Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Losing too much weight


Kat18

Recommended Posts

Kat18 Apprentice

Well I officially hit the "underweight" status of BMI charts a few days ago. I have BMI of 18.5 I think. I am 5 foot 7 1/2 inches and weighed 119 the other day. I'm pretty weirded out about it & trying not to be totally scared but it IS scary to me. I weighed up to 130-135 pounds until 6 months ago when I cut out gluten, then dairy & I don't eat meat. I am actually testing if I can have some sheeps yogurt (I know that sounds weird but who cares at this point?). I need fat. Nuts have been making me sick. I'm still trying them but then I have to take a break because I get headaches and swollen eyes. I'm trying hemp hearts right now. I tried some eggs today but I'm pretty sure my body is not happy about that. I might be able to eat whites a bit better than whole eggs but that again reduces the calories I could get from a whole egg. By the way, can eggs get gluten on them? I just wonder because some eggs make me feel much worse than others.

  Is it common to lose a lot of weight when you stop consuming gluten and dairy? Until just yesterday I was not having any dairy for the last few months. I might be able to get raw goats milk from a local family that has a small amount of them. I'm a little scared but more scared of losing more weight. I can't get that goats milk for at least a month though and goats milk has made me sick before from the store.

I can't eat avocados or bananas either. I'm okay with most root vegetables, asian vegetables like bok choy and daikon radish, Pukka teas (some of them) and assorted fruits. I'm going to try making salad dressing from the sheeps yogurt and add hemp seeds, olive oil ( a small amount, that makes me a bit sick too if I have too much), and raw apple cider vinegar. I hope I can eat a little eggs. I can't eat beans so far but I'm going to try a certain gluten free brand to see if thats okay.

I'm going to try a little garden this spring/summer/fall and see if I can eat more stuff if I grow it myself. I can eat brown basmatti rice now ( I couldn't before when I still ate gluten) and I"m going to try making my own rice milk. Then I could try making some smoothies. It's SOOO hard to get the caloried to even maintain the low weight I am now! I use cron o meter and I some days get 1/4 or maybe 1/2 of what I should. Nut butters also making me sick- I think it's the fat and my gut is not ready for it yet.  I sleep more than normal right now and feel weak sometimes. Other times my brain feels much better. I'm going to try increasing vit D based on some comments on here and I was slightly low last blood test. Ugh. It's so exhausting to even eat now, I hate it. :angry: I just want to go get a pizza or something. I'm happy to cook but it's so limited what I can use. I tried some garbanzo bean flour and got sick but I'm really wondering if it was contaminated from what I've read about bean/legumes being rotated with wheat and often then stating they are gluten free. I can feel all the vertebrae in my back now too which is kind of creepy.  Sorry that was so long.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

...OMG, your diet sounds a bit like mine, olives, dairy, meat are all nos for me and egg yolks make me sick, same with peanuts ,and a whole lot of other foods recently had to cut out carbs due to ulcerative colitis so no grains, starchy veggies, or fruits for me ....hmm  seems you need more fats. How are you with the following, Coconut, Pumpkin Seeds, sacha Inichi seeds,  Sunflower Seeds, Chocolate? I find Pumpkin seed protein powder is a god send for keeping on weight. Also be careful with hemp, most places it is not gluten free, brands like nutiva, mantoba harvest etc will state that theirs might have gluten due to the way it is grown and where they get it. Only safe ones I have found are Gerbs allergen friendly foods. They also sell sunflower kernels, chia seeds, flax seeds, pumpkin seeds. Taking protein powder throughout the day in a smoothie of coconut yogurt and a nut or seed milk might help you out like it does me. Note they also make sunbutter and various other seed butters that are hypo allergenic. .....I can give you a few list of what I consume if you wish and some nice hypo allergenic vegan protein powders

Oh if you want that pizza quick fix. use a portabello mushroom turn it upside down pop off the stem, and scrape some of the gills off, top it with your sauce, cheese, and toppings. Bake in a preheated oven at 400F for 10-20min

They make plenty of vegan cheeses, Follow your heart, julian bakery, daiya, and lisanatti are all decent in their own right.

I can give you links on where to track down some other snacking ideas etc.......going to be honest your one of those cases where I want to work for you as a chef sit down draw up a list of foods and cook you a meal lol.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,025
    • Most Online (within 30 mins)
      7,748

    toyatang
    Newest Member
    toyatang
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
    • Bebygirl01
      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
×
×
  • Create New...