Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folate/folic acid? Does anyone supplement?


cristiana

Recommended Posts

cristiana Veteran

Hi gluten-free friends

Is anyone supplementing with folic acid or folate? 

I'm wondering what the difference is and also, is it good to supplement these or is there a risk? (I've seen arguments either way).

I totally understand it is better to eat vitamins than pop pills, but as my levels were just above the lowest borderline for normal when they were last tested I'm wondering if the tingling I still have after four years gluten free might be improved if I supplement with this. My B12 is near 500 now, so I'm pretty sure that isn't the problem.  Of course, it could just be that my nerves are damaged and won't recover any more (although they are much better than they were).

Many thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Are you also on magnesium? How are your potassium levels? Both these also effect nerve health. I get a tingling, followed by a feeling of hot needle tingling in waves when I am low on magnesium. (I tried to rotate off the supplement magnesium this week...lasted 2 days before it progressed to that).  Anyway I take a complex in liquid form for combinations of these myself. and also use 2tbsp of nutritional yeast in at least 2 different meals a day as a more natural way of getting various nutrients.  I will link what I use with info on them, I feel much better mixing them in a beverage then popping pills,

This is the company and their products Open Original Shared Link

Open Original Shared Link

^Stress and Energy I take 1 tbsp 3 times a day

Open Original Shared Link

^Along with 1 tbsp of this 3 times a day I mix them up in a green tea normally. Sweetens the tea and adds flavor to it.

The company provides various other supplements like multivitamins etc all gluten free. Best part is they are all liquid form so no pills and quick effective absorption. I suggest buying them on luckyvitamin.com for best pricing.

cristiana Veteran
On 5/12/2017 at 1:13 PM, Ennis_TX said:

Are you also on magnesium? How are your potassium levels? Both these also effect nerve health.

Ennis - Hi!

This is really helpful.  I've wondered about the sort of supplements based on yeast.  I'll look into it.

You are right - I'm sure my magnesium levels and potassium levels should be looked into, too.  I don't think I've ever had a magnesium test but I did score low on potassium on a few occasions.  I wish there was such a thing as a home test kit - could really keep on top of these things.

Off to swallow some magnesium now _ have got out of the habit of taking it.

Cristiana

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,713
    • Most Online (within 30 mins)
      7,748

    Andra
    Newest Member
    Andra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...