Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy only?

Hatbox121

Recommended Posts

Hatbox121 Apprentice
Hatbox121
Posted

I had a repeat colonoscopy last week. I'm 36. My first one was due to rectal bleeding that wouldn't stop. They found a fissure, but also a bunch of polyps so I get to be an overachiever and have colonoscopies early. Anyway when I woke up the DR said he found more polyps and sent those off. No surprise. He also found a few other odd things but nothing major. Then he said he found flat mucosa in my ileum and so he biopsied it to check for celiac. That was that. Wondering if that is enough for a diagnosis? If it comes back positive anyway. I think I'm doing all this backwards and upside down. Would the ileum show celiac? Everything I've read is biopsies via EGD. I had an EGD last year and they found ulcers. He said it looked "all chewed up" but never mentioned any celiac. I have a lot of GI symptoms, but not clearly celiac. Also have a history of bowel rupture(small intestines) as a kid. I'm lost. Should I ask for the blood work? Or just wait and see? Is the ileum even a place for biopsy in regard to celiac? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tessa25 Rising Star
tessa25
Posted

I don't know anything about the ileum. But it's so easy to get a blood test for the full celiac panel, so why not do that now? The full celiac panel includes:

TTG IGA

TTG IGG

DGP IGA

DGP IGG

IGA

EMA

 

Hatbox121 Apprentice
Hatbox121
Posted
  • Author

Thanks! I'll give my GI a call Monday. I already need to ask about something else anyway. Thinking my gut may be why my RBC count is always low. 

cyclinglady Grand Master
cyclinglady
Posted

Yes, you can have celiac disease at the end of the small intestine within reach of the scope from a colonoscopy.  I would ask for a celiac blood panel definitely because villi damage get can occur from several things other than celiac disease.  

 

 

Victoria1234 Experienced
Victoria1234
Posted

I'd want to read further about your chewed up looking insides. Can you ask for the notes? Any biopsies taken?

Hatbox121 Apprentice
Hatbox121
Posted
  • Author

It's ulcers. Well "excavated lesions. H. Pylori negative according to biopsy. Can't recall exact point off top of my head, will have to look at patient portal.

Hatbox121 Apprentice
Hatbox121
Posted
  • Author

My current list- of GI stuff anyway 

Sigmoid diverticulosis 

Benign neoplasm of ascending colon    
Benign neoplasm of descending colon    
Benign neoplasm of sigmoid colon    
Other hemorrhoids    
Gastric ulcer, unsp as acute or chronic, w/o hemor or perf    
Diarrhea, intermittent    
Ehlers-Danlos syndrome    
GERD    
Lower abdominal pain    
Nausea with vomiting, unspecified    
Periumbilical Abdominal Pain    
Personal History of Colonic Adenoma    

Weight Loss

 

Btw ulcers were in Antrum biopsies taken for h.pylori(which was neg). It says "a few" on my notes. All chewed up were his words last I saw him. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,814
    • Most Online (within 30 mins)
      7,748
    judy regina
    Newest Member
    judy regina
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac Test Results - Thoughts?

      By trents · Posted

      It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
    • hmkr
      Celiac Test Results - Thoughts?

      By hmkr · Posted

      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
    • trents
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By trents · Posted

      Well, the only thing I would conclude with would be, if you choose not to trial the gluten free diet, is to encourage you to get periodically tested, either antibody blood tests or the biopsy or both. I think it something that needs to be monitored.
    • Sking
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By Sking · Posted

      So the strange thing is I don't have any symptoms at all, except the soft stools (comes and goes) which they told me was from the Lymphocytic colitis. I had some mild positives on my antibody test and one gene was positive which is what made my doctor go ahead with the endoscopy. The reason they started any of this was finding the lymphocytic colitis this past summer after I had C Diff and she said, Well....it may be from something like Celiac.... Definitely a lot to learn through all of this and I appreciate people like you taking the time to help out a stranger like me!
    • trents
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By trents · Posted

      Well, I wouldn't rule either out. And you might consider trialing a gluten free diet for a few months to see if symptoms improve. That would tell you a lot. By the way, the incidence of other bowel diseases is higher in the celiac population than it is in the general population. And even if you don't have celiac disease, you could have NCGS. Gluten is just problematic for a lot of folks for various reasons.
×
×
  • Create New...