Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerance Symptoms

Felidae

By Felidae
in Related Issues & Disorders

Recommended Posts

Felidae Enthusiast
Felidae
Posted

For those of you with casein intolerance, what kinds of reactions do you get and how long do they last if you consume casein?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted
For those of you with casein intolerance, what kinds of reactions do you get and how long do they last if you consume casein?

I get horrible adominable cramping and nausea. When the casein is with dairy then it is even worse. I will walk the floor all night long in the middle of the night, and add nausea to even more extreme abdominable cramping and cold sweats.

tarnalberry Community Regular
tarnalberry
Posted

Constipation (in the "very dense and hard" sense) and a not-so-lovely exacerbation of my hemmhroids. Bleh. Headache and abdominal achiness are also usually par for the course. It's nothing awful (besides the hemmhroids), but it's definitely better to avoid it!

Felidae Enthusiast
Felidae
Posted
  • Author

Thanks for your responses. I ate aged hard cheese two days in a row after being cf for about a month because I wanted to see if I actually was casein intolerant. The first day was no problem except for some abdominal disconfort and gas. The second day I had worse abdominal discomfort and many bm's. I am still not feeling well today, day three. So I was just curious how other people react and if what I am experiencing is due to casein.

Rusla Enthusiast
Rusla
Posted

You could have problems with both casein and dairy.

jenvan Collaborator
jenvan
Posted

I pretty much have the same reactions as Tiffany. Constipation is the biggie.

  • 4 weeks later...
Nancym Enthusiast
Nancym
Posted

For me my abdomen swells, the winds rise then I either get constipation or near-diarrhea (lots of bm's that are nasty and sticky). Funny thing is, I never noticed it before, I thought it was just normal for me. But once I got the diagnosis, I went on one last ice cream binge and could feel it all happening!

I have only been casein free for 1.5 days and already the bloating is going away.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tammy Community Regular
tammy
Posted

Mainly my stool changes. It gets skinny(squiggly) and semi-digested looking. (Sorry) It seems as though I can eat a little butter and a little yogurt and a little cheese. But ice cream and milk and large quantities of dairy are not good.

Ann1231 Enthusiast
Ann1231
Posted

I get severely constipated and hemorrhoids too with any and all dairy/casein products. I feel really bloated and nauseaous for a few hours after drinking milk, cheese makes me gassy. They're just not worth it for me!

Ann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,801
    • Most Online (within 30 mins)
      7,748
    Bobby L Sanchez
    Newest Member
    Bobby L Sanchez
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Hidden Gluten in distilled vinegar

      By Scott Adams · Posted

      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Scott Adams · Posted

      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      Gluten free/ non dairy , low calorie pudding

      By Scott Adams · Posted

      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      Royal Caribbean Only, Please

      By DebJ14 · Posted

      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
    • Manaan2
      Hidden Gluten in distilled vinegar

      By Manaan2 · Posted

      Hi Trents-Thanks for reading and sharing insight.  We need all the help we can get and it's super appreciated.  She is currently dairy, soy and oat free and those have mostly been completely excluded from her diet since the diagnosis (we tried going back on dairy and oats at different times for a bit, didn't see a significant difference but have now cut out again just to be extra safe since her issues are so persistent.  We did cut eggs out for about 3 months and didn't notice significant difference there, either.  The only one we haven't specifically cut out completely for any portion of time is corn, however, we've kept it minimal in all of our diets for a long time.  She definitely goes 3-4 weeks without any corn products at times and still has issues, but I'm guessing that's not long enough to confirm that it isn't causing issues.   We could definitely try to go longer just to double check.  Thanks again!   
×
×
  • Create New...