Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking for Celiac Specialist in NH or Massachusetts for young child

NHMom1016

By NHMom1016
in Doctors

Recommended Posts

NHMom1016 Rookie
NHMom1016
Posted

Hi,

I am looking to see if anyone has any recommendations for a good pediatric celiac specialist or GI in NH or Massachusetts.

I have read that there are many specialists now that feel a biopsy does not have to be done in some cases.

This is who I am looking for.

Thank you for your time!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
NutHouse! Granola Co.

Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.

ironictruth Proficient
ironictruth
Posted
  On 5/23/2017 at 6:09 PM, NHMom1016 said:

Hi,

I am looking to see if anyone has any recommendations for a good pediatric celiac specialist or GI in NH or Massachusetts.

I have read that there are many specialists now that feel a biopsy does not have to be done in some cases.

This is who I am looking for.

Thank you for your time!

Expand Quote  

Alessio Fasano at Mass General.  or Maureen Leonard.  Mass General has a Celiac disease program at the Children's Hospital there in Boston. You literally could not be any closer to the best. Good luck.

Open Original Shared Link

 I went there as an adult and they do provide virtual visits once you're established as well. So if you're not very close to Boston that is probably also an option.

NHMom1016 Rookie
NHMom1016
Posted
  • Author
  On 5/23/2017 at 10:42 PM, ironictruth said:

Alessio Fasano at Mass General.  or Maureen Leonard.  Mass General has a Celiac disease program at the Children's Hospital there in Boston. You literally could not be any closer to the best. Good luck.

Open Original Shared Link

 I went there as an adult and they do provide virtual visits once you're established as well. So if you're not very close to Boston that is probably also an option.

Expand Quote  

Thank you so much!  I just called to make an appointment with Dr. Fasano, He is booked out till September :( I will try Maureen Leonard.  If I can't get appointments for awhile, do I keep my son on gluten?  At the moment, we are waiting for his 2nd test results (celiac panel) to come in.  (Should be within the next few days) to ensure it wasn't a false positive before.  My other child is being tested as well.

cyclinglady Grand Master
cyclinglady
Posted

Is there a reason why you want to avoid an endoscopy?  Look through the kids section of the forum.  You see that the experience the kids had was fine and the parents were glad they did it.  

ironictruth Proficient
ironictruth
Posted

I hear ya NHmom. But I also hear cyclinglady, and the many others on this board. 

Take it from me, it is horrible to have some questionable bloodwork and/or a questionable biopsy. I cannot imagine going through what you are with your little one. I cannot even handle it for me and I am an adult!

It is worth the wait to get an educated opinion vs getting what you want test wise at Walmart quickly. And trust me, I am a mom too so I have been there. 

How old are your kids? 

September is a quick appointment. Take it. And Dr. Leonard is great too if she can see you sooner. She was the first doc I met in person. You can always go from there. 

  • 2 months later...
NHMom1016 Rookie
NHMom1016
Posted
  • Author

Hi Everyone!  Thank you for all your responses!  This site is so helpful and I appreciate everyone who replied to my post.   I was able to get an earlier appt with Maureen Leonard who was absolutely wonderful like you all said and after more testing and even a genetics test, my son now has a diagnosis of celiac disease.  He's been gluten free now for a few weeks.  He is doing very well on the diet so far.  He does seem to be sleeping better which was always a problem since he was an infant, so that is a good sign!  We test in 3 months and I hope that his iron levels go up. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Skout Organic
    Food for Life


    Celiac.com Sponsors (A17-M):

    Tierra Farm


  • Recent Activity

    1. DebJ14
      - DebJ14 replied to Jhona's topic in Meet Up Room
      16

      Does anyone here also have Afib

      It was a long road to get to this point, but we have discussed many times that if my husband had not seen the remarkable transformation in my health with just diet and supplements, he never would have accepted the advice of this cardiologist. He would have thought he was a quack and found another doctor. As it was, he was leery of seeing this guy, but his...
    2. knitty kitty
      - knitty kitty replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Intermittent Fatigue

      Welcome to the forum, @ChrisDun! Has your husband been checked for nutritional deficiencies? Many newly diagnosed are short on the B Complex vitamins (especially Thiamine), Vitamin D and minerals like magnesium and iron. Talk to the doctor and nutritionist about supplementing the eight essential B vitamins while healing. I had episodes...
    3. Scott Adams
      - Scott Adams replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Help Understanding Test Results

      Please let us know how it turns out.
    4. Scott Adams
      - Scott Adams replied to Jhona's topic in Meet Up Room
      16

      Does anyone here also have Afib

      Thank you for sharing your husband’s remarkable journey—it’s truly inspiring to hear how a holistic, root-cause approach has made such a profound difference in his health. It’s fascinating how his cardiologist connected dietary inflammation, gut health, and even historical factors like abdominal radiation to his A-fib, leading to a tailored plan that finally...
    5. ChrisDun
      - ChrisDun posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Intermittent Fatigue

      My husband was diagnosed with celiac disease approx one year ago. Even since changing his diet, he experiences bouts of fatigue, almost like a light switch - he’s fine one minute, then the next has to go lay down. he was diagnosed in March 2024. Then felt better almost immediately after changing to a gluten free diet. Felt almost back to himself all s...
  • Celiac.com Sponsor (A19):
    Food for Life


  • Member Statistics

    • Total Members
      129,174
    • Most Online (within 30 mins)
      7,748
    LizzieF
    Newest Member
    LizzieF
    Joined
  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Authentic Foods


  • Upcoming Events

  • Posts

    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      It was a long road to get to this point, but we have discussed many times that if my husband had not seen the remarkable transformation in my health with just diet and supplements, he never would have accepted the advice of this cardiologist.  He would have thought he was a quack and found another doctor.  As it was, he was leery of seeing this guy, but his cardiologist retired and this was the man who took over the practice.  He left that hospital for a bigger practice, but my husband, and most of his patients followed him, even though it is an hour away now.  
    • knitty kitty
      Intermittent Fatigue

      By knitty kitty · Posted

      Welcome to the forum, @ChrisDun! Has your husband been checked for nutritional deficiencies?  Many newly diagnosed are short on the B Complex vitamins (especially Thiamine), Vitamin D and minerals like magnesium and iron.   Talk to the doctor and nutritionist about supplementing the eight essential B vitamins while healing.   I had episodes where I would "hit a walk" and had to stop and rest.  I was very deficient in Thiamine and the other B vitamin.  The B vitamins are water soluble, and so are easily excreted if not needed, but the difference supplementing them was enormous, especially with Thiamine in the form Benfotiamine which promotes intestinal healing.   ...
    • Scott Adams
      Help Understanding Test Results

      By Scott Adams · Posted

      Please let us know how it turns out.
    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      Thank you for sharing your husband’s remarkable journey—it’s truly inspiring to hear how a holistic, root-cause approach has made such a profound difference in his health. It’s fascinating how his cardiologist connected dietary inflammation, gut health, and even historical factors like abdominal radiation to his A-fib, leading to a tailored plan that finally resolved his episodes. The emphasis on diet (especially sugar, gluten, and dairy), along with targeted supplements and careful monitoring, highlights how individualized care can outperform one-size-fits-all protocols. It’s also refreshing to hear about a doctor who prioritizes metabolic markers like HDL, triglycerides, and Vitamin D over...
    • ChrisDun
      Intermittent Fatigue

      By ChrisDun · Posted

      My husband was diagnosed with celiac disease approx one year ago.  Even since changing his diet, he experiences bouts of fatigue, almost like a light switch - he’s fine one minute, then the next has to go lay down.  he was diagnosed in March 2024.  Then felt better almost immediately after changing to a gluten free diet.  Felt almost back to himself all summer.  But since November/December, he’s been feeling fatigue off and on, and it’s interfering with every day life.  has anyone else experienced this? 
×
×
  • Create New...