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News: Celiac.com: 3 mistakes most people make when they go gluten-free


Scott Adams

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Scott Adams Grand Master

Living a gluten-free life is becoming more popular even for people who don't have celiac disease. After all, some doctors are raising the alarm about ...

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Victoria1234 Experienced
21 hours ago, admin said:

Living a gluten-free life is becoming more popular even for people who don't have celiac disease. After all, some doctors are raising the alarm about ...

View the full article

This article says:

You may be splurging on (or spending extra effort to track down) alt-pastas and grain-free bread, but all that legwork could be for nothing: Gluten might still be hiding in your food. “Maltodextrin, MSG, and hydrolyzed vegetable proteins are all derivatives of it,” Lockwood explains.

 

is this true? 

Ennis-TX Grand Master
12 minutes ago, Victoria1234 said:

This article says:

You may be splurging on (or spending extra effort to track down) alt-pastas and grain-free bread, but all that legwork could be for nothing: Gluten might still be hiding in your food. “Maltodextrin, MSG, and hydrolyzed vegetable proteins are all derivatives of it,” Lockwood explains.

 

is this true? 

Yes if it does not state the source of the said ingredient, or is not labeled gluten-free. In most cases companies will list if it is based from gluten, some rare times they will not OR they might source said ingredient from a new supplier or make a mistake on a order form sourcing a wheat based form unknowingly this leads to those recalls you see with undeclared wheat ingredients. VERY rare but can happen.

For these reasons I personally stick to certain brands, and avoid those ingredients that COULD be questionable as much as possible, in my case I also have to be careful as to if they are derived from corn.

  • 3 years later...
trents Grand Master

My understanding is that maltodextrin and MSG are considered gluten free even if they are made from gluten containing grains because the offending peptides are broken down to the point that they don't create a celiac reaction. Is this no longer considered to be true?

Scott Adams Grand Master

Hydrolyzed wheat protein may also fit into this category, as the amount of gluten remaining after processing is incredibly small, likely under 20ppm, and considering the amount used in a product it further reduces the actual amount of gluten considerably. That said, these ingredients when made from wheat are still considered not gluten-free due to USA's labelling laws, even though in other countries they may be used in products still labelled "gluten-free."

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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