Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help with gluten withdrawl


Karlyrenee31

Recommended Posts

Karlyrenee31 Newbie

Hi I'm Karly, I'm 19 and have been recently diagnosed with Celiac disease. About 3 weeks ago I stopped eating gluten, and have been fine up until last week. I have been extremely tired all the time, no energy, mood swings, brain fog(the worst of the symptoms), and nausea. I was wondering if anyone had found anything to help with these symptoms. I have a concert to go to this weekend and I don't want to be nauseous and have brain fog, and I also don't want to be exhausted, it's a 3 day concert. There's no way I'm not going to the concert, I just need some tips, anything that's helped anyone would be great, to help me get through this. Thank you so much. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You may want to make sure your gluten-free diet has enough protein, fiber, etc.  sometimes,  when we eliminate gluten, we eliminate foods we need . For example, if I ate PB on toast every morning for breakfast.... now I went gluten-free and just ate a banana.... I am not getting the protein I was.

Ennis-TX Grand Master

You might find as kareng mentioned your not getting the nutrients you needed take a step back and make sure your getting a full rounded diet. Many of us with celiac also have to supplement for various reasons 1. being gluten free foods are often not fortified. 2. Damaged intestines are not as effective or do not absorb the nutrients we need, the common ones for these are b-vitamins, magnesium, iron, vitamins D  among others, folate. etc. Many of which will cause brain fog, constipation, confusion, numbness, etc if we do get enough. Talk to a dietician about supplements for these I will give a link of what I take for various ones at the end of this.

If heading out for a even simplify your diet to non processed foods a few days before, baked sweet potato, rice, green veggies, eggs, simple unprocessed meats, etc. 1-3 ingredient foods and avoid spices condiments that might have contaminated jars (get new ones), and sauces. This way your extra careful not to poison yourself. And when you head out take some certified gluten-free meal pars, bags of nuts. fresh fruit, maybe a jar of nut butter with you so you have safe snacks. Might suggest fixing food in new microwave prep ware from like nordic ware to make sure your not using anything contaminated. And freezer paper on prep surfaces is a life saver for making a clean safe works surface and easy clean up.

Further note check the 101 link here for basic info, you need to be sure your gluten is not sneaking into your diet, check everything, make sure you cleaned out your pantry, gotten rid of crumbs in drawers, thrown out crumby jelly and butter jars, thrown out scratched pots pans, utensils, Tupperware, etc. Avoid processed foods for the first few months eating a whole foods only diet if you can. Will help boost your healing.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

https://www.celiac.com/forums/topic/116482-supplement-and-foods-you-take/https://www.celiac.com/forums/topic/116482-supplement-and-foods-you-take/

 

Jmg Mentor
7 hours ago, Karlyrenee31 said:

Hi I'm Karly, I'm 19 and have been recently diagnosed with Celiac disease. About 3 weeks ago I stopped eating gluten, and have been fine up until last week. I have been extremely tired all the time, no energy, mood swings, brain fog(the worst of the symptoms), and nausea. I was wondering if anyone had found anything to help with these symptoms. I have a concert to go to this weekend and I don't want to be nauseous and have brain fog, and I also don't want to be exhausted, it's a 3 day concert. There's no way I'm not going to the concert, I just need some tips, anything that's helped anyone would be great, to help me get through this. Thank you so much. 

I found the first weeks gluten free very up and down. One thing which helped immensely was focussing on a good diet, in particular breakfast and lunch. I started eating an omelette every morning, with different fillings each day, including onions, kale, spinach, mushrooms, bacon, tomatoes, (bell) peppers etc etc. This set me up for the day, with a green salad at lunch with plenty of olive oil, cider vinegar and maybe some oily fish as well. but with a good breakfast I stopped feeling weak and irritable and by avoiding sugary cereals etc I stopped having that mid morning sugar crash too 

like Karen says, protein is really important. Fats are important also. You have probably been suffering celiac malnutrition for some time and although going gluten free will begin the healing process it won't be instantaneous. You can help it along by eating really well, giving yOur body all the ammunition it needs to win the war and you can also take some multivitamin supplements to ensure your getting all the nutrients you need.

best of luck :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,025
    • Most Online (within 30 mins)
      7,748

    toyatang
    Newest Member
    toyatang
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @Karmmacalling I'm very sorry to hear you are feeling so unwell.  Can you tell us exactly what sort of pain you are experiencing and where the pain is?  Is it your lower abdomen, upper abdomen etc?  Do you have any other symptoms? Cristiana
    • trents
      The NIH article you link actually supports what I have been trying to explain to you: "Celiac disease (celiac disease) is an autoimmune-mediated enteropathy triggered by dietary gluten in genetically prone individuals. The current treatment for celiac disease is a strict lifelong gluten-free diet. However, in some celiac disease patients following a strict gluten-free diet, the symptoms do not remit. These cases may be refractory celiac disease or due to gluten contamination; however, the lack of response could be related to other dietary ingredients, such as maize, which is one of the most common alternatives to wheat used in the gluten-free diet. In some celiac disease patients, as a rare event, peptides from maize prolamins could induce a celiac-like immune response by similar or alternative pathogenic mechanisms to those used by wheat gluten peptides. This is supported by several shared features between wheat and maize prolamins and by some experimental results. Given that gluten peptides induce an immune response of the intestinal mucosa both in vivo and in vitro, peptides from maize prolamins could also be tested to determine whether they also induce a cellular immune response. Hypothetically, maize prolamins could be harmful for a very limited subgroup of celiac disease patients, especially those that are non-responsive, and if it is confirmed, they should follow, in addition to a gluten-free, a maize-free diet." Notice that those for whom it is suggested to follow a maize-free diet are a "very limited subgroup of celiac disease patients". Please don't try to make your own experience normative for the entire celiac community.  Notice also that the last part of the concluding sentence in the paragraph does not equate a gluten-free diet with a maize-free diet, it actually puts them in juxtaposition to one another. In other words, they are different but for a "limited subgroup of celiac disease patients" they produce the same or a similar reaction. You refer to celiac reactions to cereal grain prolamins as "allergic" reactions and "food sensitivity". For instance, you say, "NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing" and "IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. I need to remind you that celiac disease is not an allergy, it is an autoimmune disorder. Neither allergy testing nor food sensitivity testing can be used to diagnose celiac disease. Allergy testing and food sensitivity testing cannot detect the antibodies produced by celiac disease in reaction to gluten ingestion.  You say of me, "You must be one of those who are only gluten intolerant . . ." Gluten intolerance is synonymous with celiac disease. You must be referring to gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity). Actually, I have been officially diagnosed with celiac disease both by blood antibody testing and by endoscopy/positive biopsy. Reacting to all cereal grain prolamins does not define celiac disease. If you are intent on teaching the truth, please get it straight first.
    • Bebygirl01
      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
×
×
  • Create New...