Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Travelling to the least gluten-free friendly place - advice pls!


JesLin

Recommended Posts

JesLin Rookie
(edited)

Hi guys! I'm newly diagnosed (just over a month ago) and before my diagnosis booked a trip to Nepal and Tibet - both of which are bound to be super NOT gluten free and likely not gluten aware. 

I know when travelling elsewhere it is recommended to get fresh produce etc from the grocery store and bring your own food. However, grocery store shopping will be next to impossible (in Tibet especially - I will be on a small tour driving through some very remote places!) and though Nepal may be slightly easier, I think it will be a challenge.

I am fine to bring my own staples but note this trip is backpacking style and I will have barely enough room for (non-food) necessities so I unfortunately cannot bring an extra suitcase filled with food. I also doubt I will have access to microwaves for the Tibet portion of the trip.

Can anyone offer the following advice:

- have any of you traveled to these places or somewhere similar and how did you manage?

- with limited space what would be the best staples to bring/what will stretch the farthest but take up the least space (I'm thinking a big bag of gluten-free oats? should be easy to get boiling water in most places)

- CC issue is gonna be huge but what do you think is the safest bet to eat in this part of the world? Should I just live off steamed rice for the two weeks and take lots of vitamins and hope I can survive with the lack of nutrients? I'll try and add safe fruit and veg at every chance I get obviously.. (Note: fresh veggies are very scarce in Tibet - main diet it dumplings/momos, rice and yak meat - I assume the meat has a high chance of being marinated in unsafe soy sauce)

- are there any pills/supplements/natural remedies to help me cope if I do get glutened (which is likely)? I heard of GliadinX - anyone have success with this? Also thinking maybe this would be a good time to invest in a Nima?

Thank you so much! Any advice will be really helpful! :)

(Also, please no comments on how I should cancel the trip, how getting glutened once will re-damage my intestines, how I should pack less clothes to fit more safe food etc! I know there is no beating Celiac and all the crappy consequences to eating gluten (I've been addicted to this website since getting diagnosed and have learned so much from you guys!) and that this is probably the worst vacation for a celiac lol. But this trip has been a life dream of mine and we actually booked it in lieu of having a wedding so for this reason I can't (won't) cancel it :) I know I'm taking a huge risk and many would disagree with my decision but please positive comments on how I can be best prepared and reduce the risk/reduce the symptoms will be really appreciated!)

Thanks :)

Jes

 

Edited by JesLin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kelloramma Rookie

Hello,  I am in a job that I travel every 3rd week...It gets challenging becuase many times I am doing audits of warehouses and they dont even have a cafeteria.  I usually bring gluten-free protein bars as a back up if I have to miss a meal and then eat when I get back to the hotel.  Just a suggestion because they certainly fill me up....Have a safe trip...Kelly

 

kareng Grand Master
(edited)

If you can get plain rice, go for it.  Plain fish, meat, too.  Maybe beef jerky and protein bars ?  

I wouldn't bother with the Nima- it is giving a lot of false positives

Edited by kareng
RMJ Mentor

I was in the hospital once for six days and had nothing except the glucose in the iv solution- and I survived.  Since it is only for two weeks I wouldn't worry about a balanced diet, or getting every nutrient every day.   Some celiacs react to oats, but lots of steamed rice would be good for getting calories.  If you took nuts that would add both fat and protein in a relatively small space per calorie.  Then just add a gluten free multivitamin/mineral.

Sounds like a great trip - hope you have a good and healthy time.

kareng Grand Master
mark790 Newbie
On 4/27/2017 at 2:19 PM, JesLin said:

Hi guys! I'm newly diagnosed (just over a month ago) and before my diagnosis booked a trip to Nepal and Tibet - both of which are bound to be super NOT gluten free and likely not gluten aware. 

I know when travelling elsewhere it is recommended to get fresh produce etc from the grocery store and bring your own food. However, grocery store shopping will be next to impossible (in Tibet especially - I will be on a small tour driving through some very remote places!) and though Nepal may be slightly easier, I think it will be a challenge.

I am fine to bring my own staples but note this trip is backpacking style and I will have barely enough room for (non-food) necessities so I unfortunately cannot bring an extra suitcase filled with food. I also doubt I will have access to microwaves for the Tibet portion of the trip.

Can anyone offer the following advice:

- have any of you traveled to these places or somewhere similar and how did you manage?

- with limited space what would be the best staples to bring/what will stretch the farthest but take up the least space (I'm thinking a big bag of gluten-free oats? should be easy to get boiling water in most places)

- CC issue is gonna be huge but what do you think is the safest bet to eat in this part of the world? Should I just live off steamed rice for the two weeks and take lots of vitamins and hope I can survive with the lack of nutrients? I'll try and add safe fruit and veg at every chance I get obviously.. (Note: fresh veggies are very scarce in Tibet - main diet it dumplings/momos, rice and yak meat - I assume the meat has a high chance of being marinated in unsafe soy sauce)

- are there any pills/supplements/natural remedies to help me cope if I do get glutened (which is likely)? I heard of GliadinX - anyone have success with this? Also thinking maybe this would be a good time to invest in a Nima?

Thank you so much! Any advice will be really helpful! :)

(Also, please no comments on how I should cancel the trip, how getting glutened once will re-damage my intestines, how I should pack less clothes to fit more safe food etc! I know there is no beating Celiac and all the crappy consequences to eating gluten (I've been addicted to this website since getting diagnosed and have learned so much from you guys!) and that this is probably the worst vacation for a celiac lol. But this trip has been a life dream of mine and we actually booked it in lieu of having a wedding so for this reason I can't (won't) cancel it :) I know I'm taking a huge risk and many would disagree with my decision but please positive comments on how I can be best prepared and reduce the risk/reduce the symptoms will be really appreciated!)

Thanks :)

Jes

 

Talk to the tour company operator about the tour and your dietary restrictions.  They may have already encountered the issue and know how to take care of it.  See if you can get in touch with the actual tour guide via email before hand too.  It helps immensely.  Take gluten-free bars like Kind bars and don't arrive at any meal hungry.  Not being hungry makes it easier to be careful when selecting food.  

  • 2 years later...
Loreley Newbie

Hi JesLin!

How was your trip? did you do well with the gluten free issue? I'm thinking in a trip to Nepal and Tibet also and I'm a little worry about the Tibet part. Could you please give me some advices?

Thanks!

Lorena


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,726
    • Most Online (within 30 mins)
      7,748

    Sarb
    Newest Member
    Sarb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      I have recently had tests for calprotein in a fecal test has come back apparently high at 2500 and flagged up  stage 3a GKD and GFR  59 and 95 on the serum creatinine the test I was sent for also for milk allergy and celiac hasn't come back yet because it's had to be sent off to a different place I was just wondering if anyone had these addition tests going threw ceilac testing any help would be great 
    • Julie Max
      As far as I know, miso paste is gluten-free and should be added to the Safe List.  And, shouldn't soy sauce be on the Forbidden list?
    • knitty kitty
      @PlanetJanet, Sorry to hear about your back pain.  I have three crushed vertebrae myself.  I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain.  This combination really works without the side effects of prescription and over-the-counter pain meds.  I hope you will give them a try. Here are articles on these vitamins and pain relief... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ And... Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/
    • Scott Adams
      Here is the info from their website. If you don't trust them, you may find products that are labelled "gluten-free," but I don't see any reason to believe there is any gluten in them. Hunt's Tomato Paste: https://www.hunts.com/tomato-sauce-paste/tomato-paste   Hunt's Tomato Sauce: https://www.hunts.com/tomato-sauce-and-paste/tomato-sauce  
    • PlanetJanet
      Hi, trents, Thanks for responding! One book I read is called, Doing Harm, by Maya Dusenbery.  She has wonderful perspective and insight, and it's all research-based.  It's about how women can't get treated.  Everyone should read this!  I wouldn't mind reading it again, even.  She believes that women are so busy taking care of families, working, etc., that we are more likely to ignore our pain and symptoms for longer.  Men have women bugging them to go to the doctor.  Women don't have anyone telling us that.  We don't have time to go.  Providers think we are over-emotional, histrionic, depressed, have low tolerance to pain...Men get prescribed opioids for the same symptoms women are prescribed anti-depressants.  My car crash in January 2020 made going to the doctor a full-time job.  I grew up with 2 rough and tumble brothers, played outside, climbed trees.  I was tough and strong, pain didn't bother me, I knew it would heal.  But do you think I could get treated for back pain--as a woman?  I am so familiar now with the brush-offs, the blank looks, the, "Take your Ibuprofen," the insinuation that I am just over-reacting, trying to get attention, or even, "Drug Seeking."  Took almost 2 years, but what was happening was Degenerative Sacroiliitis.  I couldn't walk right, my gait was off, effected my entire spine because gait was off.  I had braced myself with my legs in a front-impact, slightly head-on crash with someone who made a left turn in front of me from the opposite direction.  I finally had SI Joint Fusion surgery, both sides.  It's not a cure. I have given up on trying to get properly treated.  There is so much pain with these spine issues caused by bad gait:  scoliosis, lithesis, arthropathy, bulged disc, Tarlov cysts.  And I can't take anything because of my bad tummy. Not that I would ever hurt anyone, but I can relate to Luis Mangione who couldn't get treated for his back injury. I feel so alone.
×
×
  • Create New...