Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

tanya  crape

Recommended Posts

tanya  crape Newbie

dont seem to be getting  any  working treatment creams steroids antibiotic nothing seems to be working please help

17619805_1612370868776323_769524839_n.webp

17619662_1612374872109256_2078366530_n.webp

17619584_1612367902109953_664404464_n.webp

17619540_1612371012109642_1120195787_n.webp

17619085_1612375168775893_735304483_n.webp

17619123_1612371062109637_1609452489_n.webp

17619416_1612371018776308_481908965_n.webp

17619060_1612374858775924_1596595210_n.webp

17619123_1612371062109637_1609452489_n.webp

17619085_1612375168775893_735304483_n.webp

17579933_1612375068775903_905520550_n.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome Tanya!  

I know you must be suffering so!  Do you know if this is a celiac rash?  I do not have DH, but many of our members do.  Here is more information and possible treatment:

Open Original Shared Link

Open Original Shared Link

 

squirmingitch Veteran

Tanya you are clearly suffering but you told us nothing really. Have you been dx'd with celiac disease? Or have you been dx'd with dermatitis herpetiformis? If so, are you eating gluten free? For how long have you been eating gluten free?

  • 2 weeks later...
knitty kitty Grand Master

Does the rash get worse when exposed to sunlight?  It looks like it is on your neck, hands, forearms, shins and feet.  Does the rash occur anywhere else? Or just to areas exposed to sunshine?

I had Pellagra, a vitamin deficiency disease caused by a lack of Niacin, B3.  I had a similar rash on exposed areas that worsened when I was outside in the sun.  The areas that had the rash also became pigmented darker, especially my arms and hands.  This is called the gauntlet of pellagra.  The rash around the neck is called Casal's necklace.  I was tried lotions, ointment, and creams but nothing helped.  If it is Pellagra,  (check with your doctor first) you'll need to take supplementary Niacin (nicotinamide), tryptophan, and a good B Complex vitamin.  

Other symptoms of Pellagra (the four D's of Pellagra) dermatitis, diarrhea, dementia and death.  Many doctors are not familiar with Pellagra and don't recognize the symptoms. Often Pellagra is associated with alcoholism because that causes malabsorption similar to Celiac Disease.  

I began to experience relief from the itching within a few days of starting niacin supplements.

Hope this helps.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

    2. - trents commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

    3. - Debado commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

    4. - trents commented on Debado's blog entry in Debado
      10

      Gluten migranes at night


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,795
    • Most Online (within 30 mins)
      7,748

    Akornik
    Newest Member
    Akornik
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Brandy969
    • knitty kitty
      Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine.  Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine.  Our bodies make histamine, an important neurotransmitter.  Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles.   Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine.  A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods.   Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines.   Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels.  Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine.  DAO from beef or pork kidney is an over-the-counter supplement that can be taken.   Riboflavin B2 is very helpful for relieving migraines.   Have you been diagnosed with Celiac Disease or suspect you have it?   Happy Holidays!
    • knitty kitty
      @ABP2025, Have you thought about having a DNA test to check for known Celiac genes?    I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood.  See article below. Celiac disease affects the absorption of nutrients,  including vitamins and minerals.  Your symptoms may be associated with thiamine deficiency.   Migraines and peripheral neuropathy, phimosis (yes, even this), and white spots on the brain are seen in thiamine deficiency.  Celiac disease disrupts the absorption of all the essential nutrients, but thiamine can be quickly depleted, in as little as three days.  Thiamine deficiency can occur even if blood tests show normal levels.  Thiamine deficiency can affect antibody production.      
    • Debado
      Anybody ever heard of getting a migrane from gluten and coconut oil ONLY at night?   If I consume gluten or coconut oil, even in the morning,  I will get a migrane. But not until half way thru the night. I don't get this. Why at night? Why not right after I eat?
    • trents
      Early on,  DQ2 and DQ8 were the primary genes that have been connected to the potential to develop celiac genes but more recent genetic research suggests there may be more.
×
×
  • Create New...