Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Day 7 of Gluten Free


MrsPeterson17

Recommended Posts

MrsPeterson17 Rookie

I was diagnosed with celiac after spending the first 23 years of my life suffering from symptoms and being misdiagnosed. FINALLY I have the answer I've been waiting for. Today marks day 7 gluten free... I must say I feel a tremendous difference in my energy level and feel like I don't need my ADHD medication as much. My constant eczema is clearing up slowly but it's better than I've ever seen it!

But I am SO SO SO hungry. I wake up every two hours at night with a growling tummy and drinking a glass of water doesn't settle it. Throughout the day I cannot get enough to eat and enough water to drink. I'm very new to this, is this normal?? Will this adjust? I've also had to pee every hour. 

 I gained about 20lbs from celiac and I have lost 6lbs since going gluten free this week. I'm assuming water weight. . My stomach pains are still very prominent but my doctor says the damage needs some time to adjust and heal if possible. But now I'm just feeling intense hunger pain no matter how much I eat. I am still 5lbs overweight and so I really do not want to overeat. But my goodness I have no idea how else to control this. Before my diagnosis I was struggling with having zero appetite. Now I'm completely opposite ?

Thanks for being willing to be patient and share your knowledge with the newbie! ❤️


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jmg Mentor

Hello and welcome :)

The first few days/weeks/months on the diet can be a little strange! You will have good days and bad days and progress isn't always linear, but you will get there. Take a little time out to read this thread, there's lot's of good advice in there!

Your doctor is right, it's about healing and allowing your stomach to make the most of the food you do eat. Your hunger at the moment is perhaps a sign that your body is craving nutrients. You need to eat as well as possible at this stage to give the healing process all the help you can. 

1 hour ago, MrsPeterson17 said:

 I am still 5lbs overweight and so I really do not want to overeat. But my goodness I have no idea how else to control this. Before my diagnosis I was struggling with having zero appetite. Now I'm completely opposite ?

Before when you ate it was causing your body stress. Now your body is finally receiving the nutrients its been craving and it's telling you 'more please!' - If you can stick to fresh unprocessed foods as much as possible you will benefit from it. Fruit, Vegetables, eggs, fish, unprocessed meat. Protein will fill you up for longer as will foods with a low GI rating

But try not to worry too much about weight on a day to day basis. The diet at this stage is not about losing weight but getting healthy.  The gluten free diet also cuts out a lot of empty calories in bread, pasta, baked goods etc, so if you avoid the gluten free replacements, which are often even higher in fat and sugar, then some weight will come off in a healthy way. 

You will hopefully have a lot more nice surprises as the healing process takes place. Be happy, you have an answer and you'll continue to get better as the diet continues. Best of luck!

MrsPeterson17 Rookie

Thank you so much for the reassurance! That makes me feel a lot better and ease some of the anxiety going through this lifestyle change. 

It is so amazing to me how much our bodies are impacted by things they don't respond well too. 

Luckily I haven't discovered much of the gluten free replacements yet. I'll definitely avoid those through this beginning phase until I start feeling better especially when I feel like I can eat all day long! 

The list of foods with the low GI rating was super helpful also!

Thank you for taking the time to offer some advice. I need all the pointers I can get at this point! 

Jmg Mentor
1 hour ago, MrsPeterson17 said:

Thank you for taking the time to offer some advice. I need all the pointers I can get at this point! 

You're most welcome :)

Everyone here was once in your position and remembers just how confusing and sometimes scary it could be. The good news is that as you get more experienced in the diet that feeling lifts. The noisy tummy quietens down. You may get unexpected health bonuses, I had chronic lower back pain for 20 years which suddenly resolved, who would've guessed? 

Use this site and the experiences of the people on it to help you through the tough times. If you're ever feeling isolated or excluded from your gluten munching friends come on here and vent, we've been there :D 

It may not always feel like it and at times you'll feel some grief and resentment, but you will look back on this time as the moment you got your life back. There's no cheesecake, bagel, pizza or doughnut in the world that can rival that feeling. 

Treece68 Rookie

When I first went gluten free it took me 4 1/2 weeks to feel 100%.  I know this because I kept track of my symptoms and how I felt every day. I have noticed that when I get glutinated I know I'm starting to heal when I am out of control hungry so I know how you feel.  I agree with one of the posters above eat as healthfully as possible until you feel better it does help a lot.

cyclinglady Grand Master

Eat.  You are most likely deficient in something and your body want it.  Just reach for nourishing food instead of junk to help with healing.  You can ask your doctor to check for deficiencies.  Sometimes supplementation is need for a while.  

Welcome to the forum!

 

MrsPeterson17 Rookie
2 hours ago, Treece68 said:

When I first went gluten free it took me 4 1/2 weeks to feel 100%.  I know this because I kept track of my symptoms and how I felt every day. I have noticed that when I get glutinated I know I'm starting to heal when I am out of control hungry so I know how you feel.  I agree with one of the posters above eat as healthfully as possible until you feel better it does help a lot.

Thank you! Eating gluten will never feel tempting after experiencing what it is like to get it all out of my system. As dumb as it sounds, I thought those foods were going to somewhat tempt me and that this was going to be hard. But, I feel no desire whatsoever knowing how terrible this feels and the hard part is not being tempted to eat things I'm not supposed to... the hard part is learning all the small details of celiac disease that I am unaware of and dealing with the physical discomforts that should not last forever. Thanks again for the advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MrsPeterson17 Rookie
41 minutes ago, cyclinglady said:

Eat.  You are most likely deficient in something and your body want it.  Just reach for nourishing food instead of junk to help with healing.  You can ask your doctor to check for deficiencies.  Sometimes supplementation is need for a while.  

Welcome to the forum!

 

Thank you so much! Today I prepared enough smaller meals that I could eat throughout the day while I'm at work to hopefully give my body what it's looking for and not feel completely starving. I follow up with my doctor tomorrow and I will for sure ask about checking for deficiencies. He did recommend drinking digestive greens the first 30 days and that is helping a lot. Thanks again for the advice. I'm so naive to most of this information that it helps a ton. Especially coming from others who have gone through the same thing. 

Jmg Mentor
24 minutes ago, MrsPeterson17 said:

Thank you so much! Today I prepared enough smaller meals that I could eat throughout the day while I'm at work to hopefully give my body what it's looking for and not feel completely starving. I follow up with my doctor tomorrow and I will for sure ask about checking for deficiencies. He did recommend drinking digestive greens the first 30 days and that is helping a lot. Thanks again for the advice. I'm so naive to most of this information that it helps a ton. Especially coming from others who have gone through the same thing. 

I discovered omelettes for breakfast after I went on the diet. It gave me a chance to incorporate more vegetables by stirfrying them first and using them as a filling. A 2 egg omelette with spinach, peppers and mushroom filling sets me up for the day and because of the protein in the eggs I didn't 'crash' at 11am and start snacking.  I switch the fillings each day, onions, avocados, kale, bacon etc. so it doesn't get boring. 

Ennis-TX Grand Master

I am always snacking on nuts, seeds, almond butter, and protein shakes, full fat, and high fiber foods help you stay full longer. I use vegan protein powders like NutraKey V-pro , MRM veggie elite , etc so no issues and dairy free.

PS if you ever get those crazy random cravings or need foods I complied a comprehensive list of gluten-free food alternatives and where to get gluten free foods

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

  • 7 months later...
Emily W Rookie
On 6/27/2017 at 10:03 PM, MrsPeterson17 said:

Today marks day 7 gluten free... I must say I feel a tremendous difference in my energy level and feel like I don't need my ADHD medication as much

I am so happy for you! I am finding the exact opposite. I am also day 7 of being gluten free and I am EXHAUSTED. All hours of the day. Has anyone else had this experience? 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,551
    • Most Online (within 30 mins)
      7,748

    Bethann Sheridan
    Newest Member
    Bethann Sheridan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...