted

I have found that most of the lotions from Bath & Body Works contain oats, so I avoid them all. I do use their handsoap, body spray, and some body washes (gels only - every cream body wash that I have checked out has oats).

Ursa Major Collaborator
Ursa Major
Posted

I found out that when I weeded out all products with wheat germ oil my scalp stopped itching (the shampoo had it), and my eyes wouldn't burn any more (my hand soap had it, and I'd touch my eyes).

I am part of a German Celiac forum (I rarely go there now), and they drive me nuts. Somebody was saying they're so careful with their food, and is not getting better. When I suggested getting rid of skin and hair products with wheat germ oil, I just about got tarred and feathered! They seriously claim that there is NO gluten in wheat germ oil or wheat starch. And anybody who doesn't get better by following their codex alimentarius (20ppm gluten allowed in food, and they're very proud of that, since Finland allows 200ppm) must have something else, they aren't celiacs. It makes me so mad, that I just can't post there any more!

They were also complaining that the self-test for gluten intolerance costs 12 Euro (less than $20.00 US), and thought that people wanted to rip them off because the government health insurance wouldn't cover it! I checked, and that same test costs $99.00 in the US (more in Canada).

And so they complain about things we would consider a blessing, and lead people astray by claiming that the 20ppm is very reasonable, since it isn't possible to be 100% gluten free, anyway, and that wheat germ and wheat starch are fine, because they don't contain gluten.

So, to not start fights, and to not be treated like crap when I don't agree with them, I am staying away now for the most part.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,798
    • Most Online (within 30 mins)
      7,748
    Brookssarah89
    Newest Member
    Brookssarah89
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
    • Jordan23
      Potato Intolerance

      By Jordan23 · Posted

      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By trents · Posted

      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Doris Barnes · Posted

      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
×
×
  • Create New...