Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Hair Loss

jamie111

By jamie111
in Related Issues & Disorders

Recommended Posts

jamie111 Newbie
jamie111
Posted

I was diagnosed with Celiac in Sept 2016. I have been gluten-free for 7 months. 

Pre-diagnosis: hair thinning, dry skin, head aches, awful bloating, etc. Symptoms have steadily improve with bloating here and there. Now, the past month, my hair has taken a dramatic turn for the worse with loss and thinning of hair again - but worse!! Why is this? I need help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PinkyGurl Explorer
PinkyGurl
Posted
43 minutes ago, jamie111 said:

I was diagnosed with Celiac in Sept 2016. I have been gluten-free for 7 months. 

Pre-diagnosis: hair thinning, dry skin, head aches, awful bloating, etc. Symptoms have steadily improve with bloating here and there. Now, the past month, my hair has taken a dramatic turn for the worse with loss and thinning of hair again - but worse!! Why is this? I need help!

Hi jamie111. I had the SAME thing!  Turned out I also had hashimotos which is often seen with celiac.  I would have your thyroid antibodies and thyroid levels checked.  My antibodies were up but my thyroid labs were "within normal". I saw my endocrine and told her of all my thyroid symptoms and she was amazing and started me on meds (very low dose) and wow what a difference!

icelandgirl Proficient
icelandgirl
Posted

Hi Jamie!

I completely agree with Pinky.  Have your thyroid fully investigated.  A lot of Dr's will only test TSH and it just doesn't tell the whole story.  You also need Free T3, Free T4, TPOAb andTgAb.  The last 2 are antibody tests.  Your TSH should be close to 1 and both Free's should be within 50-75% of the range to be optimal.  When your thyroid isn't operating optimally you can have a variety of issues, including hair loss.

Another thing to have checked is your ferritin, stored iron.  If that's low it can cause hair loss as well.

Good luck...I hope you get this figured out!

janpell Apprentice
janpell
Posted

I noticed a huge improvement once I started my iron supplements. It still grows very, very slow though but no hair loss anymore.

cristiana Veteran
cristiana
Posted
17 hours ago, janpell said:

I noticed a huge improvement once I started my iron supplements. It still grows very, very slow though but no hair loss anymore.

I think there has been a direct correlation with my anemia and hair thinning.  Unfortunately I have to limit my iron intake as I have a suspected blood disorder but I'm a rare case - under normal circumstances I'd be supplementing much more as I feel it makes quite a difference.   If I were you I'd get your iron tested and then supplement if on the low side - but make sure your levels are monitored as too much iron is a bad thing.

Some other tips I've picked up from my nutritionalist: eat sufficient protein (eggs, chicken, oily fish), fresh fruit and veg.  And from surfing the net:  make sure you are getting enough exercise; also, some people don't use hair products that contain gluten - this seems a bit controversial, but I've changed mine and I think it has helped.    

Also - are you sure your food isn't being cross contaminated as I have heard some people shed hair if they are glutened?

On that tack - something I'd love to know from other celiacs who have problems with oats (most celiacs don't) is if they feel that oats have ever caused hair loss, in the way that gluten has caused it?

Anyway, do let us know if you find any answers!

 

  • 6 months later...
Feesa Apprentice
Feesa
Posted

OMG I think you have been talking to me, I have found in the last 2 months my hair is falling out like crazy!! I am afraid of the brush now because all it does is make me cry, After reading everyone else's comments I am going to make a Dr apt and get the TSH  tests done, Sorry to hear you are going threw this. But I will say it helps people understand that they are not alone.. Thank you so much for sharing your story.   :)

vonpop626 Newbie
vonpop626
Posted

has anyone heard about this ...Low-Dose Naltrexone (LDN) and that it can help with celiac?

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted
2 hours ago, vonpop626 said:

has anyone heard about this ...Low-Dose Naltrexone (LDN) and that it can help with celiac?

 

I've read that some people with Crohn's Disease use it and think it can help them.  But I've never read about it being used for celiac disease.

cyclinglady Grand Master
cyclinglady
Posted
5 hours ago, vonpop626 said:

has anyone heard about this ...Low-Dose Naltrexone (LDN) and that it can help with celiac?

 

Not for celiac disease.  There are some alternative sites promoting it for autoimmune issues, but no studies have been made to my limited knowledge (I am not a doctor).  Besides the side effects are GI issues!  Not great if you already have a damaged gut. 

I assume you are concerned about hair loss?  How long have you been gluten free?  Have other I issues ruled out?  

vonpop626 Newbie
vonpop626
Posted

one year!

cyclinglady Grand Master
cyclinglady
Posted
5 hours ago, vonpop626 said:

one year!

Okay, a year of being gluten free.  When was your last celiac antibodies test taken?  It should be done annually or more often if you are having issues.  It can help determine if you are actually diet compliant.

Open Original Shared Link

Ruling out celiac disease as the culprit would be helpful as your hair loss might be related to another autoimmune issue or illness.  

Autoimmune thyroid is commonly linked to celiac disease and if you are hypothyroid that can contribute to hair loss too.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,634
    • Most Online (within 30 mins)
      7,748
    AmyMcG
    Newest Member
    AmyMcG
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Popcorn pain

      By trents · Posted

      Welcome to the forum, @JenFur! You must be relatively new to the celiac journey. I wish it were as simple as just having to cut out gluten and all our gut issues magically disappear. It is very common for those with celiac disease to develop intolerance/sensitivity to other foods. Often it is because the protein structure of some other foods resembles that of gluten. Sometimes it is because damage the damage done to the gut lining by celiac disease wipes out cells that produce enzymes needed to break down those foods. Sometimes it is because the "leaky gut syndrome" associated with celiac disease causes the immune system to incorrectly identify other food proteins as threats or invaders. The two most common non-gluten foods that cause trouble for a lot of celiacs are dairy and oats. But soy, eggs and corn are also on that list. Sometimes these non-gluten food intolerances disappear with time and the healing of the villous lining of the small bowel.
    • JenFur
      Popcorn pain

      By JenFur · Posted

      I love popcorn but it doesn't love me.  Right now my gut hurts and I am bloated and passing gas.  Am I just super sensitive. I thought popcorn was gluten free 🤔 
    • trents
      Type 1 diabetes (4year old) and positieve ttg

      By trents · Posted

      Welcome to the forum, @marinke! "Type 1a diabetes (DM1) is associated with an increased risk of celiac disease (celiac disease) (1)." from: https://diabetesjournals.org/care/article/35/10/2083/38503/IgA-Anti-transglutaminase-Autoantibodies-at-Type-1 "The prevalence of celiac disease (celiac disease) in children with type 1 diabetes (T1D) is 5.1%, and it is often asymptomatic (1)." from: https://diabetesjournals.org/care/article/48/2/e13/157637/Diagnostic-Outcomes-of-Elevated-Transglutaminase So, this is 5x the rate found in the general population.
    • Mari
      Long term recovery

      By Mari · Posted

      Hi James47, You are less than 2 years into your recovery from Celiacs.  Tell us more about the problems you are having. Do you just want to get rid of belly fat or are you still having symptoms like gas and bloating.    For symptoms you may need to change your diet and take various supplements that you cannot adsorb from the foods you eat because of the damage caused by the autoimmune reaction in your small intestine. 
    • marinke
      Type 1 diabetes (4year old) and positieve ttg

      By marinke · Posted

      My daughter (4 years old) has type 1 diabetes since she was 1. Therefore, every year a screening is done. We live in the Netherlands. Every year the screening was fine. This year here ttg is positive, 14, >7 is positive. IGA was in range. Could the diabetes cause this positive result? Or the fact that she was sick the weeks before the brood test?
×
×
  • Create New...