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    • Dora77
      @trents hey i got one other question regarding the cashier job, do you think there could be air floating around where I am? Its a big supermarket, I will only work once per week in the weekends. Could there be some airborn flour from people who bought flour?
    • Deborah123
      No he was not avoiding wheat based foods 
    • cristiana
      Hello again @kate g I wonder if you are posting from the UK?  We get a lot of people from the UK posting on this forum because I don't think Coeliac UK have their own. (It is an excellent organisation, by the way, and well worth joining for its gluten-free shopping guide/app.) I ask as in my own case, the only NHS tests I was offered  for deficiencies were B12 and iron.  I suspect, if you are in the UK, you will have only been offered those on the NHS and the iron test came back deficient, hence your daughter being put on a liquid iron supplement.  If it is Floravital, that's great, it is gluten free, but be careful as the packaging looks very much like Floradix, which contains gluten.   I ended up seeing a private, highly qualified private nutritionist and even she didn't offer me a deficiency test, other than one for Vitamin D.   Without any evidence, she put me onto a general supplement which gave safe daily levels of a wide range of vitamins which did help. For heavier supplementation, one has to always be careful of over-supplementing which can be dangerous, so it would be fantastic if you can get your GP/gastroenterologist to test for other deficiencies, then monitor the situation. Regarding your daughter's high tTG levels, I am sure that in the past few years someone did post with very high figures on this forum, in the thousands, but I cannot find the post now, of course! When I was diagnosed the local NHS pathology labs were reporting that blood test with a cut off at 100, so one only ever knew as much as that. For the time being, I do hope the school is being supportive?   Cristiana    
    • Wheatwacked
      Why the iron?  Have the doctors tested for vitamin D.  Is she eating enough eggs, milk, meat? Start her on the Thiamine today.    The minimum for a child of four years is 0.6 milligrams.  That's 600 mcg.  That is 3X the minimum folate (200 mcg).  fThere is no established upper limit for thiamin intake in humans because there is no evidence of adverse effects from high thiamine intake. There is plenty of evidence something bad IS happening now. Thiamine is NOT a medical issue, it is a food issue.  The World Health Organization recommends daily oral doses of 10 mg thiamin for a week, followed by 3–5 mg/daily for at least 6 weeks, to treat mild thiamin deficiency [23]. The recommended treatment for severe deficiency consists of 25–30 mg intravenously in infants and 50–100 mg in adults, then 10 mg daily administered intramuscularly for approximately 1 week, followed by 3–5 mg/day oral thiamin for at least 6 weeks. Thiamin Fact Sheet for Health Professionals there is a list of foods with thimin content,  Breakfast cereals, fortified with 100% of the DV for thiamin, 1 serving1.2 mg 100% I think waiting a long time to see a doctor before giving more thiamin is a mistake and puts her in unnecessary danger due to a beauracracy. Ideally get tested today, start tomorrow but wait weeks, while she suffers?  I could not do it.
    • trents
      Looks like what was not done that should have been done was Total IGA. If total IGA is low, it can drive other IGA scores down toward the negative range. Was he avoiding wheat-based foods by any chance when the blood draw was taken?
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