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tanya  crape

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tanya  crape Newbie

dont seem to be getting  any  working treatment creams steroids antibiotic nothing seems to be working please help

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cyclinglady Grand Master

Welcome Tanya!  

I know you must be suffering so!  Do you know if this is a celiac rash?  I do not have DH, but many of our members do.  Here is more information and possible treatment:

Open Original Shared Link

Open Original Shared Link

 

squirmingitch Veteran

Tanya you are clearly suffering but you told us nothing really. Have you been dx'd with celiac disease? Or have you been dx'd with dermatitis herpetiformis? If so, are you eating gluten free? For how long have you been eating gluten free?

  • 2 weeks later...
knitty kitty Grand Master

Does the rash get worse when exposed to sunlight?  It looks like it is on your neck, hands, forearms, shins and feet.  Does the rash occur anywhere else? Or just to areas exposed to sunshine?

I had Pellagra, a vitamin deficiency disease caused by a lack of Niacin, B3.  I had a similar rash on exposed areas that worsened when I was outside in the sun.  The areas that had the rash also became pigmented darker, especially my arms and hands.  This is called the gauntlet of pellagra.  The rash around the neck is called Casal's necklace.  I was tried lotions, ointment, and creams but nothing helped.  If it is Pellagra,  (check with your doctor first) you'll need to take supplementary Niacin (nicotinamide), tryptophan, and a good B Complex vitamin.  

Other symptoms of Pellagra (the four D's of Pellagra) dermatitis, diarrhea, dementia and death.  Many doctors are not familiar with Pellagra and don't recognize the symptoms. Often Pellagra is associated with alcoholism because that causes malabsorption similar to Celiac Disease.  

I began to experience relief from the itching within a few days of starting niacin supplements.

Hope this helps.

 

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    • trents
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    • MI-Hoosier
      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
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    • MI-Hoosier
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    • Sunshine4
      Many apologies for somehow changing your first name Scott! 
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