Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Travelling to the least gluten-free friendly place - advice pls!


JesLin

Recommended Posts

JesLin Rookie
(edited)

Hi guys! I'm newly diagnosed (just over a month ago) and before my diagnosis booked a trip to Nepal and Tibet - both of which are bound to be super NOT gluten free and likely not gluten aware. 

I know when travelling elsewhere it is recommended to get fresh produce etc from the grocery store and bring your own food. However, grocery store shopping will be next to impossible (in Tibet especially - I will be on a small tour driving through some very remote places!) and though Nepal may be slightly easier, I think it will be a challenge.

I am fine to bring my own staples but note this trip is backpacking style and I will have barely enough room for (non-food) necessities so I unfortunately cannot bring an extra suitcase filled with food. I also doubt I will have access to microwaves for the Tibet portion of the trip.

Can anyone offer the following advice:

- have any of you traveled to these places or somewhere similar and how did you manage?

- with limited space what would be the best staples to bring/what will stretch the farthest but take up the least space (I'm thinking a big bag of gluten-free oats? should be easy to get boiling water in most places)

- CC issue is gonna be huge but what do you think is the safest bet to eat in this part of the world? Should I just live off steamed rice for the two weeks and take lots of vitamins and hope I can survive with the lack of nutrients? I'll try and add safe fruit and veg at every chance I get obviously.. (Note: fresh veggies are very scarce in Tibet - main diet it dumplings/momos, rice and yak meat - I assume the meat has a high chance of being marinated in unsafe soy sauce)

- are there any pills/supplements/natural remedies to help me cope if I do get glutened (which is likely)? I heard of GliadinX - anyone have success with this? Also thinking maybe this would be a good time to invest in a Nima?

Thank you so much! Any advice will be really helpful! :)

(Also, please no comments on how I should cancel the trip, how getting glutened once will re-damage my intestines, how I should pack less clothes to fit more safe food etc! I know there is no beating Celiac and all the crappy consequences to eating gluten (I've been addicted to this website since getting diagnosed and have learned so much from you guys!) and that this is probably the worst vacation for a celiac lol. But this trip has been a life dream of mine and we actually booked it in lieu of having a wedding so for this reason I can't (won't) cancel it :) I know I'm taking a huge risk and many would disagree with my decision but please positive comments on how I can be best prepared and reduce the risk/reduce the symptoms will be really appreciated!)

Thanks :)

Jes

 

Edited by JesLin

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kelloramma Rookie

Hello,  I am in a job that I travel every 3rd week...It gets challenging becuase many times I am doing audits of warehouses and they dont even have a cafeteria.  I usually bring gluten-free protein bars as a back up if I have to miss a meal and then eat when I get back to the hotel.  Just a suggestion because they certainly fill me up....Have a safe trip...Kelly

 

kareng Grand Master
(edited)

If you can get plain rice, go for it.  Plain fish, meat, too.  Maybe beef jerky and protein bars ?  

I wouldn't bother with the Nima- it is giving a lot of false positives

Edited by kareng
RMJ Mentor

I was in the hospital once for six days and had nothing except the glucose in the iv solution- and I survived.  Since it is only for two weeks I wouldn't worry about a balanced diet, or getting every nutrient every day.   Some celiacs react to oats, but lots of steamed rice would be good for getting calories.  If you took nuts that would add both fat and protein in a relatively small space per calorie.  Then just add a gluten free multivitamin/mineral.

Sounds like a great trip - hope you have a good and healthy time.

kareng Grand Master
mark790 Newbie
On 4/27/2017 at 2:19 PM, JesLin said:

Hi guys! I'm newly diagnosed (just over a month ago) and before my diagnosis booked a trip to Nepal and Tibet - both of which are bound to be super NOT gluten free and likely not gluten aware. 

I know when travelling elsewhere it is recommended to get fresh produce etc from the grocery store and bring your own food. However, grocery store shopping will be next to impossible (in Tibet especially - I will be on a small tour driving through some very remote places!) and though Nepal may be slightly easier, I think it will be a challenge.

I am fine to bring my own staples but note this trip is backpacking style and I will have barely enough room for (non-food) necessities so I unfortunately cannot bring an extra suitcase filled with food. I also doubt I will have access to microwaves for the Tibet portion of the trip.

Can anyone offer the following advice:

- have any of you traveled to these places or somewhere similar and how did you manage?

- with limited space what would be the best staples to bring/what will stretch the farthest but take up the least space (I'm thinking a big bag of gluten-free oats? should be easy to get boiling water in most places)

- CC issue is gonna be huge but what do you think is the safest bet to eat in this part of the world? Should I just live off steamed rice for the two weeks and take lots of vitamins and hope I can survive with the lack of nutrients? I'll try and add safe fruit and veg at every chance I get obviously.. (Note: fresh veggies are very scarce in Tibet - main diet it dumplings/momos, rice and yak meat - I assume the meat has a high chance of being marinated in unsafe soy sauce)

- are there any pills/supplements/natural remedies to help me cope if I do get glutened (which is likely)? I heard of GliadinX - anyone have success with this? Also thinking maybe this would be a good time to invest in a Nima?

Thank you so much! Any advice will be really helpful! :)

(Also, please no comments on how I should cancel the trip, how getting glutened once will re-damage my intestines, how I should pack less clothes to fit more safe food etc! I know there is no beating Celiac and all the crappy consequences to eating gluten (I've been addicted to this website since getting diagnosed and have learned so much from you guys!) and that this is probably the worst vacation for a celiac lol. But this trip has been a life dream of mine and we actually booked it in lieu of having a wedding so for this reason I can't (won't) cancel it :) I know I'm taking a huge risk and many would disagree with my decision but please positive comments on how I can be best prepared and reduce the risk/reduce the symptoms will be really appreciated!)

Thanks :)

Jes

 

Talk to the tour company operator about the tour and your dietary restrictions.  They may have already encountered the issue and know how to take care of it.  See if you can get in touch with the actual tour guide via email before hand too.  It helps immensely.  Take gluten-free bars like Kind bars and don't arrive at any meal hungry.  Not being hungry makes it easier to be careful when selecting food.  

  • 2 years later...
Loreley Newbie

Hi JesLin!

How was your trip? did you do well with the gluten free issue? I'm thinking in a trip to Nepal and Tibet also and I'm a little worry about the Tibet part. Could you please give me some advices?

Thanks!

Lorena


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,947
    • Most Online (within 30 mins)
      7,748

    Gusssy
    Newest Member
    Gusssy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CarolTN
      Thank you to Trents, Scott, Christina and Bohanley for your replies!  I have been gluten-free for about 13 years and mostly dairy-free during that time. I haven't been diagnosed as Celiac. When I did the test I hadn't eaten gluten for two years and the nurse told me the test wouldn't be accurate. Anyway, once in a blue moon I'll get tempted and take a tiny bite of something. If I do this two or three times close together, I'll get nauseated and if I don't throw up right away to stop it, will spend about 8 hours throwing up off and on before it's over.  I've been using Ketaconazole shampoo for about two years. I like T-Gel, but the prescription shampoo is the only thing right now that calms my scalp down. Many times, my scalp looks pink or red. It just feels very inflamed. I wash my hair every day and use Ketaconazole pretty much every day. I've noticed that a hot blow dryer seems to calm things down too.  My dermatologist has guessed (his term) at seborrheic dermatitis. I really need more help than I'm getting.  Thank you to everybody! Carolyn 
    • ZandZsmom
      Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.
    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
×
×
  • Create New...