Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questions On Celiac

cherie012

Recommended Posts

cherie012 Apprentice
cherie012
Posted

Hi All~ Last week my 2 year old tested + for 2 of the celiac genes. Coupled with his symptoms, I am nearly 100% sure this is his problem, his scope results and blood work will be in this weekend..

Now. Turning the tables to me. I have read there is a genetic factor to celiac. I am wondering if this is my issue as well? I have graves. As does my brother. My dad has lupus. My understanding is both of these conditions are linked to celiac, in particular the genes that my son has tested + for.

I question celiac now for me because I have always had bouts of GI issues, labeled irritable bowel. From very young. And, for the past 8-9 months now I've had hives. No known origin, it seems, at least not environmental or seasonal. I have noticed they get WAY worse after eating..... sandwiches.15 grain whole wheat no less. :unsure: if I consume a large quantity of these items, the following day my lips, eyes, and face swell horribly. I have hives from head to toe. Antihistamines won't work on them. On days I consume lesser of the wheat family, the lesser the hives are..

Now, I know there are atypical presentations, but could this be it? Am I barking up the wrong tree? I mean, my peanut got this from somewhere, and seeing that my DH is japanese ( very low incidence I have heard) and has no issues whatsoever resembling all of this stuff, then I am assuming he has got it from me.

Any insight is greatly appreciated. I have spent the past week researching ALOT. and lightbulbs are finally coming on. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

I think you are probably right. He did get those genes from someone. I have Graves too....at first I assumed it was the Graves causing my symptoms but my PTU wasnt eliminating the symptoms and it always had worked very quickly in the past. I got talked into radioactive iodine and even after going hypo and then stabalizing my levels...my symptoms just got worse and worse. Nearly 3 years later I went on a gluten-free diet and most of my symptoms disappeared. I tested positive for gluten intolerance but dont carry either of the main Celiac genes. My face and hands also get very puffy and swollen from gluten. I also have had to eliminate dairy and I'm still figuring out other sensitivities. There is a big link between celiac and thyroid disease so I think you're on the right track. Why not get tested? I'm doing much better now...I was on disability for 2 years after my radioactive iodine and doctors couldnt figure anything out. 1 month after the diet and I was back at work and havent missed a day yet. :D

cherie012 Apprentice
cherie012
Posted
  • Author
I think you are probably right. He did get those genes from someone. I have Graves too....at first I assumed it was the Graves causing my symptoms but my PTU wasnt eliminating the symptoms and it always had worked very quickly in the past. I got talked into radioactive iodine and even after going hypo and then stabalizing my levels...my symptoms just got worse and worse. Nearly 3 years later I went on a gluten-free diet and most of my symptoms disappeared. I tested positive for gluten intolerance but dont carry either of the main Celiac genes. My face and hands also get very puffy and swollen from gluten. I also have had to eliminate dairy and I'm still figuring out other sensitivities. There is a big link between celiac and thyroid disease so I think you're on the right track. Why not get tested? I'm doing much better now...I was on disability for 2 years after my radioactive iodine and doctors couldnt figure anything out. 1 month after the diet and I was back at work and havent missed a day yet. :D

I took PTU forever. somewhere along the line, after many, many years of my thyroid being high and 4 pregnancies, it finally gave out. Now, it is low ( easier to deal with than high, though!) my baby brother just underwent the radioactive iodine 6 months ago, they gave him double the normal dosage, and lo and behold, his thyroid is high again... So... I have fowarded all info on this stuff I have found over the past week or so.

I will get checked. But, I am also going to start the gluten-free diet tomorrow with my baby. If my symptoms subside, then I'll just take that as my cue~ I am tired of feeling miserable <_<

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,704
    • Most Online (within 30 mins)
      7,748
    Carol L Woodyard
    Newest Member
    Carol L Woodyard
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      High blood test numbers - with scales. Any advice?

      By RMJ · Posted

      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...