Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whats the endoscopy like?


KathleenH

Recommended Posts

KathleenH Enthusiast

Hi guys, tomorrow is my endoscopy what should I expect? They didnt really tell me.  Do they fully sedate you or is it more like a twilight zone? How long does it take? How long will I feel loopy after? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tessa25 Rising Star

If you've ever been put under, it's like that. You go into the hospital, put on the gown, get an IV inserted, wait. Get wheeled into the operating room, put under, wake up in recovery. Always feels weird to me going to sleep in the operating room and waking up in a different room 1 second later. :) Easy peasy.

 

KathleenH Enthusiast
10 minutes ago, tessa25 said:

If you've ever been put under, it's like that. You go into the hospital, put on the gown, get an IV inserted, wait. Get wheeled into the operating room, put under, wake up in recovery. Always feels weird to me going to sleep in the operating room and waking up in a different room 1 second later. :) Easy peasy.

 

Okayy so it is like real anethesia? I know sometimes with colonoscopys they do like a light sedation. I was kinda hoping for that. Haha I always cry from anesthesia.. just a weird reaction I have. This should be a breeze though Im not too worried.. I've had two other major surgeries this year. Hopefully with this diagnosis I can make changes to my diet and prevent future problems. Thanks for replying! 

GFinDC Veteran

I was totally out for my recent endoscopy + colonoscopy.  But for just an endoscopy, I am not sure what they do.  Your doctor's office can tell you.  If you request it, they may do full anesthesia.  But you will probably need someone to drive you home.

Jmg Mentor
10 minutes ago, KathleenH said:

Okayy so it is like real anethesia? I know sometimes with colonoscopys they do like a light sedation. I was kinda hoping for that. Haha I always cry from anesthesia.. just a weird reaction I have. This should be a breeze though Im not too worried.. I've had two other major surgeries this year. Hopefully with this diagnosis I can make changes to my diet and prevent future problems. Thanks for replying! 

Here in the UK I was offered a choice, light sedation or nothing more than a spray for the throat. I went with the latter so that I could drive myself home afterwards. 

tessa25 Rising Star

I was given Propofol(sp?). That's anesthesia. It's light because it's only for 15 minutes so any reaction you typically have should be less of a reaction.

KathleenH Enthusiast
1 minute ago, tessa25 said:

I was given Propofol(sp?). That's anesthesia. It's light because it's only for 15 minutes so any reaction you typically have should be less of a reaction.

Hmm so it seems like everyone has a different experience. I guess ill find out tomorrow lol. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Went in they took my vitals, had me change into a gown, hooked me up to a IV, oxygen nose thing, and a machine to monitor my heart and BP. Wheeled me in had me lay on my side and used anesthesia via the IV to put me to sleep. Came out of it feeling great, no issues and felt oddly better rested then I do with a whole nights sleep.

All in all I would say the fasting, cleanse, and all the prep is 8-10 times worse the the procedure itself. I had no after effects with my digestive tract either.

TexasJen Collaborator

Generally, you are given conscious sedation for endoscopy (as opposed to general sedation). In general sedation, they give you meds enough to stop your own breathing. Then they hook you up to a ventilator. In conscious sedation, you are breathing on your own, but are usually given a medicine that helps you forget what happened. You can wake up during the procedure with either type (it's more likely with conscious sedation) but typically you don't remember it if you do. 

I didn't remember a thing. I was able to think mostly clearly within 5-10 min of waking up, felt well enough to stand up and walk to the car, but went home and slept for a couple of hours...... Woke up feeling a bit groggy for a couple more hours and hungry!

Good luck!

KathleenH Enthusiast

Hey guys so I had the endoscopy today. When my doctor was going into it he made it sound like all of a sudden he didnt think I had celiacs. He said my antigen levels were elevated but not super high.  When I woke up he told me that he didnt see anything that indicated celiacs with the naked eye. So he took like 5-6  biopsies  and he will see how those look. He said if it comes back negative they are going to do a DNA test to see how predisposed my DNA is. Why would he all of a sudden think I dont have it? I feel so sad today. I just want to feel better. :'( did any of you have a normal looking intestine but your biopsy was postive?

Ennis-TX Grand Master

The villi damage can not be directly seen but under a microscope. IF the damage is really bad there can be obvious signs such as flattened folds, discoloration, inflammation, ulcers, and mucus. NOW you could have non celiac gluten intolerance, which has many of the same sickening symptoms as celiac but the villi damage and very high antibodies might not be present. In which case a gluten-free diet is also the cure and needs to be strictly followed.    Either way you might try the gluten-free diet for a months and see how your improve.

plumbago Experienced
18 hours ago, Ennis_TX said:

The villi damage can not be directly seen but under a microscope. IF the damage is really bad there can be obvious signs such as flattened folds, discoloration, inflammation, ulcers, and mucus. NOW you could have non celiac gluten intolerance, which has many of the same sickening symptoms as celiac but the villi damage and very high antibodies might not be present. In which case a gluten-free diet is also the cure and needs to be strictly followed.    Either way you might try the gluten-free diet for a months and see how your improve.

The gastroenterologist who did my endoscopy met with me directly after the procedure and indicated that he strongly suspected Celiac based on what he had just seen. So I think sometimes docs can tell during the procedure whether there is villi blunting or not. Microscopic examination then confirms it.  There are youtube videos showing normal vs flattened villi.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,680
    • Most Online (within 30 mins)
      7,748

    Paul Witucki
    Newest Member
    Paul Witucki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BoiseNic
      I have the same problem. No matter what I eat, I seem to get a break out every 1 to 2 months. I do not do oats, citrus fruits, apples, onions and other foods also, as those cause reactions. The only time I have zero problems is when I fast. The only staple grain I have is quinoa, as that doesn't seem to cause me issues. I have linked mine to a microbiome imbalance. I am currently on month 3 of Skinesa. It's supposed to take 3 months before seeing results. I guess we'll see.
    • growlinhard1
      I'm having all the celiac sx ~ frequent gas and belching, major constipation which is new, feeling extremely full after eating a small amount and then feeling starving again in an hour or two, frequent urination, itchy skin, hair thinning, stomach bloating, unexplained weight loss of 15 pounds to date, major depressive episodes, irritability and feel weak and unwell all the time. I had a colonoscopy in January which showed a large fold with inflammation that was biopsies. The pathology came back as inflammation. At my gastroenterologist colonoscopy follow up visit, it was decided that I needed a egd with biopsy to see if I have ulcers or celiac. I should also say I have had psoriasis since I was 16 and I'm now 63. Since I have been scouring the internet looking for what may be happening, the doctor mentioning celiac and seeing how my symptoms match it so closely I decided to start cutting out gluten. My biopsy is in a month and if not eating gluten makes me start to feel better, why would I want to continue feeling soo terrible by eating it for a diagnosis? How would a diagnosis benefit me enough to prolong my absolute misery for another month? What does everyone think? Am I missing something?
    • knitty kitty
      While not all Celiac react to Zein, the protein in corn, some Celiac do react to maize similarly as they react to gluten.  And I'm one of them.     Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • trents
      @Brook G, would you explain what you mean when you say, "I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction." Quinoa is naturally gluten free. However, it is possible to have been cross contaminated with gluten-containing grains and the seed coat lectins can make some people (like me) quite ill if it is unwashed quinoa. 
    • Brook G
      Years ago when I told my GI specialist that I'd like to be tested for Celiac he told me that being I had been gluten-free for over a year, I would test negative.  In order to get an accurate reading I would have to eat a full gluten diet for 5 weeks.  I agreed to do it and on the way home I stopped at the grocery store and stocked up on my favorite breads, deserts, and every other gluten product that I love and hadn't eaten for over a year. Five days later I was in agony!  I was bloated, I stopped going poo, I could barely move my joints and I felt like my hands had been crushed in a car door.  I was bent over and couldn't stand straight, and I moaned constantly.  I had a very difficult time sleeping because of the pain. I lost nearly 20lbs that I didn't need to loose, and I had to go on a liquid diet to reset my digestive track.  I was sick for weeks. Because of this experience, I can't recommend that anyone put themself through the change of eating a gluten free to eating a full gluten diet.  For me, it wasn't worth getting an official diagnoses.  I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction. Most of us have similar symptoms, but they do vary.  I'm not qualified to diagnose your daughter, but some of her symptoms fit the diagnoses.  She may be getting gluten from somewhere and not realize it.  I do recommend a good GI specialist and testing other than the blood test which she would have to eat gluten for.
×
×
  • Create New...