Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aphthous Ulcers


plumbago

Recommended Posts

plumbago Experienced

At first I thought it was an infected or clogged (with a stone) salivary gland, but after taking a gander at my tongue late this afternoon, I see it is a large aphthous ulcer on the right side of my tongue, and it hurts. Any micro-movement, even, seems to cause pain. Swallowing is no fun. Eating lunch was a challenge, eating dinner tonight, much more painful - to such an extent that I'm not sure how breakfast will go tomorrow. Will I have to drink it?

I have gotten frequent ulcers in the past, even the recent past. I have heard they can be caused by stress, autoimmunity, some ingredients in toothpaste (SLS) and possibly citrus. Before I realized the pain was coming from my tongue, when I thought it was salivary gland-related, I drank lots of raw lemon juice. Possibly the exact wrong thing. While eating dinner, I got another one on the other side, more toward the front and not as painful. Still, incredible.

I just cleaned out CVS of anbesol, orajel mouthwash, and two different kinds of toothpaste without SLS.

Does anyone have any thoughts? I feel sure I have not been "glutened" recently and am always doing my utmost to eat gluten-free.

Plumbago


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Feeneyja Collaborator

I believe acidic foods can cause them, so the lemon juice could be the culprit.  I get them if I eat a lot of tomatoes or drink a lot of coffee (again, the acids) or if I am sick. And definitely stress/illness.  Many autoimmune diseases come with these ulcers and it is thought that it is a result of the inflammation.  My gluten challenge brought on a mouth full of sores and swollen gums that affected my teeth (nerve pain and loose teeth).

I have always found that gargling with warm salt water helps quite a bit with the healing process.  Don't swallow it!  Also, you can get a paste from your dentist that you put on it at bed time that also helps it heal, but I have no idea if it's gluten free.  

 

plumbago Experienced
10 hours ago, Feeneyja said:

I have always found that gargling with warm salt water helps quite a bit with the healing process.  Don't swallow it!

No, I won't swallow it! Right now, the wound is not really open, and cold relieves the pain more than warmth, so I'm not sure how much good salt water will do. I guess I get to anticipate the day when it does open, if it does. O goody. The pain is incredible. And I'm very hungry because I'm not eating enough. This really sucks, I must say. Thanks for your other words. Yeah, it was the citrus, and the stress, and some sugary things probably did not help either. Ugh.

cristiana Veteran

Just recently I've had a lot of soreness in my mouth. I have small apthous ulcers on the underside of my tongue (even when I'm well I find I can get them by just eating salty potato chips).  I also have had to have a lump removed from my mouth which turned out to be benign.  Most of this I put down to stress, not enough sleep and I'm badly anemic at the moment - women's stuff.  I have just started to supplement B12 and ferrous glucanate again which has helped in the past.  My consultant tells me that often celiacs with blood iron under 50 can suffer from these sores and if I have an infusion it should sort out the problem.

Silly of me but I've just made things far worse, I believe, by consuming a few pure (i.e. gluten free) oat cookies in the last couple of days. I've avoided oats for a long while now but thought I'd give them a try again and my mouth is tremendously sore this evening.

plumbago Experienced

I have just purchased Dr Bronner's All-One Toothpaste, and plan on using it. I have heard SLS in toothpaste can cause these kinds of ulcers.

Victoria1234 Experienced

I use a little bit of baking soda and mix it into a paste and put it on the offending area. Try to not swallow as long as you can, then rinse out. Makes mine go away by the next day.

plumbago Experienced

Thanks.

The ulcer has been slowly shrinking so I'm more or less ok now, but for next time. The toothpaste is for mainly just avoiding future flares, that is, if the ulcers are caused by the SLS. However, it does not have fluoride, and I do want fluoride.

What I did to manage it was to use a lot of listerine - it just withered it, as best I can describe. Used light nsaids before eating, and drank only water for the last week, no juice, no carbonated water, no coffee, no coca cola, just water. It's been boring!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Posterboy Mentor

Plumbago,

Invest in some Lysine an amino acid.  It can be used prophylactically to keep sores at bay.

Taking it in high doses say 1,000mg two or three times daily can help them heal quickly.

Here is an old thread about this topic.

There are many other threads that talk about this.

Here is a newer thread about the same topic that has some additional ideas.

But in essence apply the three week rule.  If it doesn't get better in 3 weeks go and see your doctor about it.

But Lysine helped even my most severe ulcer/mouth sore outbreaks in less than a week when I used to get them all the time especially if I swilled salt water in addition to the Lysine.

But Lysine keeps them at bay for me.

*** this is not medical advice but I hope this is helpful.

posterboy,

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,217
    • Most Online (within 30 mins)
      7,748

    llisa
    Newest Member
    llisa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Milarynn,  Welcome to the forum!   Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies.  Be sure to have your Vitamin D level checked.  Vitamin D helps prevent bone loss, including loss from the jaw and teeth.   Magnesium and calcium are both important to bone health as well.  Magnesium helps keep the calcium from leaving your bones.  Magnesium helps make life sustaining enzymes with Thiamine Vitamin B1.  Low Magnesium and/or low Thiamine results in muscle cramping.   Thiamine deficiency is found in Pre-diabetes and Diabetes.  Poor absorption of the eight water soluble B vitamins and Vitamin C are found in Celiac Disease.  Insufficient Vitamin C can cause poor oral health, resulting in poor gum health such as receding and bleeding gums.  Vitamin C is needed to fight bacteria that cause plaque which causes cavities.  Vitamin C helps rebuild tooth enamel.   I've had jaw muscle cramping, TMJ problems, tooth loss and gum problems.  Do talk to your dentist about having Celiac Disease.  Practice good oral hygiene.  I'm also Diabetic and take Benfotiamine (a form of Thiamine) that helps regulate blood glucose and heal the intestines. Do keep us posted on your test results and your progress!
    • trents
      Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody testing done to check for compliance with the gluten free diet? Second, DNA testing cannot be used to confirm celiac disease. 40% of the general population has the genetic potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. It takes both the genetic potential and some triggering biological stress event in order to develop active celiac disease. Otherwise, the genes remain inactive. High lipase levels would indicate some problem with your pancreas. 
    • More2Learn
      Thanks, yes, I've gone back and forth.  There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews.  I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating period.  I'm either going to just going to use what I've learned in these last few months to purposely never cheat again (obviously there is the accidental glutening situations) or test first, and then do that.  I don't need an official diagnosis so much that if I'm doing well I'm going to sabotage that by then starting to eat gluten again. I'm so glad you said this.  Even from what I've read so far, it makes sense to me that this is a misconception.  But growing up with all kinds of allergies, I can see how, as for the general population it's just easier for everyone to simplify it down to a type of "allergy," people would assume this.  It's just how most people look at allergies and diets and gluten avoidance has been painted as both.  I even see it in my journey to date, when I say I want a gluten free selection at a restaurant and I am asked "is it an allergy?" and it is so much easier just to say yes (even if the answer is actually well, no, it's autoimmune).  Because the "yes" answer is the "this is serious" answer.
    • Milarynn
      Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease. An A1C test was also done and I am pre-diabetic. When I got home from work today, I started to feel sever cramping in my jaw muscles. I started to have jaw muscle cramps in the the last year. Not to mention, even with good oral hygiene, I have rapidly developed periodontal disease. I did have a small amount of gluten, thinking it wouldn’t harm much but I was sadly mistaken. DNA results should be back in 2 weeks. 
    • kopiq
      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
×
×
  • Create New...