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News: Celiac.com: 3 mistakes most people make when they go gluten-free


Scott Adams

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Scott Adams Grand Master

Living a gluten-free life is becoming more popular even for people who don't have celiac disease. After all, some doctors are raising the alarm about ...

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Victoria1234 Experienced
21 hours ago, admin said:

Living a gluten-free life is becoming more popular even for people who don't have celiac disease. After all, some doctors are raising the alarm about ...

View the full article

This article says:

You may be splurging on (or spending extra effort to track down) alt-pastas and grain-free bread, but all that legwork could be for nothing: Gluten might still be hiding in your food. “Maltodextrin, MSG, and hydrolyzed vegetable proteins are all derivatives of it,” Lockwood explains.

 

is this true? 

Ennis-TX Grand Master
12 minutes ago, Victoria1234 said:

This article says:

You may be splurging on (or spending extra effort to track down) alt-pastas and grain-free bread, but all that legwork could be for nothing: Gluten might still be hiding in your food. “Maltodextrin, MSG, and hydrolyzed vegetable proteins are all derivatives of it,” Lockwood explains.

 

is this true? 

Yes if it does not state the source of the said ingredient, or is not labeled gluten-free. In most cases companies will list if it is based from gluten, some rare times they will not OR they might source said ingredient from a new supplier or make a mistake on a order form sourcing a wheat based form unknowingly this leads to those recalls you see with undeclared wheat ingredients. VERY rare but can happen.

For these reasons I personally stick to certain brands, and avoid those ingredients that COULD be questionable as much as possible, in my case I also have to be careful as to if they are derived from corn.

  • 3 years later...
trents Grand Master

My understanding is that maltodextrin and MSG are considered gluten free even if they are made from gluten containing grains because the offending peptides are broken down to the point that they don't create a celiac reaction. Is this no longer considered to be true?

Scott Adams Grand Master

Hydrolyzed wheat protein may also fit into this category, as the amount of gluten remaining after processing is incredibly small, likely under 20ppm, and considering the amount used in a product it further reduces the actual amount of gluten considerably. That said, these ingredients when made from wheat are still considered not gluten-free due to USA's labelling laws, even though in other countries they may be used in products still labelled "gluten-free."

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      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
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      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
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