Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood test/symptom interpretation?


scanlanmd

Recommended Posts

scanlanmd Apprentice

Hi guys! 

I am a 25 year old female who has always been very food, health an exercise conscious. I have been struggling with chronic fatigue for almost 3 years now. I have had symptoms progress quite rapidly recently, which lead me to seek out blood work. The symptoms I've been experiencing have been severe bloating, extremely poor digestion, loose stools, headaches, a face rash that has been ebbing and flowing with it's flare ups (sort of resembles a malar rash of lupus-although ANA was negative), neuropathy in hands and feet and bleeding gums when brushing, poor sleep. My TTG-IgA came back as a 14.8, the cut off being 14.9, Ferritin level of 15 (after being on iron supplements previously, as per my naturopath) and elevated lymphocytes. I am curious if any of you have experienced these symptoms and if it may be possible that I still could be celiac even though I was .1 under the parameters? 

Thank you so much for your time!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TexasJen Collaborator

The sensitivity of the Anti-TTG IgA antibodies is 81-100% (so not perfect). However, there are no blood tests that you can do that can 100% rule out celiac.  

You didn't mention if you are still eating gluten - if you have cut it out, your tests might be falsely negative.

If you really think you might have it, I would push for a full celiac panel (and maybe even an EGD since you have a lot of GI symptoms)

Good luck!

  • 2 weeks later...
Victoria5289 Apprentice
On 5/4/2017 at 7:22 PM, TexasJen said:

The sensitivity of the Anti-TTG IgA antibodies is 81-100% (so not perfect). However, there are no blood tests that you can do that can 100% rule out celiac.  

You didn't mention if you are still eating gluten - if you have cut it out, your tests might be falsely negative.

If you really think you might have it, I would push for a full celiac panel (and maybe even an EGD since you have a lot of GI symptoms)

Good luck!

It could be a small fibroid I went threw this before eating with no wheat helps 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,097
    • Most Online (within 30 mins)
      7,748

    Karen Lappe
    Newest Member
    Karen Lappe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I have no specific recommendations but I would suggest looking for products that are advertised as produced in a dedicated gluten-free facility. That should eliminate one possible route of cross contamination. It doesn't guarantee that none of the ingredients going into the product are totally gluten free but is should eliminate adding more CC to the mix via processing machinery.  One of the issues you may be experiencing is that testing has shown that a significant percentage of "Certified Gluten Free" products can test far in excess of 10ppm. There was an article appearing in this forum back last summer outlining the results of testing that showed this to be true. So, it may be somewhat of a pig in a poke when you buy this stuff, regardless of how it is billed. It may be safe for you if it actually fits within the stated requirements of it's billing.
    • Hauama
      I can still have a reaction from “certified gluten free” products I don’t like having to use the eat and see what my body does approach are there really any purely gluten free products or do I just have to make all of my own food? 
    • Kiwifruit
    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
×
×
  • Create New...