Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is it Celiac or not?

Washingtonmama

Recommended Posts

Washingtonmama Contributor
Washingtonmama
Posted

 Since I was diagnosed with Celiac disease, we had our two youngest (ages 11 and 16) tested. Our 16 year old is fine, our 11 year old had a high IgA but all the other tests were normal. Except he is anemic. Honestly, my brain hurts trying to figure this all out. I never did figure my own out. His doctor, who we love, says he thinks he is at risk for one day being diagnosed, but for now seems fine. The GI docs in our area are booked for months. What do these test results mean?

CELIACDP 

 
  IgA 
183
 114.0-339.0 mg/dL 

 
  Gliadin Peptide Ab IgA 
17.2
 Units 

 
  Gliadin Peptide Ab IgG 
3.8
 Units 

 
  Tissue Transglutaminase IgA 
20.9High
 Units 

 
  Endomysial Ab IgA Scn 
Negative
 

 
  Celiac Panel Interp 

 
 
Results suggest the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis. Diagnosis should not be based on serologic findings alone. Results should be used in conjunction with other clinical findings and biopsy results for a diagnosis of gluten sensitive enteropathy

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Keep him on gluten and make an appointment with the GI doctor. You could ask to be put on the cancellation list if you can get there on realitively short notice.  I hope you can get some answers soon.

pschwab Enthusiast
pschwab
Posted

Ask your son's doctor to call the gi dr for an appointment. We were told they were booked for the next couple months, and there was no way I was waiting that long. I called almost in tears to speak with our pediatrition about what to do for my son, and he called and got us an appointment for the following week. Amazing how they found that opening (eye roll). We had full celiac panels and genetic testing done on our other kids to check their probability of developing celiac. The combo (or lack there of) of the genes assesses the chance they have of developing celiac. Do keep him eating gluten until you can get further info though. If he needs a biopsy, he has to continue the gluten unfortunately. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,565
    • Most Online (within 30 mins)
      7,748
    StephanieNewcomb-A
    Newest Member
    StephanieNewcomb-A
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      They've not made that call at this point. They say it looks more like Celiac's than common variable immune deficiency.  They say to get a positive diagnosis another endoscopy is needed after I've been on gluten-free diet awhile.  So, waiting for more input from Docs'.
    • Tazzy11
      Pathology results - coeliac positive?

      By Tazzy11 · Posted

      Hi All! I recieved some coeliac serology test results but I am yet to see my g.p can anyone please confirm what these numbers mean?? Tissue transglutaminase IgA - 3 units (<20) Deamidated Gliadin Peptide IgG - 26H units (<20)   My IgG is high, does this mean it is positive?   
    • cristiana
      Getting rid of the belly bloat

      By cristiana · Posted

      Karen, welcome to the forum. Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve.  You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating. The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.   Cristiana
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Thanks very much for the in depth reply!!! I'll discuss it with my doctor next week!
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin is quite high (2,5 and 0,6). My ALT is also slightly elevated. I have been doing a gluten free diet quite strict although I did eat some gluten in the previous weeks.  "Could my blood result be this way because of gluten sensitivity and me being not strict enough? My echo showed no problems with my liver or pancreas. My bile ducts were fine too (although I don't have a gallbladder anymore).  "What to do??? Could this be gluten related?"   Your bilirubin is high.  The liver breaks down bilirubin.  The liver needs Thiamine to break down bilirubin.  Without sufficient Thiamine, bilirubin is not broken down and escapes into the bloodstream. High levels of bilirubin suppress the immune system.  High levels of bilirubin suppress the production of white blood cells, including anti-gluten antibodies.  The suppression of your immune system by high bilirubin could be the explanation for false negative Celiac antibody testing.  Thiamine is needed for antibody production.  Thiamine deficiency can cause false negatives on Celiac antibody tests.  If you are not making a lot of antibodies, you won't have much damage to the small intestine.   Your ALT is high.  The liver produces ALT.  When the liver does not have sufficient Thiamine, the liver produces more ALT that escapes into the bloodstream.  Elevated ALT is seen in thiamine deficiency. Your Lipase is high.  Lipase is produced in the liver and pancreas.  More Lipase is released by both in thiamine deficiency. Your gallbladder has been removed.  Gallbladder dysfunction is common in thiamine deficiency. Your Zinc is low.  Zinc absorption is enhanced when Thiamine is present.  Zinc is not absorbed well in thiamine deficiency. Your Folate is low.  Celiac Disease causes malabsorption of all the essential nutrients we need for health, the eight B vitamins, including Thiamine, the four fat soluble vitamin, Vitamin C and minerals like Zinc and Magnesium.  Thiamine stores can be depleted in as little as three weeks or even as quickly as three days.  Thiamine deficiency symptoms can wax and wane depending on how much thiamine is consumed that day.   If a high carbohydrate is eaten regularly, additional Thiamine is needed (500 mg per 1000 calories). Anxiety and depression are symptoms of thiamine insufficiency.  The brain just thinking  uses as much thiamine as muscles do when running a marathon.   I have had thiamine deficiency symptoms like you are experiencing.  My doctors did not recognize the symptoms of thiamine deficiency.  They just prescribed pharmaceuticals to cover up the symptoms which only made things worse.  I had a lot of nutritional deficiencies.  I ended up getting a DNA test to check for known genes for Celiac.  I have two Celiac genes.   Have you had a DNA test for Celiac genes?   I took Benfotiamine, a form of thiamine that promotes intestinal healing, and a B Complex to correct my deficiencies.   High doses of thiamine need to be taken to correct deficiency.  Talk to your doctor about administering thiamine intravenously.  Thiamine is safe and nontoxic even in high doses.  Thiamine is easily excreted in urine if not needed.  Improvement of symptoms should be seen within a few hours to a few days.  No harm in trying.  Process of elimination, etc.   Talk to your doctor and nutritionist.  Testing for nutritional deficiencies should be done before taking vitamin supplements, otherwise the vitamin supplements already taken will be measured.   I hope this helps you on your journey. References: https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6662249/#:~:text=CONCLUSION%3A,in men than in women. https://pubmed.ncbi.nlm.nih.gov/24923275/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6040496/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3772304/#:~:text=Based on the patient's history,were also no longer present. https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].  
×
×
  • Create New...