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safest foods


Flower Fairy

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Flower Fairy Rookie

I would like to know what to stick with to be safe when eating out. Part of my job is to take the man I care for to his favorite restaurant 3 days a week. we only go to 2 places.  a family restaurant (which knows I have celiac ) or he wants five guys. I tend to stick with scrambled eggs or bring my own salad dressing for salad. My patient doesn't really for his disease understand my disease. he only understands I am allergic and gets very nervous if I don't eat.  should I stick with egg skillets. the restaurant does have gluten-free but uses same waffle iron for both so that's a no. 


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Personally I only trust two places in my hometown. A chilis where I know the manager and have talked with them and a sushi restaurant. I stick with salads, steamed veggies, and in the case of how they do it I can have the roasted veggies, and the special roasted fish. They use a conveyor broiler to roast the veggies and fish on a foil sheet so no cross contamination. As for the steamed veggies if the restaurant knows and uses a dedicated steamer/colander it is fine. Note some places have been known to use a gluten laden colander from pasta, or even do it over boiling pasta (YES this has happened to a few of our members) Ask and talk with the manager and make sure they understand the issues with cross contamination. Ask for no seasonings, and bring your own that you know are safe. My local ones let me bring my own sides and dishes as long as I order something. I do this to feel normal sometimes.

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    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
    • Philly224
      Thanks again everyone! Twenty mins on here way more helpful than both Dr's combined 😅
    • trents
    • trents
      I would go for four weeks to ensure a valid test, if you can tolerate it, that is.
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