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Hearing? celiac disease Related?

VydorScope

By VydorScope
in Related Issues & Disorders

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VydorScope Proficient
VydorScope
Posted

When my son was born he had one of them there infant hearing tests, and passed with the absolute best score possible. He is around 2 1/2 years old now, and is not speaking yet, at all. So via a program with the state we have 2 speech tutors come to our house weekly to work with him (on 2 dif days) been that way for several months now, and at our request they sent an audolgist to our house to test his hearing. He failed!!! :( His left ear got about the worst score you can rate on the meter. They redid the test with several weeks inbetween and used different equipment to be sure. So now we have an apt with an ENT to check him out...

Does this happen with celiac disease? Any relation? Probably not I guess.. but man.. poor kid been through enough already!

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nettiebeads Apprentice
nettiebeads
Posted
When my son was born he had one of them there infant hearing tests, and passed with the absolute best score possible. He is around 2 1/2 years old now, and is not speaking yet, at all. So via a program with the state we have 2 speech tutors come to our house weekly to work with him (on 2 dif days) been that way for several months now, and at our request they sent an audolgist to our house to test his hearing. He failed!!! :( His left ear got about the worst score you can rate on the meter. They redid the test with several weeks inbetween and used different equipment to be sure. So now we have an apt with an ENT to check him out...

Does this happen with celiac disease? Any relation? Probably not I guess.. but man.. poor kid been through enough already!

Poor lil guy! Since he had great hearing at first and then it deteriorated, something must have happened, and I can see how you would blame celiac. All I know is that I've had congestion for months now and I think it is related to my consistant low poisening of myself w/ gluten (I ignored the word malt for years). My dr said that it'll take 12 to 18 months to reverse the symptoms. Anyhow, on the positive side, you are taking a proactive approach w/ your son's hearing. I suffered from repeated ear infections when in grade school and have suffered permanent loss of high and some low frequencies. Remember, this was before the term "glue ear" was around and the seriousness of congestion in the ears wasn't fully understood. But it did give me some empathy with the hearing empaired.

Annette

VydorScope Proficient
VydorScope
Posted
  • Author
Poor lil guy! Since he had great hearing at first and then it deteriorated, something must have happened, and I can see how you would blame celiac. All I know is that I've had congestion for months now and I think it is related to my consistant low poisening of myself w/ gluten (I ignored the word malt for years). My dr said that it'll take 12 to 18 months to reverse the symptoms. Anyhow, on the positive side, you are taking a proactive approach w/ your son's hearing. I suffered from repeated ear infections when in grade school and have suffered permanent loss of high and some low frequencies. Remember, this was before the term "glue ear" was around and the seriousness of congestion in the ears wasn't fully understood. But it did give me some empathy with the hearing empaired.

Annette

THe Audiologist looked in his ears and did not see anything wrong, but insisted that a ENT might see something she did not. My wife wears a hearing aid as a reminder of the FOUR TIMES she had tubes in her ears as a child. My son has only had one ear infection in his life, and that was cleared up easily with Amoxilyn or somthing like that. An antibotic.

He is extremly smart (expect speech scores way above age level on all tests), and does not act like he can not hear. I have been wondering if he is just smart enough to compensate some how. I know he can hear some cause he reacts to sounds that he could not possible know (like the dog barking in a different room) with out being able to hear.

nettiebeads Apprentice
nettiebeads
Posted

It's true that the younger one is, the easier it is for them to develop compensenting skills. I'm glad the audiologist recommended an ENT. I wish I had been sent to one years ago by my gp. But then again, this was the same gp that dx'd my celiac disease via the diet challenge.

And wasn't it in one ear that his hearing seems to be acutely affected? And btw, I think he's getting even cuter. Thanks for updating his pic.

Annette

VydorScope Proficient
VydorScope
Posted
  • Author
It's true that the younger one is, the easier it is for them to develop compensenting skills. I'm glad the audiologist recommended an ENT. I wish I had been sent to one years ago by my gp. But then again, this was the same gp that dx'd my celiac disease via the diet challenge.

And wasn't it in one ear that his hearing seems to be acutely affected? And btw, I think he's getting even cuter. Thanks for updating his pic.

Annette

Thanks! hehe you can alwys find updated pics at teh website in my sig. :D

At the first hearing test his right ear passed, but since its a pass/fail kind of thing theres no way to now if its "bearly passed" or perfect. He left ear failed. Same pass/fail concept.

At th retest he failed the left agian, and the right was not retested.

Guest nini
Guest nini
Posted

my daughter had the hearing test at birth and passed with flying colors, at her 3 year well check up she failed her hearing test... on further exploration her allergies were aggravating her sinus cavities and blocking her ears... they put her on Claritin for a while. It helped and she passed the hearing test next time around. After she went gluten-free though we were were able to take her off the Claritin as her other allergies weren't as severe. I still need to give her benedryl on occasion, but not Claritin every day.

Are his Dr.s looking at environmental allergies? That may be the culprit. Good luck.

oh and the reason that my daughter had the test at birth is because my husbands oldest sister is deaf, and since there was a "family history" they were obligated to test.

VydorScope Proficient
VydorScope
Posted
  • Author
my daughter had the hearing test at birth and passed with flying colors, at her 3 year well check up she failed her hearing test... on further exploration her allergies were aggravating her sinus cavities and blocking her ears... they put her on Claritin for a while. It helped and she passed the hearing test next time around. After she went gluten-free though we were were able to take her off the Claritin as her other allergies weren't as severe. I still need to give her benedryl on occasion, but not Claritin every day.

Are his Dr.s looking at environmental allergies? That may be the culprit. Good luck.

oh and the reason that my daughter had the test at birth is because my husbands oldest sister is deaf, and since there was a "family history" they were obligated to test.

Docs have not looked in to anything yet, we just begining this. So far all thats been done is the 2 tests by the auidologist.

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debbiewil Rookie
debbiewil
Posted

Um, I know 2 people with celiac who also lost hearing. One had numerous associated diseases - Addison's, diabetes, etc., and whether the hearing loss came directly from the celiac, or from the host of related problems, I don't know. The other person really had no associated symptoms. She started losing her hearing in her twenties, and while she had some symptoms of celiac, of course it wasn't diagnosed for several more years. So there does seem to be some connection, but whether the hearing loss was directly related to celiac, or because of some nutrient deficiencies or more susceptibility to colds, infections, etc. because of the celiac, I don't know.

Debbie

pixiegirl Enthusiast
pixiegirl
Posted

I'm hearing impaired and I have Celiac, I wasn't diagnosed until last year and my hearing loss is from childhood so I'm not sure they are related, but just wanted you to know.

Susan

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